Dandy Walker

site URL - http://www.geocities.com/murat_yil/dandy.html

Site description: Personal experience of a doctor whose child has Dandy Walker Syndrome.




Topic: Top/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Dandy_Walker_Syndrome

LINKURI & TITLEDESCRIPTION & TOPIC
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NextNINDS: Dandy-Walker Syndromehttp://www.ninds.nih.gov/health_and_medical/disorders/dandywalker.htm NINDS: Dandy-Walker SyndromeTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Dandy_Walker_Syndrome A detailed information sheet compiled by the National Institute of Neurological Disorders and Stroke.
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Previous 70Spina Bifida Association of Texashttp://www.sbatx.org Spina Bifida Association of TexasTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Spina_Bifida/Organizations Promoting prevention, educating individuals, and by providing support and encouragement to families affected with Spina Bifida in Central and South Texas.
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Previous 170Epilepsy Association Australiahttp://www.epilepsy.org.au Epilepsy Association AustraliaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations Organization dedicated to educate, inform and assist people with epilepsy, their families and those who work with them.
Next 270
Previous 270Wallace-Kettering Neuroscience Institute, Dayton, Ohiohttp://www.wkni.org/ Wallace-Kettering Neuroscience Institute, Dayton, OhioTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Treatment Provides the Dayton region residents the most advanced diagnostic, surgical and therapeutic neuroscience services available. Offers a comprehensive epilepsy center.
Other resource N0 Surgical Epilepsy Center at University of Pittsburghhttp://www.neurosurgery.pitt.edu/epilepsy Surgical Epilepsy Center at University of PittsburghTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Treatment Read about surgical techniques for the cure and treatment of adults and children with seizure disorders.
Other resource N1 Weston Super Mare Branch of Epilepsy Actionhttp://www.wsm.inuk.com/epilepsy.htm Weston Super Mare Branch of Epilepsy ActionTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups Provides information about coping with this disease, seizures and convulsions. Details about the various types, and provides free help and advice through the use of its email and telephone help lines.
Other resource N2 People Incorporated Epilepsy Serviceshttp://www.orgsites.com/mn/epilepsy People Incorporated Epilepsy ServicesTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups A guided independent living experience designed to prepare adults diagnosed to live and work on their own. Includes services, history, gallery, opportunities and FAQs.
Other resource N3 Yahoo! Clubs: Epilepsy Support Grouphttp://groups.yahoo.com/clubs/epilepsysupportgroup Yahoo! Clubs: Epilepsy Support GroupTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups Supportive club to help those with this disease. Includes free membership, message boards and chat room. Also joining instructions.
Other resource N4 Epilepsy Actionhttp://beehive.thisisessex.co.uk/epilepsy Epilepsy ActionTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups Local branches of national organisation providing support, advice and information on living with epilepsy
Other resource N5 Yahoo! Groups : Epilepsy-Kidshttp://groups.yahoo.com/group/epilepsy-kids/ Yahoo! Groups : Epilepsy-KidsTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups Epilepsy-Kids offers support and information for parents of children diagnosed with any form of epilepsy.
Other resource N6 Yahoo! Groups : adultswithepilepsyhttp://groups.yahoo.com/group/adultswithepilepsy/ Yahoo! Groups : adultswithepilepsyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups This club is for adults (those 18 and older) to discuss their experiences with epilepsy, including causes, treatment and coping skills.
Other resource N7 Yahoo! Groups : real_epilepsyhttp://groups.yahoo.com/group/real_epilepsy/ Yahoo! Groups : real_epilepsyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups A group based in Indiana. Epilepsy and seizure disorder resources and support.
Other resource N8 Yahoo! Groups : Christian-Epilepsy-Supporthttp://groups.yahoo.com/group/Christian-Epilepsy-Support/ Yahoo! Groups : Christian-Epilepsy-SupportTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups Christian oriented support for people with Epilepsy or family and friends of people with Epilepsy.
Other resource N9 Yahoo! Groups : epilepsychathttp://groups.yahoo.com/group/epilepsychat/ Yahoo! Groups : epilepsychatTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups A Place For Chat, Info, Support And To Have Fun
Other resource N10 Yahoo! Groups : epilepsycuredhttp://groups.yahoo.com/group/epilepsycured/ Yahoo! Groups : epilepsycuredTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups We are people sharing information on curing / preventing epilepsy - seizures. This is a support group for patients, parents, children, familly members ... anyone and everyone.
Other resource N11 Yahoo! Groups : childhoodepilepsyhttp://groups.yahoo.com/group/childhoodepilepsy/ Yahoo! Groups : childhoodepilepsyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups This mailing list is intended to support parents and other care-givers of children diagnosed with a form of epilepsy.
Other resource N12 Yahoo! Groups : epilepsysupport4kidshttp://groups.yahoo.com/group/epilepsysupport4kids/ Yahoo! Groups : epilepsysupport4kidsTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups This group is a support group for kids with epilepsy, kids interetsed in improving their condition by natural means.
Other resource N13 Lafora body disease research talkhttp://groups.msn.com/laforabodydiseaseresearchtalk Lafora body disease research talkTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups This is a site about lafora body disease it has a message board and a links page.
Other resource N14 Epilepsy Communityhttp://community.healingwell.com/community/?f=23 Epilepsy CommunityTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups Message boards and chat dedicated to sharing information, offering support, and coping strategies to better manage this disease. Community moderated by volunteers.
Other resource N15 Australia & NZ Epilepsy Support Grouphttp://au.groups.yahoo.com/group/australian_epilepsy_group/ Australia & NZ Epilepsy Support GroupTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups Yahoo! Group for giving support and sharing information.
Other resource N16 Epilepsy Support Group Shetlandhttp://www.esgs.org.uk Epilepsy Support Group ShetlandTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups Offers an extensive FAQ's and a section talking about the different drugs to control epilepsy.
Other resource N17 Australia & NZ Epilepsy Support Grouphttp://www.stixdesigns.com.au/epilepsy-support/index.html Australia & NZ Epilepsy Support GroupTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Support_Groups Includes information, links and articles relating to epilepsy and related topics.
Other resource N18 Parents Against Childhood Epilepsyhttp://www.paceusa.org Parents Against Childhood EpilepsyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations Offers a history and mission statement, information and events, research, a message board, links, institutes and doctors and information about the disease.
Other resource N19 American Epilepsy Societyhttp://www.aesnet.org/ American Epilepsy SocietyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations Promotes research and education for professionals dedicated to the prevention, treatment and cure of epilepsy.
Other resource N20 Epilepsy Research Foundationhttp://www.erf.org.uk Epilepsy Research FoundationTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations Promotes, supports and raises money to fund basic and clinical research into the basic causes of epilepsy. It aims to improve the lives of those who suffer from epilepsy and thus the lives of their families, friends and colleagues.
Other resource N21 European Epilepsy Academy (EUREPA)http://www.eurepa.de/ European Epilepsy Academy (EUREPA)Top/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations Being part of the European structure of the International League Against Epilepsy (ILAE), EUREPA initiates and co-ordinates concerted research on matters relating to epilepsy throughout Europe.
Other resource N22 International League Against Epilepsy (ILAE)http://www.ilae-epilepsy.org/ International League Against Epilepsy (ILAE)Top/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations International organization founded in 1909 to advance and disseminate knowledge about epilepsy, to promote research, education and training and to improve services and care for patients.
Other resource N23 Epilepsy Action Scotlandhttp://www.epilepsyscotland.org.uk/ Epilepsy Action ScotlandTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations Provides general information about epilepsy. Campaigns for more epilepsy services across Scotland and offers addresses of branches and support.
Other resource N24 BC Epilepsy Societyhttp://BCEPILEPSY.COM BC Epilepsy SocietyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations A non-profit organization dedicated to improving the lives of people living with epilepsy. Provides also books, videos pamphlets, magazines and other teaching materials.
Other resource N25 Epilepsy Association of Calgaryhttp://www.epilepsycalgary.com/ Epilepsy Association of CalgaryTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations A charitable, social Service agency established to address community, individual, and family needs related to epilepsy.
Other resource N26 Epilepsy Prince Edward Islandhttp://www.isn.net/epilepsy/ Epilepsy Prince Edward IslandTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations Provides information about the organization.
Other resource N27 Epilepsy Queenslandhttp://www.eqi.org.au/ Epilepsy QueenslandTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations Gives information about the organization, offers a discussion forum and a chat session.
Other resource N28 Charlie Foundationhttp://www.charliefoundation.org Charlie FoundationTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations The Foundation was established in 1994 in order to raise awareness about the ketogenic diet as a treatment for childhood epilepsy. The Foundation's role is to facilitate investigation, educate professionals, and inform families about the current status of the ketogenic diet.
Other resource N29 Manitoba Epilepsy Association Inc.http://www.manitobaepilepsy.org/ Manitoba Epilepsy Association Inc.Top/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations Provides peer counseling and information services to people with epilepsy and the parents of children with epilepsy.
Other resource N30 NYU Comprehensive Epilepsy Centerhttp://www.nyuepilepsy.org NYU Comprehensive Epilepsy CenterTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations Offers evaluation, treatment, and access to the most up-to-date research for children, adolescents, and adults with all forms of epilepsy.
Other resource N31 Epilepsy Care Group Singaporehttp://www.epilepsycare.org Epilepsy Care Group SingaporeTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations Volunteer-based organization addressing the needs of persons with epilepsy and their care-givers in Singapore.
Other resource N32 Epilepsy Association of Central Floridahttp://www.epilepsyassociation.org Epilepsy Association of Central FloridaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations Not-for-profit community based organization provides information and resources for adolescents and children with epilepsy, as well as support for family members.
Other resource N33 The National Centre for Young People with Epilepsy (NCYPE)http://www.ncype.org.uk/ The National Centre for Young People with Epilepsy (NCYPE)Top/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations Provides specialist services for young people with epilepsy in the UK. Information and advice about the condition and includes details of the National Assessment Centre, St Piers School, and their Further Education College.
Other resource N34 Walking for epilepsyhttp://web.telia.com/~u46118963/news/karlabrown.html Walking for epilepsyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations This site chronicles the journey of Karla Brown as she walks 9000 miles across America to raise people's awareness of epilepsy.
Other resource N35 Epilepsy Foundation of Greater North Texashttp://www.efgnt.org/ Epilepsy Foundation of Greater North TexasTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations/Epilepsy_Foundation_of_America Mission is to enrich, empower, educate and support persons with epilepsy and their families.
Other resource N36 Epilepsy Foundation of Long Islandhttp://www.efli.org/ Epilepsy Foundation of Long IslandTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations/Epilepsy_Foundation_of_America As part of the ongoing community education and outreach programs, the foundation seeks to communicate with all persons who have seizure disorders.
Other resource N37 Epilepsy Foundation of Northeast Ohiohttp://www.efneo.org/ Epilepsy Foundation of Northeast OhioTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations/Epilepsy_Foundation_of_America Our vision is that all people with epilepsy and seizure disorders will be accepted in our community and have a measurably improved quality of life.
Other resource N38 Epilepsy Foundation of Northeast Floridahttp://www.efnef.org/ Epilepsy Foundation of Northeast FloridaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations/Epilepsy_Foundation_of_America Serves people affected by seizure disorders through direct client services, education, advocacy and research support.
Other resource N39 Epilepsy Foundation of South Carolinahttp://www.midnet.sc.edu/epilepsyfoundation/ Epilepsy Foundation of South CarolinaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations/Epilepsy_Foundation_of_America Provide educational, vocational and outreach programs and services for persons with epilepsy and their families, share up-to-date information about epilepsy to the general public.
Other resource N40 Epilepsy Foundation of Western and Central Pennsylvaniahttp://www.efwp.org/ Epilepsy Foundation of Western and Central PennsylvaniaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations/Epilepsy_Foundation_of_America EFWCP is dedicated to providing programs and services for the prevention, control, and community understanding of epilepsy/seizure disorders.
Other resource N41 Epilepsy Foundation of New Jerseyhttp://www.efnj.com/ Epilepsy Foundation of New JerseyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations/Epilepsy_Foundation_of_America Dedicated to helping to improve the quality of life for people affected by epilepsy and their loved ones.
Other resource N42 Epilepsy Foundation of Arizonahttp://www.epilepsyfoundation.org/arizona/ Epilepsy Foundation of ArizonaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations/Epilepsy_Foundation_of_America Since 1971, the Epilepsy Foundation of Arizona has been responding to the needs of the more than 53,000 people in Arizona with epilepsy.
Other resource N43 Epilepsy Foundation of Delawarehttp://www.epilepsyfoundation.org/delaware/ Epilepsy Foundation of DelawareTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations/Epilepsy_Foundation_of_America A statewide, voluntary, nonprofit organization dedicated to enhancing the quality of life for individuals affected by epilepsy.
Other resource N44 Epilepsy Foundation of Southern New Yorkhttp://www.epiinfo.org/ Epilepsy Foundation of Southern New YorkTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations/Epilepsy_Foundation_of_America The EFSNY was formed in 1977 by a group of concerned people whose lives epilepsy had touched in some way.
Other resource N45 Epilepsy Foundation of South Central Wisconsinhttp://www.epilepsyfoundation.org/socentralwisc/ Epilepsy Foundation of South Central WisconsinTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations/Epilepsy_Foundation_of_America A voluntary, nonprofit organization dedicated to enhancing the quality of life for individuals affected by epilepsy.
Other resource N46 Epilepsy Foundation of Southeast Texashttp://www.epilepsyfoundation.org/setexas/ Epilepsy Foundation of Southeast TexasTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations/Epilepsy_Foundation_of_America Dedicated to improving the lives of children and adults with epilepsy by providing information, education, and support services.
Other resource N47 Epilepsy Foundation of North Carolinahttp://www.supportworks.org/info/efnc.htm Epilepsy Foundation of North CarolinaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations/Epilepsy_Foundation_of_America Offers a newsletter archive with questions and answers about epilepsy, informs about the meetings of a teen support group and a adult support group.
Other resource N48 Epilepsy Foundation of Rochester, Syracuse and Binghamtonhttp://www.epilepsyfoundation.org/ Epilepsy Foundation of Rochester, Syracuse and BinghamtonTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Organizations/Epilepsy_Foundation_of_America The agency that helps individuals and families affected by epilepsy and related neurological impairments by providing education, advocacy and services.
Other resource N49 [UNDERcurrents] Photosensitive Epilepsyhttp://www.tv.cbc.ca/undercurrents/epilepsy_special/harding.html [UNDERcurrents] Photosensitive EpilepsyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Photosensitive Article by Professor Graham Harding summarizing the causes and guidelines for prevention of photosensitive seizures.
Other resource N50 Photosensitive Epilepsyhttp://ds.dial.pipex.com/town/park/sk98/factsheet_04.htm Photosensitive EpilepsyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Photosensitive Factsheet from the Epilepsy Association of Scotland with advice on how to avoid seizures in various situations.
Other resource N51 The Effect of Television Frame Rate on EEG Abnormalities in Photosensitive and Pattern-sensitive Epilepsyhttp://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?form=6&db=m&Dopt=b&uid=9579959 The Effect of Television Frame Rate on EEG Abnormalities in Photosensitive and Pattern-sensitive EpilepsyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Photosensitive Abstract of article published in Epilepsia.
Other resource N52 How Computer Games Can Be Bad For Your Brainhttp://www.abc.net.au/rn/talks/8.30/helthrpt/hstories/hr161004.htm How Computer Games Can Be Bad For Your BrainTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Photosensitive Health Report interview with Dr. Graham Harding, an expert on photosensitive epilepsy.
Other resource N53 Growing Up With Epilepsyhttp://library.thinkquest.org/J001619 Growing Up With EpilepsyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Personal_Pages Two fifth grade students in NYC Public School 56 designed a site on epilepsy based on the personal experiences.
Other resource N54 Pyridoxine Dependency Storyhttp://www.angelfire.com/amiga2/jenniz Pyridoxine Dependency StoryTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Personal_Pages A genetic disorder which results in seizures and developmental delays. Personal account of a journey from the first seizure to diagnosis in twin boys.
Other resource N55 Broc Nathen Bartenhagenhttp://www.infantilespasms.com Broc Nathen BartenhagenTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Personal_Pages Devoted to the story of Broc Bartenhagen who was diagnosed with Infantile Spasms. It is a summary of the things he and his family have experienced as a result of this disorder.
Other resource N56 Epilepsy Healthhttp://www.epilepsyhealth.com/ Epilepsy HealthTop/Health/Conditions_and_Diseases/Neurological_Disorders/Epilepsy/Personal_Pages Author Sally Fletcher shares the complementary practices that have helped her remain seizure free for 18 years - without medication.
Other resource N57 Neuronal Migration Disordershttp://www.ninds.nih.gov/health_and_medical/disorders/neuronal_migration.htm Neuronal Migration DisordersTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
Other resource N58 NINDS: Encephaloceleshttp://www.ninds.nih.gov/health_and_medical/disorders/encephaloceles.htm NINDS: EncephalocelesTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
Other resource N59 Children with Spina Bifidahttp://www.waisman.wisc.edu/~rowley/sb-kids/index.htmlx Children with Spina BifidaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Spina_Bifida Features web resources and links for parents of children with spina bifida and health professionals.
Other resource N60 SANDI Projecthttp://ped1.med.uth.tmc.edu/spinabifida SANDI ProjectTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Spina_Bifida Information about a five year study of the causes and effects of spina bifida.
Other resource N61 NINDS Spina Bifida Information Pagehttp://www.ninds.nih.gov/health_and_medical/disorders/spina_bifida.htm NINDS Spina Bifida Information PageTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Spina_Bifida Information about Spina Bifida by NINDS, the National Institute of Neurological Disorders and Stroke.
Other resource N62 SBH Queenslandhttp://www.spinabifida.org SBH QueenslandTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Spina_Bifida/Organizations Community organization site with information on spina bifida, hydrocephalus, occulta, education.
Other resource N63 Spina Bifida and Hydrocephalus Association of Ontariohttp://www.sbhao.on.ca Spina Bifida and Hydrocephalus Association of OntarioTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Spina_Bifida/Organizations Information, resources, support.
Other resource N64 Spina Bifida Association of Texashttp://www.sbatx.org Spina Bifida Association of TexasTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Spina_Bifida/Organizations Promoting prevention, educating individuals, and by providing support and encouragement to families affected with Spina Bifida in Central and South Texas.
Other resource N65 Spina Bifida Association of Western Australiahttp://www.sbawa.asn.au Spina Bifida Association of Western AustraliaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Spina_Bifida/Organizations Information about an organization with the main aim is to provide support for individuals with spina bifida and their families.
Other resource N66 Spina Bidida of Cental Floridahttp://www.sbacf.org Spina Bidida of Cental FloridaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Spina_Bifida/Organizations Features an online store and information about the disease.
Other resource N67 Association for Spina Bifida and Hydrocephalushttp://www.surreyasbah.org.uk Association for Spina Bifida and HydrocephalusTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Spina_Bifida/Organizations The Association provides services and support to those who live in the Surrey area with spina bifida and/or hydrocephalus, their parents or other carers and professionals.
Other resource N68 Spina Bifida Centralhttp://groups.yahoo.com/group/spinabifidacentral/ Spina Bifida CentralTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Spina_Bifida/Chats_and_Forums Offers a message board and have scheduled chats, as well as information about the group and joining instructions.
Other resource N69 Ana's Pagehttp://www.geocities.com/auroracall/ Ana's PageTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Spina_Bifida/Personal_Pages Provides a personal look at Spina Bifida, fetal surgery, and growing up with the disease.
Other resource N70 Journey with Spina Bifidahttp://www.geocities.com/enchantedforest/cottage/1109 Journey with Spina BifidaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Spina_Bifida/Personal_Pages Includes information, photos, and personal experiences.
Other resource N71 Kristin Carrollhttp://www.kristin-carroll.com/site_index.html Kristin CarrollTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Spina_Bifida/Personal_Pages Site in memory of a woman with spina bifida.
Other resource N72 Charles Harper's Home Pagehttp://myweb.tiscali.co.uk/cpharper Charles Harper's Home PageTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Spina_Bifida/Personal_Pages Containins information and links to information and sites connected with the disabilities of Spina Bifida and Hydrocephalus and other allied or related conditions.
Other resource N73 The Life and Times of Robert M. Henselhttp://wheelierecord.tripod.com/ The Life and Times of Robert M. HenselTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Spina_Bifida/Personal_Pages Witness one man's ability to reach above his own limitations to prove that there are abilities in us all!
Other resource N74 NINDS Chiari Fact Sheethttp://www.ninds.nih.gov/patients/Disorder/CHIARI/chiari.HTM NINDS Chiari Fact SheetTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Chiari_Malformations National Institute of Neurological Disorders and Stroke fact sheet about Chiara Malformation.
Other resource N75 Chiari Malformation Clinichttp://tribble.missouri.edu/ns/chiari/ Chiari Malformation ClinicTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Chiari_Malformations Chiari Clinic at the University of Missouri Health Sciences Center treats Chiari I malformation, provides information and education, and conducts research on the care of persons with Chiari I malformation.
Other resource N76 NINDS: Chiari Malformationhttp://www.ninds.nih.gov/health_and_medical/disorders/chiari_doc.htm NINDS: Chiari MalformationTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Chiari_Malformations Arnold-Chiari malformation information page compiled by The National Institute of Neurological Disorders and Stroke.
Other resource N77 Chiari and Syringomyelia Newshttp://www.chiari-syringo-news.com Chiari and Syringomyelia NewsTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Chiari_Malformations An on-line publication bringing the latest news, information, and research updates to the Chiari and syringomyelia community.
Other resource N78 Anencephaly Awarenesshttp://www.angelfire.com/mb/jessicasjourney/info.html Anencephaly AwarenessTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Anencephaly Information about anencephaly, such as possible causes and future prevention.
Other resource N79 Health Link MCWhttp://www.healthlink.mcw.edu/article/921383913.html Health Link MCWTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Anencephaly Provides an article about Anencephaly.
Other resource N80 Moral Principles Concerning Infants With Anencephalyhttp://www.ewtn.com/library/PROLIFE/bcdanen1.htm Moral Principles Concerning Infants With AnencephalyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Congenital_Anomalies/Anencephaly What the Committee on Doctrine National Conference of Catholic Bishops (U.S.) has to say about anencephaly.

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