Families of Spinal Muscular Atrophy Canada

site URL - http://www.fsma.org/canada/

Site description: Canadian charity supports research into a cure for SMA.




Topic: Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Spinal_Muscular_Atrophy

LINKURI & TITLEDESCRIPTION & TOPIC
Previous 10Prevention of Pulmonary Morbidity for Patients With Duchenne Muscular Dystrophyhttp://www.chestjournal.org/cgi/reprint/112/4/1024.pdf Prevention of Pulmonary Morbidity for Patients With Duchenne Muscular DystrophyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Articles Study evaluating the effects of a new respiratory management protocol on respiratory morbidity and hospitalization rates for patients with Duchenne muscular dystrophy (DMD).
PreviousTori's Buddieshttp://www.fightsma.ca/ Tori's BuddiesTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Spinal_Muscular_Atrophy Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
Random 1TomAdroithttp://www.seattlesatellite.com/tom/ TomAdroitTop/Arts/Animation/Web/Amateur A catalogue of animated cartoons, live action and concept photos.
Random 2Cable Maestro International Inc.http://www.cablemaestro.com.tw/ Cable Maestro International Inc.Top/Business/Industrial_Goods_and_Services/Cable_and_Wire/Assemblies Manufacturer of a wide range of cable assemblies including USB cable, PC cable, medical grade and flat cable.
Random 3Juno Incorporatedhttp://www.junoinc.com Juno IncorporatedTop/Business/Industrial_Goods_and_Services/Casting,_Molding,_Machining Provides plastic injection molding, metal forming, metal stamping, and prototyping services. Industries served include medical, dental, electrical, power tools, and telecommunications.
Random 4United States Public Health Servicehttp://www.hhs.gov/pharmacy/pp/DHHSpresent/ United States Public Health ServiceTop/Health/Public_Health_and_Safety Listing of the agencies and programs from the U.S.A. Department of Health and Human Services.
Random 5Ophthalmic Jobshttp://www.optometry.com./jobs/index.php Ophthalmic JobsTop/Business/Healthcare/Employment/Job_Search Available jobs for the eye care industry including opticians, optometrists, ophthalmologists and office staff.
NextEmily's Walk for Lifehttp://www.emilyswalkforlife.com Emily's Walk for LifeTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Spinal_Muscular_Atrophy Information about an annual walk to raise money to find a cure for spinal muscular atrophy. Learn about SMA and read Emily's story.
Next 10Reflex Sympathetic Dystrophy Association of Americahttp://www.rsds.org/ Reflex Sympathetic Dystrophy Association of AmericaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Reflex_Sympathetic_Dystrophy Information site. Promotes great awareness for Reflex Sympathetic Dystrophy. Includes video, news clips and links.
Random 1Strange Fruit Australia's Masters of Performancehttp://www.strangefruit.net.au Strange Fruit Australia's Masters of PerformanceTop/Arts/Performing_Arts/Circus/Performers/Variety_Acts The Australian aerial outdoor dance company, performing on top of their unique 4.5m high flexible poles.
Random 4SoapMeisterhttp://www.soapmeister.com SoapMeisterTop/Shopping/Health/Beauty/Bath_and_Body/Soap/Handmade Old world salts and soaps.
Random 4Texas Back Institutehttp://www.texasback.com/ Texas Back InstituteTop/Regional/North_America/United_States/Texas/Health Chiropractors, physiatrists, and spine surgeons, as well as physicians who specialize in occupational and sports medicine. Offices in Plano, Hurst, Mesquite, and Midland-Odessa, Texas.
Next 70Wake Forest Movement Disorders Unithttp://www.wfubmc.edu/surg-sci/ns/mdu.html Wake Forest Movement Disorders UnitTop/Health/Conditions_and_Diseases/Neurological_Disorders/Movement_Disorders Information about treatment of movement disorders at Wake Forest Movement Disorders Unit.
Previous 70Cell Therapy Research Foundationhttp://www.celltherapy.com/ Cell Therapy Research FoundationTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations Not-for-profit medical research foundation working to find a treatment for muscular dystrophy and other genetic diseases through cell/gene therapy. Site describes treatments and clinical trials.
Next 170Chorus: Progressive Supranuclear Palsyhttp://chorus.rad.mcw.edu/doc/02040.html Chorus: Progressive Supranuclear PalsyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Movement_Disorders/Progressive_Supranuclear_Palsy A short notecard document about progressive supranuclear palsy (Steele-Richardson-Olszewski syndome).
Previous 170Parkinson's Disease Societyhttp://www.parkinsons.org.uk Parkinson's Disease SocietyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations Support, advice and information to people with Parkinson's in the UK, their carers, families and friends. Also provides assistance to health and social services professionals involved in management and care.
Next 270
Previous 270L'Oiseau Bleuhttp://www.oiseaubleu.org/ L'Oiseau BleuTop/Health/Conditions_and_Diseases/Neurological_Disorders/Infections/Subacute_Sclerosing_Panencephalitis A French association for parents and other carers of children struck by Subacute Sclerosing Panencephalitis (SSPE).
Other resource N0 Quad's Unitedhttp://quadsunite.faithweb.com/frameset.html Quad's UnitedTop/Health/Conditions_and_Diseases/Neurological_Disorders/Spinal_Cord Offers a support system for spinal cord injured, family and friends. Provides SCI resources, information, message board and chat.
Other resource N1 Yahoo Healthhttp://health.yahoo.com/health/dc/001416/0.html Yahoo HealthTop/Health/Conditions_and_Diseases/Neurological_Disorders/Spinal_Cord/Epidural_Abscess A detailed look at epidural abscess including treatment, causes, incidence, risk factors, symptoms, prevention and testing.
Other resource N2 OncoLink FAQshttp://www.oncolink.com/experts/article.cfm?c=1&s=5&ss=6&id=1062 OncoLink FAQsTop/Health/Conditions_and_Diseases/Neurological_Disorders/Spinal_Cord/Compression A reader has a question about the causes and treatment of spinal cord compression.
Other resource N3 Living Life with Ataxiahttp://cajunheart.tripod.com/ Living Life with AtaxiaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Spinal_Cord/Spinocerebellar_Degenerations/Friedreich's_Ataxia An informative site about living a positive life in spite of having a progressive hereditary neurological disease called Friedreich's Ataxia.
Other resource N4 Friedreich's Ataxia and Ihttp://www.ohbother.co.uk/ataxia.htm Friedreich's Ataxia and ITop/Health/Conditions_and_Diseases/Neurological_Disorders/Spinal_Cord/Spinocerebellar_Degenerations/Friedreich's_Ataxia The author was diagnosed with Friedreich's Ataxia when eight years old. Read about the trials and triumphs.
Other resource N5 The Greenes of Western Australiahttp://members.networx.net.au/~dennisg/ The Greenes of Western AustraliaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Detailed information about this disease by Dennis Greene, a member of the Parkinson's Information Exchange Network. He has included some of his poetry and a look at the family history is also provided.
Other resource N6 James, A Site about Parkinson's Diseasehttp://james.parkinsons.org.uk/ James, A Site about Parkinson's DiseaseTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Extensive information about this disease as well as where to go for support and what you can do to fight the effects. Some internet resources as well as general information. It is a project of the Adrienne Coles Memorial Trust.
Other resource N7 Medtronic.comhttp://www.medtronic.com/neuro/ Medtronic.comTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Surgical treatment of Parkinson's, tremors and other movement disorders.
Other resource N8 Parkinson's Diseasehttp://angelfire.com/oh2/fountainofyouth/parkinsons.html Parkinson's DiseaseTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease PD is a degenerative central nervous system (CNS) disorder. A discussion about the disorder, the symptoms and treatments of this disease.
Other resource N9 International Health Newshttp://www.yourhealthbase.com/parkinsons.html International Health NewsTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Comprehensive review of the latest research into parkinson's disease with emphasis on prevention and complementary and alternative treatments.
Other resource N10 Martin's Web Sitehttp://www.martinpurchase.org.uk Martin's Web SiteTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease A personal story with links to information about parkinson's disease and other health related issues.
Other resource N11 NYU Medical Center Department of Neurosurgeryhttp://mcns10.med.nyu.edu/CMD/pdstages.html NYU Medical Center Department of NeurosurgeryTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Hoehn and Yahr staging of Parkinson's disease with brief points on each.
Other resource N12 The Kitchawan Parkinson's Sitehttp://www.bestweb.net/~snarf/ The Kitchawan Parkinson's SiteTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Non-profit and dedicated to helping raise awareness, including information on PD and its treatment.
Other resource N13 Parkinson's Unity Walkhttp://www.unitywalk.org/ Parkinson's Unity WalkTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Annual event in New York City's Central Park, to increase awareness of PD and to raise funds for research. Register online to participate or support a walker.
Other resource N14 Parkinson's Disease Controlhttp://www.parkinsonscontrol.com/ Parkinson's Disease ControlTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease A Parkinson's disease resource that offers articles and webcasts on how to effectively treat and control control the disease.
Other resource N15 eMedicine Health - Parkinson Diseasehttp://www.emedicinehealth.com/articles/9583-1.asp eMedicine Health - Parkinson DiseaseTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Consumer health resource center providing information on the causes, symptoms, and treatment.
Other resource N16 YoungParkinsonshttp://www.youngparkinsons.com YoungParkinsonsTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Personal site of Tom Berdine, diagnosed at 33. Learn about parkinson's disease and its symptoms. Includes a message board and links to news.
Other resource N17 Parkinson's Recovery Projecthttp://www.pdrecovery.org Parkinson's Recovery ProjectTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Dedicated to dissemination of information regarding Parkinson's disease treatments which use techniques of Asian medicine. Find patient information, handbook updates, publications and other resources.
Other resource N18 Parkinson's Disease Discussion Forumhttp://parkinson.ca/board/index.html Parkinson's Disease Discussion ForumTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Support_Groups Created by the Parkinson Foundation of Canada, this discussion forum provides facility for exchanges of ideas, mutual support and opinions on Parkinson's disease.
Other resource N19 pwpNEThttp://groups.yahoo.com/group/pwpNET/ pwpNETTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Support_Groups A fully moderated and screened e-mail list for discussions and sharing of information among people with Parkinson's disease. Registration required.
Other resource N20 Functional and Stereotactic Neurosurgery: Parkinson's Disease Supporthttp://neurosurgery.mgh.harvard.edu/Functional/default.htm Functional and Stereotactic Neurosurgery: Parkinson's Disease SupportTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Support_Groups Provides general information and links to organisations providing PD support.
Other resource N21 Parkinsons Diseasehttp://groups.msn.com/ParkinsonsDisease/messageboard.msnw Parkinsons DiseaseTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Support_Groups Active PD message board on MSN Groups.
Other resource N22 The American Parkinson's Disease Association Inchttp://apdaparkinson.com/ The American Parkinson's Disease Association IncTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations The APDA provides details on their Information & Referral Centers and Services Locations. Information about the Young Parkinson's Center, chapter locations, support groups, publications, videos, and the allocation of Research Grants.
Other resource N23 National Parkinson Foundation, Inc.http://www.parkinson.org/ National Parkinson Foundation, Inc.Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations The NPF have created an extensive web-site which includes information about Parkinson's disease, articles from their newsletters, on-lines tests for tremor and clinical depression, as well as an Ask-The-Doctor forum.
Other resource N24 Northwest Parkinson's Foundationhttp://www.nwpf.org Northwest Parkinson's FoundationTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations A non-profit organization located in the Pacific Northwest which promotes awareness, education, care and a cure for Parkinson's Disease.
Other resource N25 Parkinson Association of Mecklenburg Countyhttp://www.parkinsonassociation.org/ Parkinson Association of Mecklenburg CountyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations Provides support group meetings, information to the community, membership, prescription assistance to members, a swim therapy program and home health care information. Mecklenburg County, North Carolina.
Other resource N26 The Parkinson's Institutehttp://www.parkinsonsinstitute.org/ The Parkinson's InstituteTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations An independent not-for-profit institution dedicated to seeking the cause and finding a cure for Parkinson's disease, while providing the best possible care for people with this disease and other movement disorders.
Other resource N27 Special Parkinson's Research Interest Grouphttp://spring.parkinsons.org.uk Special Parkinson's Research Interest GroupTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations SPRING is the official Special Interest Group for Medical Research, constituted within the Parkinson's Disease Society of UK. Our site includes news and background on research.
Other resource N28 Edinburgh Branch of the Parkinson's Disease Society of the UKhttp://edinburghparkinsons.org Edinburgh Branch of the Parkinson's Disease Society of the UKTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations Services and information for those in the Edinburgh area. Includes news, meetings and activities.
Other resource N29 APDA: The Massachusetts Chapterhttp://www.apdama.org APDA: The Massachusetts ChapterTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations Promotes parkinson's awareness in the Boston community. Information about the organization as well as the disease itself, contact details and links.
Other resource N30 Research | Parkinson Society Canadahttp://www.parkinson.ca/home.html Research | Parkinson Society CanadaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations Parkinson Society Canada is a not for profit, charitable organization which raises money toward finding the cause and cure for Parkinson's disease.
Other resource N31 Mother Lode Parkinsons Foundation, Sonora CAhttp://www.mlode.com/~mlpf Mother Lode Parkinsons Foundation, Sonora CATop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations Charitable organization dedicated to helping fund the care of those sticken with PD. In addition, reach out to educate those in the Sierra foothills about Parkinson's Disease.
Other resource N32 Young Onset Parkinson's Associationhttp://www.yopa.org Young Onset Parkinson's AssociationTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations YOPA is comprised of Young Onset Parkinson's patients from around the United States. Our mission is to raise public awareness and to offer support to those living with young onset Parkinson's disease. We coordinate with regional and national Parkinson's organizations in fundraising efforts for research funds.
Other resource N33 The Parkinson Alliancehttp://www.parkinsonalliance.net/home.html The Parkinson AllianceTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations A non-profit fundraising organization whose sole mission is to raise money for the best Parkinson's Disease researchers doing the most promising research.
Other resource N34 The Difference of Onehttp://thedifferenceofone.org The Difference of OneTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations A 401c charitable foundation that believes one person can contribute one dollar (and only one dollar) and make a difference in this world. They are currently raising money to help find a cure for parkinson's disease.
Other resource N35 Maine Parkinson Societyhttp://www.maineparkinsonsociety.org Maine Parkinson SocietyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations MEPS is a 501c3 non-profit dedicated to improving the quality of life of Maine people with Parkinson’s disease. Find news, events, and projects.
Other resource N36 Canadian Neurotoxicity Information Networkhttp://www3.sympatico.ca/cnin Canadian Neurotoxicity Information NetworkTop/Health/Conditions_and_Diseases/Neurological_Disorders/Neurotoxicity_Syndromes An information source for those suffering symptoms of neurotoxicity.
Other resource N37 Online Center for Clinical Carehttp://www.efa.org/clinicalcare/populations/alcohol.html Online Center for Clinical CareTop/Health/Conditions_and_Diseases/Neurological_Disorders/Neurotoxicity_Syndromes/Alcohol_Induced An article about alcohol withdrawal seizures and its treatment.
Other resource N38 CureHD Foundationhttp://www.curehd.org CureHD FoundationTop/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease A charity site aiming to spread awareness, information, and news about Huntington's disease.
Other resource N39 UCHC Huntington's Disease Programhttp://huntingtons.uchc.edu UCHC Huntington's Disease ProgramTop/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Services of the Huntington's disease program of the University of Connecticut Health Center.
Other resource N40 Huntington's Disease Informationhttp://www.lib.uchicago.edu/~rd13/hd Huntington's Disease InformationTop/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Comprehensive resource on Huntington's disease.
Other resource N41 Neurology Channel - Huntington's Disease (HD)http://www.neurologychannel.com/huntingtons/ Neurology Channel - Huntington's Disease (HD)Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Introduction to Huntington's disease, and an ask a doctor forum.
Other resource N42 Huntington's Disease Facts at a Glancehttp://ivory.lm.com/~mccarren/facts.html Huntington's Disease Facts at a GlanceTop/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Huntington's disease facts listed concisely.
Other resource N43 Australian Huntington's Disease Association Inc.http://www.ahdansw.asn.au/ Australian Huntington's Disease Association Inc.Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Offers support for families living in the Australian states of New South Wales and the Australian Capital Territory. Includes resources and information about NSW.
Other resource N44 Juvenile HDhttp://endoflifecare.tripod.com/juvenilehuntingtonsdisease/ Juvenile HDTop/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Information for families with a child with juvenile HD or one at-risk. Includes at-risk, genetic testing/testing of children, related JHD and HD symptoms and how to recognize/help, types of therapies, various medication and drug searches, surgeries, procedures used in testing, suicide, divorce, disabilities, assisstive technology, support links, and benefits/insurance.
Other resource N45 Huntington's Disease For Familieshttp://huntingtondisease.tripod.com/ Huntington's Disease For FamiliesTop/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Information for all families living with this disease including people with HD, caregivers, those at risk and young people.
Other resource N46 eMedicine Health - Huntington Disease Dementiahttp://www.emedicinehealth.com/articles/39041-1.asp eMedicine Health - Huntington Disease DementiaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Consumer health resource center providing information on the causes, symptoms, and treatment.
Other resource N47 Huntington's Disease Association UK - North West Lancashire Branchhttp://members.aol.com/hdanwlancs/index.html Huntington's Disease Association UK - North West Lancashire BranchTop/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease/Support_Groups Information about the North West Lancashire branch of the UK Huntington's Disease Association.
Other resource N48 Family Villagehttp://www.familyvillage.wisc.edu/lib_alth.htm Family VillageTop/Health/Conditions_and_Diseases/Neurological_Disorders/Alternating_Hemiplegia Links to information about Alternating Hemiplegia of Childhood. Includes data about a discussion group.
Other resource N49 NINDS: Myotonia Congenitahttp://www.ninds.nih.gov/health_and_medical/disorders/myotoniacongenita.htm NINDS: Myotonia CongenitaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
Other resource N50 The Institute for Neuromuscular Researchhttp://www.inmr.com.au The Institute for Neuromuscular ResearchTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases The aim of the Institute for Neuromuscular research is the make the lives of children better through advances in muscle and nerve research.
Other resource N51 Muscular Disease Discussionshttp://www.mdforums.org Muscular Disease DiscussionsTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases Dedicated to providing up-to-date information, and discussions on the various muscle diseases, dystrophies and myopathies.
Other resource N52 Multicore Myopathyhttp://home.cogeco.ca/~famadio/ Multicore MyopathyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Myopathies Offers an informational and support site for all myopathies.
Other resource N53 Myopathy and neuromuscular junction disordershttp://www.neuro.wustl.edu/neuromuscular/maltbrain.html Myopathy and neuromuscular junction disordersTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Myopathies Detailed information on some of the muscle diseases.
Other resource N54 Nemaline Myopathyhttp://www.davidmcd.freeuk.com/ Nemaline MyopathyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Myopathies Information and contacts regarding Nemaline Myopathy
Other resource N55 Myopathyhttp://www.ninds.nih.gov/health_and_medical/disorders/myopathy.htm MyopathyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Myopathies Information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
Other resource N56 Myotubular Myopathy Resource Grouphttp://www.mtmrg.org/ Myotubular Myopathy Resource GroupTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Myopathies Information and support for parents and medical professionals about x-linked, autosomal recessive, and autosomal dominant forms of MTM. Includes a web-based discussion group, newsletter, FAQs, articles, tips, current research, and family stories.
Other resource N57 National Registry of Myotonic Dystrophy and FSHD Patients and Family Membershttp://www.urmc.rochester.edu/nihregistry/ National Registry of Myotonic Dystrophy and FSHD Patients and Family MembersTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
Other resource N58 Living For Today, Preparing For Tomorrowhttp://www.livingfortoday.org Living For Today, Preparing For TomorrowTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
Other resource N59 HealtHubhttp://www.healthubs.com/dystrophy HealtHubTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations.
Other resource N60 DoctorBach.comhttp://www.doctorbach.com/ DoctorBach.comTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care.
Other resource N61 DMD Information and Resources for Teachershttp://www.uni-potsdam.de/u/germanistik/ls_dgs/teachers.html DMD Information and Resources for TeachersTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies Information for teachers of children with Duchenne Muscular Dystrophy (DMD).
Other resource N62 DMD Pioneershttp://www.dmdpioneers.org/ DMD PioneersTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
Other resource N63 Muscular Dystrophy Canadahttp://www.mdac.ca/ Muscular Dystrophy CanadaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations National voluntary agency committed to eliminating neuromuscular disorders.
Other resource N64 Cell Therapy Research Foundationhttp://www.celltherapy.com/ Cell Therapy Research FoundationTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations Not-for-profit medical research foundation working to find a treatment for muscular dystrophy and other genetic diseases through cell/gene therapy. Site describes treatments and clinical trials.
Other resource N65 The Muscular Dystrophy Campaign (UK)http://www.muscular-dystrophy.org/ The Muscular Dystrophy Campaign (UK)Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations A UK-based charity which funds medical research and support services for people with neuromuscular conditions. Site contains detailed information about duchenne, becker and many other conditions. Sections on education, care, physiotherapy, research and ways to help raise funds.
Other resource N66 Muscular Dystrophy Association Singaporehttp://www.mdas.org.sg Muscular Dystrophy Association SingaporeTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations Muscular Dystrophy Association Singapore (MDAS) is a self-help organization committed to uplift the lives of people with Muscular Dystrophy.
Other resource N67 Muscular Dystrophy Campaign Northern Irelandhttp://www.mdcni.org.uk/ Muscular Dystrophy Campaign Northern IrelandTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations Northern Ireland branch of Muscular Dystrophy Campaign includes news, events, staff profiles, information about the Regional Muscle Clinic and a web directory.
Other resource N68 Parent Project Muscular Dystrophy in Nepalhttp://www.parentprojectmd.org.np/ Parent Project Muscular Dystrophy in NepalTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations Parent Project Muscular Dystrophy in Nepal focuses on Duchenne and Becker Muscular Dystrophy, by providing practical, medical and emotional support to the people and families affected by the condition.
Other resource N69 Foundation to Eradicate Duchenne, Inc.http://www.duchennemd.org Foundation to Eradicate Duchenne, Inc.Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations FED is a non-profit organization established to find a cure for Duchenne Muscular Dystrophy, the leading lethal childhood genetic disease.
Other resource N70 MD-Listhttp://health.groups.yahoo.com/group/md-list MD-ListTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Mailing_Lists Mailing list to provide support for people affected by all different forms of Muscular Dystrophy.
Other resource N71 Muscle Diseasehttp://health.groups.yahoo.com/group/muscledisease/ Muscle DiseaseTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Mailing_Lists Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identifed neuromuscular diseases.
Other resource N72 Duchenne Muscular Dystrophy Support eGrouphttp://health.groups.yahoo.com/group/Duchenne_Muscular_Dystrophy/ Duchenne Muscular Dystrophy Support eGroupTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Mailing_Lists International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy.
Other resource N73 Limb Girdle Muscular Dystrophyhttp://health.groups.yahoo.com/group/Limb_Girdle_Muscular_Dystrophy/ Limb Girdle Muscular DystrophyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Mailing_Lists Discussion group open to anyone interested in making friends, sharing information and providing support for persons affected by Limb Girdle Muscular Dystrophy.
Other resource N74 The Muscular Dystrophy Forumhttp://health.groups.yahoo.com/group/The_Muscular_Dystrophy_Forum/ The Muscular Dystrophy ForumTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Mailing_Lists An online support group for people affected by any neuromuscular condition.
Other resource N75 Hope for MDhttp://groups.msn.com/HopeforMD Hope for MDTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Mailing_Lists Hope for Muscular Dystrophy Community is a support group that provides emotional and educational support to family members of those with Muscular Dystrophy.
Other resource N76 FacioScapuloHumeral Muscular Dystrophyhttp://www.mysuccess.net/fsh.html FacioScapuloHumeral Muscular DystrophyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Personal_Pages Information about FSHD, plus extensive links for organizations, products and services to copy with disabilities.
Other resource N77 Tony Montesanto's Home Pagehttp://www.nutopia.com/tony/ Tony Montesanto's Home PageTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Personal_Pages A site about a boy with Duchenne Muscular Dystrophy. For anyone interested in understanding disabilities.
Other resource N78 Living with Muscular Dystrophy.http://www.geocities.com/SiliconValley/Lakes/1992/md.html Living with Muscular Dystrophy.Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Personal_Pages Information about MD, Thom's personal experience with Congenital Myopathy, chat room, message board and links.
Other resource N79 Walk Of Lifehttp://members.aol.com/walkcontact/ Walk Of LifeTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Personal_Pages Biography of Chris Barratt, a teenager with Duchenne Muscular Dystrophy
Other resource N80 Wide World of Muscular Dystrophyhttp://www.wtv-zone.com/mdaww/indexzep1.html Wide World of Muscular DystrophyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Personal_Pages This site is a collection of information about all types of muscular dystrophy. It includes research updates, resource links, personal stories and fundraisers.

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