site URL - http://groups.msn.com/DMDTransitions
Site description: Support and information helpful to the daily care of those with Duchenne Muscular Dystrophy, focusing on the transition from walking to adulthood (approx. ages 10-18) and adaptations parents find helpful. Those affected by DMD and BMD are welcome.
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| LINK | URI & TITLE | DESCRIPTION & TOPIC | |
| Previous 10 | Muscle Disease | http://health.groups.yahoo.com/group/muscledisease/ Muscle Disease | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Mailing_Lists Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identifed neuromuscular diseases. |
| Previous | The Muscular Dystrophy Forum | http://health.groups.yahoo.com/group/The_Muscular_Dystrophy_Forum/ The Muscular Dystrophy Forum | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Mailing_Lists An online support group for people affected by any neuromuscular condition. |
| Random 1 | Ardani Artists Russian Ballet Company | http://ardani.com Ardani Artists Russian Ballet Company | Top/Arts/Performing_Arts/Dance/Ballet/Companies/Europe/Russia This site is about performing arts program presented by Ardani Artists including Eifman Ballet of St. Petersburg, Red Giselle, Tchaikovsky, The Karamazovs, Requiem, My Jerusalem, Russian Hamlet, choreography by Boris Eifman, music set by Tchaikovsky, Rachmaninov, Schnittke, Bizet, Musorgsky. Sergei Danilian, the president. |
| Random 2 | Turkish health minister warns against Pokemon cartoon | http://cnn.com/2000/WORLD/meast/11/25/turkey.pokemon.ap/index.html Turkish health minister warns against Pokemon cartoon | Top/News/Online_Archives/CNN.com/2000/November/World/Meast [CNN] |
| Random 3 | Jeffrey B Kramer, CPA, PA | http://www.jbkcpa.com/ Jeffrey B Kramer, CPA, PA | Top/Business/Healthcare/Consulting/J Offers consulting services to physicians and healthcare institutions, including accounting, audits, mergers and acquisitions, litigation support, and financial planning. |
| Random 4 | Allwatchers Review - South Park: Bigger, Longer, and Uncut | http://www.allwatchers.com/Topics/Info_5838.asp Allwatchers Review - South Park: Bigger, Longer, and Uncut | Top/Arts/Animation/Movies/Titles/South_Park_-_Bigger,_Longer_and_Uncut Analytical review of the plot, setting, theme, and structure of the Trey Parker and Matt Stone film, and links to similar movies. |
| Random 5 | Pedsdermatlas | http://www.med.jhu.edu/peds/dermatlas Pedsdermatlas | Top/Health/Conditions_and_Diseases/Skin_Disorders Dermatology images for viewing by health care professionals, parents, and patients. Includes an online quiz that allows trainees to test their diagnostic skills. |
| Next | Fight for a Future | http://groups.msn.com/FightforaFuture Fight for a Future | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Mailing_Lists Group for friends and family of those with Duchenne and Becker Muscular Dystrophy, seeking a treatment for slowing down or stopping those diseases. |
| Next 10 | Jeff Grey | http://members.tripod.com/~Nivusers/Infob/Myinfo.html Jeff Grey | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Personal_Pages Jeff's experiences with Duchenne Muscular Dystrophy, especially medical and equipment issues including non-invasive ventilators. |
| Random 1 | Quetzales Mexican Dance Ensemble | http://www.quetzales.org Quetzales Mexican Dance Ensemble | Top/Arts/Performing_Arts/Dance/Folk_Dancing/Mexican Northern Virginia Mexican Folkloric performing company dedicated to preserving, researching, teaching and promoting Mexican folkloric traditions and culture through art, music and dance. |
| Random 4 | Press Ganey Associates, Inc | http://www.pressganey.com Press Ganey Associates, Inc | Top/Business/Healthcare/Consulting/P Provides patient satisfaction surveys, management reports, and national comparative databases for the integrated health care delivery system. |
| Random 4 | Impact on HIV | http://www.fhi.org/en/aids/impact/iohiv/ioh11/index.html Impact on HIV | Top/Health/Conditions_and_Diseases/Immune_Disorders/Immune_Deficiency/AIDS/Publications A semiannual magazine about HIV/AIDS prevention and care, from Family Health International. |
| Next 70 | Reflex Sympathetic Dystrophy Syndrome | http://www.ninds.nih.gov/health_and_medical/disorders/reflex_sympathetic_dystrophy.htm Reflex Sympathetic Dystrophy Syndrome | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Reflex_Sympathetic_Dystrophy Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
| Previous 70 | Northwestern University Neuromuscular Disorder Program | http://www.neurogenetics.northwestern.edu Northwestern University Neuromuscular Disorder Program | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases Information for patients, professionals, and researchers about the program, affiliated clinics, neuromuscular diseases and research studies at Northwestern University Medical School. |
| Next 170 | Soft Tissue - Congenital Muscular Torticollis | http://www.chiroweb.com/archives/12/26/21.html Soft Tissue - Congenital Muscular Torticollis | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Movement_Disorders/Torticollis A review of medical literature by Warren Hammer, MS, DC, DABCO. |
| Previous 170 | Parkinson's Disease Discussion Forum | http://parkinson.ca/board/index.html Parkinson's Disease Discussion Forum | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Support_Groups Created by the Parkinson Foundation of Canada, this discussion forum provides facility for exchanges of ideas, mutual support and opinions on Parkinson's disease. |
| Next 270 | |||
| Previous 270 | The Many Faces of Creutzfeldt Jakob Disease (CJD) | http://www.fortunecity.com/healthclub/cpr/798/cjd.htm The Many Faces of Creutzfeldt Jakob Disease (CJD) | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Infections/Creutzfeldt_Jakob_Disease Factsheet, latest news and families'/CJD victims' personal stories and tributes. |
| Other resource N0 | Creutzfeldt Jakob Disease Factsheet | http://www.kansas.net/~cbaslock/cjd1.html Creutzfeldt Jakob Disease Factsheet | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Infections/Creutzfeldt_Jakob_Disease Description of CJD, who gets it, symptoms, CJD and the internet, plus a resource list. |
| Other resource N1 | Well Within | http://www.nccn.net/~wwithin/bse.htm Well Within | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Infections/Creutzfeldt_Jakob_Disease Bovine Spongiform Encephalopathy (BSE) and CJD; possible contamination of meat, blood products, certain hormones, organs for transplant. Links to relevant information. |
| Other resource N2 | The Mad Cow Calculator | http://www.doctorzebra.com/madcow/index.html The Mad Cow Calculator | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Infections/Creutzfeldt_Jakob_Disease Calculates whether eating beef will more likely give you a heart attack or Mad Cow disease. |
| Other resource N3 | MedlinePlus: Creutzfeldt-Jakob Disease | http://www.nlm.nih.gov/medlineplus/creutzfeldtjakobdisease.html MedlinePlus: Creutzfeldt-Jakob Disease | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Infections/Creutzfeldt_Jakob_Disease Directory of news, articles, and factsheets. |
| Other resource N4 | Mad Cow Disease (CJD) | http://www.organicconsumers.org/madcow.htm Mad Cow Disease (CJD) | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Infections/Creutzfeldt_Jakob_Disease Information from the Organic Consumers' Association related to mad cow/deer/pig/elk disease in the USA. |
| Other resource N5 | TSE: Transmissible Spongiform Encephalopathies | http://www.ourcivilisation.com/madcow/tse.htm TSE: Transmissible Spongiform Encephalopathies | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Infections/Creutzfeldt_Jakob_Disease An explanation of the spread of Spongiform Ecephalopathies - TSE including the new variant Creutzfeldt Jakob (vCJD). |
| Other resource N6 | Australian CJD Support Group Network Inc - CJDSGNI | http://www.cjdsupport.org.au/ Australian CJD Support Group Network Inc - CJDSGNI | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Infections/Creutzfeldt_Jakob_Disease/Support_Groups Support for people in Australia affected by CJD. |
| Other resource N7 | Human BSE Foundation | http://www.hbsef.org Human BSE Foundation | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Infections/Creutzfeldt_Jakob_Disease/Support_Groups Aims to help relatives friends and carers of victims of Creutzfeldt Jakob Disease by providing support. |
| Other resource N8 | NINDS: Transverse Myelitis | http://www.ninds.nih.gov/health_and_medical/disorders/transversemyelitis_doc.htm NINDS: Transverse Myelitis | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Infections/Myelitis Information sheet compiled by the National Institute of Neurological Disorders and Stroke. |
| Other resource N9 | Virtual Hospital | http://www.vh.org/Providers/TeachingFiles/CNSInfDisR2/Text/PInf.VSSP.html Virtual Hospital | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Infections/Subacute_Sclerosing_Panencephalitis An article about subacute sclerosing panencephalitis written by Gary Baumbach, M.D. |
| Other resource N10 | L'Oiseau Bleu | http://www.oiseaubleu.org/ L'Oiseau Bleu | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Infections/Subacute_Sclerosing_Panencephalitis A French association for parents and other carers of children struck by Subacute Sclerosing Panencephalitis (SSPE). |
| Other resource N11 | Flagstaff's Clyde Tombaugh house, and Steve Schoner's story. | http://www.geocities.com/steve_schoner/index.htm Flagstaff's Clyde Tombaugh house, and Steve Schoner's story. | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Infections/Encephalomyelitis A detailed story regarding the moving of Flagstaff's Clyde Tombaugh house, and the ramifications of such to Steve Schoner who contracted acute diseminating encepalomylitis as a result. |
| Other resource N12 | Spinal Injuries Association | http://www.spinal.co.uk Spinal Injuries Association | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Spinal_Cord Offers a Spinal Chat Room, a Bulletin Board and factsheets for people with spinal injuries, paraplegics, tetraplegics, wheelchair users and walkers. |
| Other resource N13 | Apparelyzed | http://www.apparelyzed.com Apparelyzed | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Spinal_Cord Offers discussion forums, information on the latest research findings, and a list of recent news items about the subject. Includes explanations of the relevant anatomy and mechanism of injury. |
| Other resource N14 | CHORUS Notecard Document | http://chorus.rad.mcw.edu/doc/00790.html CHORUS Notecard Document | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Spinal_Cord/Compression Signs, symptoms and diagnostic considerations of acute spinal cord compression, |
| Other resource N15 | Marinesco-Sjogren Syndrome | http://www.marinesco-sjogren.org Marinesco-Sjogren Syndrome | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Spinal_Cord/Spinocerebellar_Degenerations Information and a support group for families affected with this syndrome, a rare genetic disorder characterized by ataxia, cataracts, very small stature, and mental retardation. |
| Other resource N16 | NINDS Friedreich's Ataxia | http://www.ninds.nih.gov/health_and_medical/disorders/friedreichs_ataxia.htm NINDS Friedreich's Ataxia | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Spinal_Cord/Spinocerebellar_Degenerations/Friedreich's_Ataxia An information sheet the National Institute of Neurological Disorders and Stroke . |
| Other resource N17 | MedTerms: Medical Dictionary | http://www.medterms.com/script/main/art.asp?articlekey=4558 MedTerms: Medical Dictionary | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Spinal_Cord/Tabes_Dorsalis A definition of Neurosyphilis, tabes: also known as tabes dorsalis. |
| Other resource N18 | Mamas Health | http://www.mamashealth.com/park.asp Mamas Health | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Learn about Parkinson's Disease, what causes it, how to prevent it and statistics about it. |
| Other resource N19 | Caregiver Information | http://www.parkinsons-care.com/ Caregiver Information | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Sponsored by the National Parkinson Foundation. Primarily for care givers to people with this disease. Includes a discussion forum. A detailed look at the early and advanced stages of this disease. |
| Other resource N20 | Parkinson's Information | http://www.parkinsonsinfo.com/ Parkinson's Information | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Details about PD, FAQs and tips for daily living. A directory of resources available. Discusses the drug Eldepryl (generic selegiline) as it is used for this disease. Sponsored by Somerset Pharmaceuticals |
| Other resource N21 | NeurologyChannel: Parkinson's Disease | http://www.neurologychannel.com/parkinsonsdisease/ NeurologyChannel: Parkinson's Disease | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Information on diagnosis and treatment from board-certified physicians. |
| Other resource N22 | Wake Forest University School of Medicine | http://www.wfubmc.edu/surg-sci/ns/pd.html Wake Forest University School of Medicine | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Links to information about Parkinson's disease emphasizing surgical treatments such as pallidotomy and deep brain stimulators. |
| Other resource N23 | National Institute of Neurological Disorders and Stroke | http://www.ninds.nih.gov/health_and_medical/disorders/parkinsons_disease.htm National Institute of Neurological Disorders and Stroke | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Parkinson's disease information sheet. |
| Other resource N24 | PD Index | http://www.pdindex.org/ PD Index | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease A directory of Parkinson's disease information on the Internet. |
| Other resource N25 | InteliHealth: Parkinson's Disease | http://www.intelihealth.com/IH/ihtIH/WSIHW000/8321/8321.html InteliHealth: Parkinson's Disease | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Featuring Harvard Medical Schools consumer health information. An in depth look at this disorder from an introduction through to research being done. |
| Other resource N26 | MyParkinsons.com | http://www.myparkinsons.com MyParkinsons.com | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease A site that has tips and suggestions for people living with Parkinson's disease, with an online community. Free registration required. |
| Other resource N27 | WebMD Health | http://my.webmd.com/medical_information/condition_centers/parkinsons/default.htm WebMD Health | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease A consumer health site for Parkinson's Disease. Includes a caregiver section. |
| Other resource N28 | Living Alone With Parkinson's Disease | http://www.livingalonewithparkinsons.com Living Alone With Parkinson's Disease | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Information, tips, foods, exercises, aids and attitudes learned during living alone with PD for 19 years. |
| Other resource N29 | Study of Anti Depressants in Parkinson's Disease | http://www.urmc.rochester.edu/sadpd/ Study of Anti Depressants in Parkinson's Disease | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease A National Institute of Health research study of anti-depressant medication in patients with PD, conducted at several medical centers throughout the United States and Canada by the University of Rochester. |
| Other resource N30 | PD Hangout | http://www.pdhangout.com PD Hangout | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease A personal page offering information and support for people with neurodegenerative diseases. Included diseases are Parkinson's disease, chiari malformation, and sjogren's syndrome. |
| Other resource N31 | Parkinson's Information Exchange Network Online | http://www.parkinsons-information-exchange-network-online.com/parkmail/maillist.html Parkinson's Information Exchange Network Online | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Support_Groups Provides web access to the 500-most-recent messages from the PARKINSN listserv mailing list. Topics of interest to patients, caregivers, doctors and students are discussed. |
| Other resource N32 | CARE - for CareGivers of people with Parkinson's | http://www.geocities.com/pdcaregiver/ CARE - for CareGivers of people with Parkinson's | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Support_Groups CARE (Caregivers Are Really Essential) is a ListServ where CareGivers can "let off steam" in a place where they will not upset the people with parkinson's for whom they care. |
| Other resource N33 | The Parkinson's Support Center of Kentuckiana | http://www.pscky.org/ The Parkinson's Support Center of Kentuckiana | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Support_Groups Information regarding Parkinson's disease support group meetings in the Northern Kentucky/Southern Indiana areas. |
| Other resource N34 | No Borders for Parkinson Disease | http://groups.yahoo.com/group/nobordersforparkinsondisease No Borders for Parkinson Disease | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Support_Groups A Yahoo! Group for those concerned and interested by the disease of Parkinson. |
| Other resource N35 | The Center for Neurologic Study | http://www.cnsonline.org/ The Center for Neurologic Study | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations CNS is a non profit foundation in La Jolla, California, dedicated to research and treatment of neurological diseases. Parkinson's disease information is in the archives. |
| Other resource N36 | Michael J. Fox Foundation | http://www.michaeljfox.org/ Michael J. Fox Foundation | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations The Michael J. Fox Foundation (MJFF) for Parkinson's Research is dedicated to ensuring the development of a cure for Parkinson's disease within this decade through an aggressively funded research agenda. |
| Other resource N37 | Parkinson's Disease Foundation, Inc. | http://www.pdf.org/ Parkinson's Disease Foundation, Inc. | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations The Parkinson's Disease Foundation (PDF) is a national non-profit organization devoted to education, advocacy, and the funding of research. |
| Other resource N38 | Parkinson's Action Network | http://www.parkinsonsaction.org Parkinson's Action Network | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations PANs primary mission since its founding in 1991 has been to provide an informed, organized, and effective voice in public policy issues affecting the search for a cure for Parkinson's disease. |
| Other resource N39 | Young Parkinson's Information and Referral Center | http://members.aol.com/apdaypd/young/index.html Young Parkinson's Information and Referral Center | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations Information for those diagnosed with this disease under the age of 50. Includes newsletters, PDKids e-mail list, Person-to-Person program, and listings of USA and international support groups. APDA affiliated. |
| Other resource N40 | The Adrienne Coles Memorial Trust | http://www.coles.org.uk/ The Adrienne Coles Memorial Trust | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations A private trust dedicated to Parkinson's Disease information on The Internet. Information about ACMT and current projects, as well as our future plans and how you can help. |
| Other resource N41 | Parkinson's Resources of Oregon | http://www.parkinsonsresources.org Parkinson's Resources of Oregon | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations Provides education, support groups, telephone support, lending library for books and videos, newsletter, exercise program and information on resources available in Oregon and Southern Washington state. |
| Other resource N42 | Parkinson's Disease Foundation Of India | http://www.parkinsonsdiseaseindia.com/index1.htm Parkinson's Disease Foundation Of India | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations A registered charitable trust. Includes basic information on PD, newsletter, and patient support groups. |
| Other resource N43 | Parkinson's Disease Research, Education and Clinical Center | http://www.va.gov/padrecc/ Parkinson's Disease Research, Education and Clinical Center | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations Parkinson's Disease Research, Education and Clinical centers provide specialized treatment for veterans with Parkinson's disease. They are located at 6 VA Medical Centers in the United States: Houston, Philadelphia, Richmond, Portland, San Francisco, and West Los Angeles. |
| Other resource N44 | Worldwide Education and Awareness for Movement Disorders | http://www.wemove.org/ Worldwide Education and Awareness for Movement Disorders | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations Resource for movement disorder information, including Parkinson's Disease, and disorder activities on the internet. |
| Other resource N45 | Cures Now | http://www.curesnow.org/ Cures Now | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations A non-profit organization devoted to the advancement of ethical scientific research in the advancement of regenerative medicine. Endorses the use of embryonic stem cells and somatic cell nuclear trasfer (also known as therapeutic cloning) while opposing cloning. |
| Other resource N46 | StemCellAction.org | http://www.stemcellaction.org/ StemCellAction.org | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations An organization committed to the idea that energetic support of stem cell research by the Federal (US) government is essential to restore to health the lives of so many Americans stricken by devastating diseases. To achieve results for the future, we must act now. Show support by submitting your own Portrait of Hope. |
| Other resource N47 | Tri-state Parkinson's Wellness Chapter | http://www.parkinsonswellness.org Tri-state Parkinson's Wellness Chapter | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations Focus is to promote the education and wellness for those who have Parkinson's disease. Serving Ohio, Kentucky, Indiana, and the lower peninsula of Michigan. |
| Other resource N48 | World Parkinson Congress | http://www.worldpdcongress.org World Parkinson Congress | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations A nonprofit organization dedicated to providing an international forum for the best scientific discoveries, medical practices and caregiver initiatives related to Parkinson's disease. |
| Other resource N49 | International Neurotoxicology Association - Main Page | http://www.neurotoxicology.org/ International Neurotoxicology Association - Main Page | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Neurotoxicity_Syndromes The International Neurotoxicolgy Association |
| Other resource N50 | International Huntington Association | http://www.huntington-assoc.com/ International Huntington Association | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Federation of national voluntary health agencies. |
| Other resource N51 | Huntington's Disease Society of America | http://www.hdsa.org Huntington's Disease Society of America | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Research, assistance, and education. |
| Other resource N52 | Tony's Family Site | http://www.bridger.freeuk.com Tony's Family Site | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease A personal website detailing how Huntington's disease has affected Tony's family and friends. |
| Other resource N53 | HDSA, Arizona Chapter | http://www.hdsa-az.org HDSA, Arizona Chapter | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Contains general information about Huntington's disease and specific information about this chapter's fund raisers and events. |
| Other resource N54 | Nutrition for People with Huntington's Disease | http://www.lib.uchicago.edu/~rd13/hd/nutritn.html Nutrition for People with Huntington's Disease | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Nutritional information, and resource links on aspects of nutritional care for people with Huntington's disease. |
| Other resource N55 | Healthubs | http://www.healthubs.com/huntingtons Healthubs | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Links to overviews, clinical trials, case reports, diagnosis, treatment, research programs on Huntington's disease. |
| Other resource N56 | The Huntington's Disease Lighthouse | http://hdlighthouse.org/ The Huntington's Disease Lighthouse | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Current information on treatments, drugs, support and patient resources. |
| Other resource N57 | Australian Huntington's Disease Association (Qld) Inc. | http://www.qahda.com/ Australian Huntington's Disease Association (Qld) Inc. | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Gives disease information, services available in Queensland Australia and links. |
| Other resource N58 | Australian Huntington Disease Association (Vic) | http://www.ahda.com.au Australian Huntington Disease Association (Vic) | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Information about Huntington Disease and HD support services available in Victoria. |
| Other resource N59 | Huntington's Disease Blog | http://www.huntingtons.info Huntington's Disease Blog | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Weblog with the latest information on research and news. |
| Other resource N60 | Huntington's Disease Webring | http://r.webring.com/hub?ring=huntingtons Huntington's Disease Webring | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease/Support_Groups Links to support related to Huntington's disease. |
| Other resource N61 | NORD: Alternating Hemiplegia of Childhood | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Alternating%20Hemiplegia%20of%20Childhood NORD: Alternating Hemiplegia of Childhood | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Alternating_Hemiplegia Offers alternative names, a general discussion and further resources. |
| Other resource N62 | National Institute of Neurological Disorders and Stroke | http://www.ninds.nih.gov/health_and_medical/disorders/opsomyo_doc.htm National Institute of Neurological Disorders and Stroke | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases Also called kinsbourne syndrome, myoclonic encephalopathy of Infants, or dancing eyes-dancing feet syndrome, an information sheet compiled by NINDS. |
| Other resource N63 | Strength-L | http://strength-l.mankins.us/ Strength-L | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases An internet discussion list dedicated to people who have a form of neuromuscular disease. Information about the group, subscribing instructions and browse the archives. |
| Other resource N64 | Northwestern University Neuromuscular Disorder Program | http://www.neurogenetics.northwestern.edu Northwestern University Neuromuscular Disorder Program | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases Information for patients, professionals, and researchers about the program, affiliated clinics, neuromuscular diseases and research studies at Northwestern University Medical School. |
| Other resource N65 | Neuromuscular Home Page | http://www.neuro.wustl.edu/neuromuscular/ Neuromuscular Home Page | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Myopathies Comprehensive professional resource at Washington University School of Medicine |
| Other resource N66 | Rhabdomyolysis | http://members.tripod.com/~baggas/rhabdo.html Rhabdomyolysis | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Myopathies Comprehensive information about the medical condition rhabdomyolysis, complete with tables, pictures, and diagrams. |
| Other resource N67 | Periodic Paralyses | http://www.ninds.nih.gov/health_and_medical/disorders/periodic_doc.htm Periodic Paralyses | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Myopathies Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
| Other resource N68 | Familial Desminopathy | http://www.desminopathy.plus.com Familial Desminopathy | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Myopathies Desmin related myopathy is a disorder characterized by accumulation of desmin in the muscle cells. It can be dominantly inherited or occur spontaneously, its effects can range from mild to severe. |
| Other resource N69 | Becker Muscular Dystrophy Information Exchange | http://www.beckermusculardystrophy.org Becker Muscular Dystrophy Information Exchange | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease. |
| Other resource N70 | NINDS Muscular Dystrophy Information Page | http://www.ninds.nih.gov/health_and_medical/disorders/md.htm NINDS Muscular Dystrophy Information Page | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). |
| Other resource N71 | Duchennes | http://www.ducennes.addr.com/ Duchennes | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies Provides links to medical and non-medical organizations and people with Duchennes problems. |
| Other resource N72 | FSH Friends | http://www.infowest.com/personal/a/alan/FSH/Friends2/ FSH Friends | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies This site is a resource for individuals and families interested in Facioscapulohumeral Muscular Dystrophy. |
| Other resource N73 | Muscular Dystrophy Campaign | http://www.see-search.com/musculardystrophycampaign.htm Muscular Dystrophy Campaign | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK. |
| Other resource N74 | Duchenne/Becker Muscular Dystrophy | http://www.ygyh.org/dmd/ Duchenne/Becker Muscular Dystrophy | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies Section of Your Genes, Your Health Website focusing on Duchenne and Becker Muscular Dystrophy. Includes key facts and animated slide shows of causes, diagnosis and treatment of Duchenne & Becker Muscular Dystrophy. |
| Other resource N75 | DMD Information | http://www.angelfire.com/band/teja/index_dmd.html DMD Information | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options. |
| Other resource N76 | Muscular Dystrophy Association (USA) | http://www.mdausa.org/ Muscular Dystrophy Association (USA) | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations Voluntary health agency providing information and supporting research into neuromuscular diseases, including Muscular Dystrophy. The MDA site contains information about many forms of muscular dystrophy, including lists of ongoing clinical trials, an "Ask the Experts" feature, and research updates. |
| Other resource N77 | Facioscapulohumeral Muscular Dystrophy Society | http://www.fshsociety.org Facioscapulohumeral Muscular Dystrophy Society | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations The FSH Society address issues and needs related to FacioScapuloHumeral Muscular Dystrophy (FSHD). |
| Other resource N78 | Parent Project UK | http://www.ppuk.org Parent Project UK | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations Parent Project UK is a charity set up by parents and supporters of boys with Duchenne and Becker Muscular Dystrophy that promotes research to find a cure or viable treatments. |
| Other resource N79 | Society for Muscular Dystrophy Information International | http://users.auracom.com/smdi/ Society for Muscular Dystrophy Information International | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations Features organization background, disease information, newsletters, membership information, resources, and contact details. |
| Other resource N80 | Muscular Dystrophy Association (South Australia) | http://www.mdasa.org.au/ Muscular Dystrophy Association (South Australia) | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations The Muscular Dystrophy Association of South Australia provides a range of individually designed support services for all persons with muscular dystrophy and neuromuscular disorders, their families and their carer/support provider, including therapy, information, equipment loan and counselling. |