site URL - http://www.aboutrsd.com
Site description: Information of Reflex Sympathy Dystrophy, a debilitating disease of the nervous system that causes chronic pain, is progressive and cannot be cured.
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| LINK | URI & TITLE | DESCRIPTION & TOPIC | |
| Previous 10 | RSD/CRPS World News Group | http://groups.yahoo.com/group/RSD-WorldNews RSD/CRPS World News Group | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Reflex_Sympathetic_Dystrophy Daily updates on new sites, medicines, proceedures and papers on the subject. People can submit features, columns and writings. |
| Previous | RSD Canada | http://www.rsdcanada.org RSD Canada | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Reflex_Sympathetic_Dystrophy Offers information on the latest treatments, research, survival tips, RSD coping advice and photon therapy. |
| Random 1 | Pain Management Innovations | http://www.painmgtinnovations.com/ Pain Management Innovations | Top/Shopping/Publications/Books/Professional_and_Technical/Health/Specific_Titles Book of guidelines for patient positioning, C-Arm positioning, and fluoroscopic techniques for interventional spinal pain management procedures. |
| Random 2 | Isadora Duncan Dance Awards | http://www.izzies-sf.org Isadora Duncan Dance Awards | Top/Arts/Performing_Arts/Dance/Festivals/Competitions The "Izzies" honors San Francisco Bay Area dance artists through the acknowledgment of outstanding achievements within a twelve month period of performances. |
| Random 3 | Dermatoweb | http://www.dermatoweb.it Dermatoweb | Top/World/Italiano/Salute/Medicina/Specializzazioni/Dermatologia La psoriasi, l'acne e le afte. Informazioni sulla fitoterapia e sulle medicine non convenzionali in dermatologia. Sezioni sulla medicina estetica, sulla ricerca e sui consigli suggeriti dagli utenti. Mailing list e link utili. |
| Random 4 | Carl's Clogging Supplies | http://www.carlsclogging.com/ Carl's Clogging Supplies | Top/Arts/Performing_Arts/Dance/Folk_Dancing/Clogging Secure online store for clogging shoes, taps, and accessories. |
| Random 5 | Margaret's True Care | http://www.margaretstruecare.com/ Margaret's True Care | Top/Regional/North_America/United_States/Pennsylvania/Localities/D/Dover/Health Bra fitting for post-mastectomy women. Product pictures, certificate of medical necessity, insurance FAQ, schedule, newsletters. |
| Next | RSD Won't Bring Me Down | http://groups.msn.com/RSDWontBringMeDown/ RSD Won't Bring Me Down | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Reflex_Sympathetic_Dystrophy A place for RSD suffers, as well as loved one's of the afflicted, to receive love, understanding, and support. Features message boards and a chat room. |
| Next 10 | GeneClinics | http://www.geneclinics.org/profiles/myotonic-d/ GeneClinics | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Myotonic_Dystrophy A summary of myotonic dystrophy, the diagnosis, clinical description, differential diagnosis, management, genetic counseling and resources. |
| Random 1 | Lake Charles Ballet Society | http://www.lcballetsociety.org Lake Charles Ballet Society | Top/Arts/Performing_Arts/Dance/Ballet/Companies/North_America/United_States/Regional_or_Civic Civic ballet in Lake Charles, LA. |
| Random 4 | Club Chibi 2 | http://www.geocities.com/chibivint/ Club Chibi 2 | Top/Arts/Animation/Anime/Fandom/C Information on what a chibi is, image galleries, animated GIFs, wallpaper, and links. |
| Random 4 | Prisoner Of War | http://www.prisonerofwar.com/ Prisoner Of War | Top/Society/Issues/Warfare_and_Conflict/War_Crimes/Japan/Prisoners_of_War Eyewitness account by Dr. Paul Ashton, medical staff of the US Bataan force, contained in two books, Bataan Diary and a section called And Somebody Gives a Damn. |
| Next 70 | Blepharospasm Support Groups | http://www.supportworks.org/cat829.htm Blepharospasm Support Groups | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Movement_Disorders/Dystonia/Blepharospasm SupportWorks directory of support groups and other resources in Charlotte, NC addressing blepharospasm. |
| Previous 70 | Walk Of Life | http://members.aol.com/walkcontact/ Walk Of Life | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Personal_Pages Biography of Chris Barratt, a teenager with Duchenne Muscular Dystrophy |
| Next 170 | Rebekah's Rett Syndrome | http://www.angelfire.com/grrl/rebekahspage/index.htm Rebekah's Rett Syndrome | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Rett_Syndrome/Personal_Pages Personal story of Rebekah through 3 years of tests, diagnosis, and finally news of the gene being found. |
| Previous 170 | Huntington's Disease Clinic | http://www.bcm.edu/neurol/struct/hunting/hunt1.html Huntington's Disease Clinic | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Information on Huntington's disease, research, and its management. |
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| Previous 270 | InteliHealth: Parkinson's Disease | http://www.intelihealth.com/IH/ihtIH/WSIHW000/8321/8321.html InteliHealth: Parkinson's Disease | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Featuring Harvard Medical Schools consumer health information. An in depth look at this disorder from an introduction through to research being done. |
| Other resource N0 | eMedicine Health - Parkinson Disease | http://www.emedicinehealth.com/articles/9583-1.asp eMedicine Health - Parkinson Disease | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Consumer health resource center providing information on the causes, symptoms, and treatment. |
| Other resource N1 | YoungParkinsons | http://www.youngparkinsons.com YoungParkinsons | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Personal site of Tom Berdine, diagnosed at 33. Learn about parkinson's disease and its symptoms. Includes a message board and links to news. |
| Other resource N2 | Parkinson's Recovery Project | http://www.pdrecovery.org Parkinson's Recovery Project | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease Dedicated to dissemination of information regarding Parkinson's disease treatments which use techniques of Asian medicine. Find patient information, handbook updates, publications and other resources. |
| Other resource N3 | Parkinson's Disease Discussion Forum | http://parkinson.ca/board/index.html Parkinson's Disease Discussion Forum | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Support_Groups Created by the Parkinson Foundation of Canada, this discussion forum provides facility for exchanges of ideas, mutual support and opinions on Parkinson's disease. |
| Other resource N4 | pwpNET | http://groups.yahoo.com/group/pwpNET/ pwpNET | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Support_Groups A fully moderated and screened e-mail list for discussions and sharing of information among people with Parkinson's disease. Registration required. |
| Other resource N5 | Functional and Stereotactic Neurosurgery: Parkinson's Disease Support | http://neurosurgery.mgh.harvard.edu/Functional/default.htm Functional and Stereotactic Neurosurgery: Parkinson's Disease Support | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Support_Groups Provides general information and links to organisations providing PD support. |
| Other resource N6 | Parkinsons Disease | http://groups.msn.com/ParkinsonsDisease/messageboard.msnw Parkinsons Disease | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Support_Groups Active PD message board on MSN Groups. |
| Other resource N7 | The American Parkinson's Disease Association Inc | http://apdaparkinson.com/ The American Parkinson's Disease Association Inc | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations The APDA provides details on their Information & Referral Centers and Services Locations. Information about the Young Parkinson's Center, chapter locations, support groups, publications, videos, and the allocation of Research Grants. |
| Other resource N8 | National Parkinson Foundation, Inc. | http://www.parkinson.org/ National Parkinson Foundation, Inc. | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations The NPF have created an extensive web-site which includes information about Parkinson's disease, articles from their newsletters, on-lines tests for tremor and clinical depression, as well as an Ask-The-Doctor forum. |
| Other resource N9 | Northwest Parkinson's Foundation | http://www.nwpf.org Northwest Parkinson's Foundation | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations A non-profit organization located in the Pacific Northwest which promotes awareness, education, care and a cure for Parkinson's Disease. |
| Other resource N10 | Parkinson Association of Mecklenburg County | http://www.parkinsonassociation.org/ Parkinson Association of Mecklenburg County | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations Provides support group meetings, information to the community, membership, prescription assistance to members, a swim therapy program and home health care information. Mecklenburg County, North Carolina. |
| Other resource N11 | The Parkinson's Institute | http://www.parkinsonsinstitute.org/ The Parkinson's Institute | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations An independent not-for-profit institution dedicated to seeking the cause and finding a cure for Parkinson's disease, while providing the best possible care for people with this disease and other movement disorders. |
| Other resource N12 | Special Parkinson's Research Interest Group | http://spring.parkinsons.org.uk Special Parkinson's Research Interest Group | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations SPRING is the official Special Interest Group for Medical Research, constituted within the Parkinson's Disease Society of UK. Our site includes news and background on research. |
| Other resource N13 | Edinburgh Branch of the Parkinson's Disease Society of the UK | http://edinburghparkinsons.org Edinburgh Branch of the Parkinson's Disease Society of the UK | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations Services and information for those in the Edinburgh area. Includes news, meetings and activities. |
| Other resource N14 | APDA: The Massachusetts Chapter | http://www.apdama.org APDA: The Massachusetts Chapter | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations Promotes parkinson's awareness in the Boston community. Information about the organization as well as the disease itself, contact details and links. |
| Other resource N15 | Research | Parkinson Society Canada | http://www.parkinson.ca/home.html Research | Parkinson Society Canada | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations Parkinson Society Canada is a not for profit, charitable organization which raises money toward finding the cause and cure for Parkinson's disease. |
| Other resource N16 | Mother Lode Parkinsons Foundation, Sonora CA | http://www.mlode.com/~mlpf Mother Lode Parkinsons Foundation, Sonora CA | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations Charitable organization dedicated to helping fund the care of those sticken with PD. In addition, reach out to educate those in the Sierra foothills about Parkinson's Disease. |
| Other resource N17 | Young Onset Parkinson's Association | http://www.yopa.org Young Onset Parkinson's Association | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations YOPA is comprised of Young Onset Parkinson's patients from around the United States. Our mission is to raise public awareness and to offer support to those living with young onset Parkinson's disease. We coordinate with regional and national Parkinson's organizations in fundraising efforts for research funds. |
| Other resource N18 | The Parkinson Alliance | http://www.parkinsonalliance.net/home.html The Parkinson Alliance | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations A non-profit fundraising organization whose sole mission is to raise money for the best Parkinson's Disease researchers doing the most promising research. |
| Other resource N19 | The Difference of One | http://thedifferenceofone.org The Difference of One | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations A 401c charitable foundation that believes one person can contribute one dollar (and only one dollar) and make a difference in this world. They are currently raising money to help find a cure for parkinson's disease. |
| Other resource N20 | Maine Parkinson Society | http://www.maineparkinsonsociety.org Maine Parkinson Society | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Parkinson's_Disease/Organizations MEPS is a 501c3 non-profit dedicated to improving the quality of life of Maine people with Parkinson’s disease. Find news, events, and projects. |
| Other resource N21 | Canadian Neurotoxicity Information Network | http://www3.sympatico.ca/cnin Canadian Neurotoxicity Information Network | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Neurotoxicity_Syndromes An information source for those suffering symptoms of neurotoxicity. |
| Other resource N22 | Online Center for Clinical Care | http://www.efa.org/clinicalcare/populations/alcohol.html Online Center for Clinical Care | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Neurotoxicity_Syndromes/Alcohol_Induced An article about alcohol withdrawal seizures and its treatment. |
| Other resource N23 | CureHD Foundation | http://www.curehd.org CureHD Foundation | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease A charity site aiming to spread awareness, information, and news about Huntington's disease. |
| Other resource N24 | UCHC Huntington's Disease Program | http://huntingtons.uchc.edu UCHC Huntington's Disease Program | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Services of the Huntington's disease program of the University of Connecticut Health Center. |
| Other resource N25 | Huntington's Disease Information | http://www.lib.uchicago.edu/~rd13/hd Huntington's Disease Information | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Comprehensive resource on Huntington's disease. |
| Other resource N26 | Neurology Channel - Huntington's Disease (HD) | http://www.neurologychannel.com/huntingtons/ Neurology Channel - Huntington's Disease (HD) | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Introduction to Huntington's disease, and an ask a doctor forum. |
| Other resource N27 | Huntington's Disease Facts at a Glance | http://ivory.lm.com/~mccarren/facts.html Huntington's Disease Facts at a Glance | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Huntington's disease facts listed concisely. |
| Other resource N28 | Australian Huntington's Disease Association Inc. | http://www.ahdansw.asn.au/ Australian Huntington's Disease Association Inc. | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Offers support for families living in the Australian states of New South Wales and the Australian Capital Territory. Includes resources and information about NSW. |
| Other resource N29 | Juvenile HD | http://endoflifecare.tripod.com/juvenilehuntingtonsdisease/ Juvenile HD | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Information for families with a child with juvenile HD or one at-risk. Includes at-risk, genetic testing/testing of children, related JHD and HD symptoms and how to recognize/help, types of therapies, various medication and drug searches, surgeries, procedures used in testing, suicide, divorce, disabilities, assisstive technology, support links, and benefits/insurance. |
| Other resource N30 | Huntington's Disease For Families | http://huntingtondisease.tripod.com/ Huntington's Disease For Families | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Information for all families living with this disease including people with HD, caregivers, those at risk and young people. |
| Other resource N31 | eMedicine Health - Huntington Disease Dementia | http://www.emedicinehealth.com/articles/39041-1.asp eMedicine Health - Huntington Disease Dementia | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease Consumer health resource center providing information on the causes, symptoms, and treatment. |
| Other resource N32 | Huntington's Disease Association UK - North West Lancashire Branch | http://members.aol.com/hdanwlancs/index.html Huntington's Disease Association UK - North West Lancashire Branch | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Huntington's_Disease/Support_Groups Information about the North West Lancashire branch of the UK Huntington's Disease Association. |
| Other resource N33 | Family Village | http://www.familyvillage.wisc.edu/lib_alth.htm Family Village | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Alternating_Hemiplegia Links to information about Alternating Hemiplegia of Childhood. Includes data about a discussion group. |
| Other resource N34 | NINDS: Myotonia Congenita | http://www.ninds.nih.gov/health_and_medical/disorders/myotoniacongenita.htm NINDS: Myotonia Congenita | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases Information sheet compiled by the National Institute of Neurological Disorders and Stroke. |
| Other resource N35 | The Institute for Neuromuscular Research | http://www.inmr.com.au The Institute for Neuromuscular Research | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases The aim of the Institute for Neuromuscular research is the make the lives of children better through advances in muscle and nerve research. |
| Other resource N36 | Muscular Disease Discussions | http://www.mdforums.org Muscular Disease Discussions | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases Dedicated to providing up-to-date information, and discussions on the various muscle diseases, dystrophies and myopathies. |
| Other resource N37 | Multicore Myopathy | http://home.cogeco.ca/~famadio/ Multicore Myopathy | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Myopathies Offers an informational and support site for all myopathies. |
| Other resource N38 | Myopathy and neuromuscular junction disorders | http://www.neuro.wustl.edu/neuromuscular/maltbrain.html Myopathy and neuromuscular junction disorders | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Myopathies Detailed information on some of the muscle diseases. |
| Other resource N39 | Nemaline Myopathy | http://www.davidmcd.freeuk.com/ Nemaline Myopathy | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Myopathies Information and contacts regarding Nemaline Myopathy |
| Other resource N40 | Myopathy | http://www.ninds.nih.gov/health_and_medical/disorders/myopathy.htm Myopathy | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Myopathies Information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). |
| Other resource N41 | Myotubular Myopathy Resource Group | http://www.mtmrg.org/ Myotubular Myopathy Resource Group | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Myopathies Information and support for parents and medical professionals about x-linked, autosomal recessive, and autosomal dominant forms of MTM. Includes a web-based discussion group, newsletter, FAQs, articles, tips, current research, and family stories. |
| Other resource N42 | National Registry of Myotonic Dystrophy and FSHD Patients and Family Members | http://www.urmc.rochester.edu/nihregistry/ National Registry of Myotonic Dystrophy and FSHD Patients and Family Members | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information. |
| Other resource N43 | Living For Today, Preparing For Tomorrow | http://www.livingfortoday.org Living For Today, Preparing For Tomorrow | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories. |
| Other resource N44 | HealtHub | http://www.healthubs.com/dystrophy HealtHub | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations. |
| Other resource N45 | DoctorBach.com | http://www.doctorbach.com/ DoctorBach.com | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care. |
| Other resource N46 | DMD Information and Resources for Teachers | http://www.uni-potsdam.de/u/germanistik/ls_dgs/teachers.html DMD Information and Resources for Teachers | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies Information for teachers of children with Duchenne Muscular Dystrophy (DMD). |
| Other resource N47 | DMD Pioneers | http://www.dmdpioneers.org/ DMD Pioneers | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy. |
| Other resource N48 | Muscular Dystrophy Canada | http://www.mdac.ca/ Muscular Dystrophy Canada | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations National voluntary agency committed to eliminating neuromuscular disorders. |
| Other resource N49 | Cell Therapy Research Foundation | http://www.celltherapy.com/ Cell Therapy Research Foundation | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations Not-for-profit medical research foundation working to find a treatment for muscular dystrophy and other genetic diseases through cell/gene therapy. Site describes treatments and clinical trials. |
| Other resource N50 | The Muscular Dystrophy Campaign (UK) | http://www.muscular-dystrophy.org/ The Muscular Dystrophy Campaign (UK) | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations A UK-based charity which funds medical research and support services for people with neuromuscular conditions. Site contains detailed information about duchenne, becker and many other conditions. Sections on education, care, physiotherapy, research and ways to help raise funds. |
| Other resource N51 | Muscular Dystrophy Association Singapore | http://www.mdas.org.sg Muscular Dystrophy Association Singapore | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations Muscular Dystrophy Association Singapore (MDAS) is a self-help organization committed to uplift the lives of people with Muscular Dystrophy. |
| Other resource N52 | Muscular Dystrophy Campaign Northern Ireland | http://www.mdcni.org.uk/ Muscular Dystrophy Campaign Northern Ireland | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations Northern Ireland branch of Muscular Dystrophy Campaign includes news, events, staff profiles, information about the Regional Muscle Clinic and a web directory. |
| Other resource N53 | Parent Project Muscular Dystrophy in Nepal | http://www.parentprojectmd.org.np/ Parent Project Muscular Dystrophy in Nepal | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations Parent Project Muscular Dystrophy in Nepal focuses on Duchenne and Becker Muscular Dystrophy, by providing practical, medical and emotional support to the people and families affected by the condition. |
| Other resource N54 | Foundation to Eradicate Duchenne, Inc. | http://www.duchennemd.org Foundation to Eradicate Duchenne, Inc. | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Organizations FED is a non-profit organization established to find a cure for Duchenne Muscular Dystrophy, the leading lethal childhood genetic disease. |
| Other resource N55 | MD-List | http://health.groups.yahoo.com/group/md-list MD-List | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Mailing_Lists Mailing list to provide support for people affected by all different forms of Muscular Dystrophy. |
| Other resource N56 | Muscle Disease | http://health.groups.yahoo.com/group/muscledisease/ Muscle Disease | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Mailing_Lists Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identifed neuromuscular diseases. |
| Other resource N57 | Duchenne Muscular Dystrophy Support eGroup | http://health.groups.yahoo.com/group/Duchenne_Muscular_Dystrophy/ Duchenne Muscular Dystrophy Support eGroup | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Mailing_Lists International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy. |
| Other resource N58 | Limb Girdle Muscular Dystrophy | http://health.groups.yahoo.com/group/Limb_Girdle_Muscular_Dystrophy/ Limb Girdle Muscular Dystrophy | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Mailing_Lists Discussion group open to anyone interested in making friends, sharing information and providing support for persons affected by Limb Girdle Muscular Dystrophy. |
| Other resource N59 | The Muscular Dystrophy Forum | http://health.groups.yahoo.com/group/The_Muscular_Dystrophy_Forum/ The Muscular Dystrophy Forum | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Mailing_Lists An online support group for people affected by any neuromuscular condition. |
| Other resource N60 | Hope for MD | http://groups.msn.com/HopeforMD Hope for MD | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Mailing_Lists Hope for Muscular Dystrophy Community is a support group that provides emotional and educational support to family members of those with Muscular Dystrophy. |
| Other resource N61 | FacioScapuloHumeral Muscular Dystrophy | http://www.mysuccess.net/fsh.html FacioScapuloHumeral Muscular Dystrophy | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Personal_Pages Information about FSHD, plus extensive links for organizations, products and services to copy with disabilities. |
| Other resource N62 | Tony Montesanto's Home Page | http://www.nutopia.com/tony/ Tony Montesanto's Home Page | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Personal_Pages A site about a boy with Duchenne Muscular Dystrophy. For anyone interested in understanding disabilities. |
| Other resource N63 | Living with Muscular Dystrophy. | http://www.geocities.com/SiliconValley/Lakes/1992/md.html Living with Muscular Dystrophy. | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Personal_Pages Information about MD, Thom's personal experience with Congenital Myopathy, chat room, message board and links. |
| Other resource N64 | Walk Of Life | http://members.aol.com/walkcontact/ Walk Of Life | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Personal_Pages Biography of Chris Barratt, a teenager with Duchenne Muscular Dystrophy |
| Other resource N65 | Wide World of Muscular Dystrophy | http://www.wtv-zone.com/mdaww/indexzep1.html Wide World of Muscular Dystrophy | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Personal_Pages This site is a collection of information about all types of muscular dystrophy. It includes research updates, resource links, personal stories and fundraisers. |
| Other resource N66 | Haynes Family DMD Info | http://www.geocities.com/haynesra/ Haynes Family DMD Info | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Personal_Pages The Haynes family talks about their son's Duchenne Muscular Dystrophy and provides information and links on resources, current research and help. South Carolina. |
| Other resource N67 | Melissa's Page on Spinal Muscular Atrophy | http://www.geocities.com/sma4mel/ Melissa's Page on Spinal Muscular Atrophy | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Personal_Pages Personal web page about Spinal Muscular Atrophy. Describes growing up with the disease and current events in Melissa's life. |
| Other resource N68 | The Jones Family DMD Site | http://mom-of-bradley.tripod.com The Jones Family DMD Site | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Muscular_Dystrophies/Personal_Pages Learn how a family copes with Duchenne Muscular Dystrophy in son, Bradley. Bradley is about 7 years old. |
| Other resource N69 | FightSMA | http://www.fightsma.com FightSMA | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Spinal_Muscular_Atrophy Web site promoting public awareness for spinal muscular atrophy. |
| Other resource N70 | SMA2 Ian Paul | http://www.geocities.com/ianpaul2 SMA2 Ian Paul | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Spinal_Muscular_Atrophy I am two years old and I have SMA2. |
| Other resource N71 | Washington University of St. Louis: Neuromuscular | http://www.neuro.wustl.edu/neuromuscular/synmot.html Washington University of St. Louis: Neuromuscular | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Spinal_Muscular_Atrophy Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical. |
| Other resource N72 | Theo's Story with SMA | http://www.mysunrise.ch/users/af.mast/ Theo's Story with SMA | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Spinal_Muscular_Atrophy A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French. |
| Other resource N73 | Emily's Walk for Life | http://www.emilyswalkforlife.com Emily's Walk for Life | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Spinal_Muscular_Atrophy Information about an annual walk to raise money to find a cure for spinal muscular atrophy. Learn about SMA and read Emily's story. |
| Other resource N74 | Spinal Muscular Atrophy Foundation | http://www.smafoundation.org Spinal Muscular Atrophy Foundation | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Spinal_Muscular_Atrophy Information on SMA, and the latest updates in research, treatment and funding. |
| Other resource N75 | RSDHope | http://www.rsdhope.org/ RSDHope | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Reflex_Sympathetic_Dystrophy Non-Profit group for RSD Patients. Includes medical information, newsletters, links as well as information about support programs. |
| Other resource N76 | Reflex Sympathetic Dystrophy Association of America | http://www.rsds.org/ Reflex Sympathetic Dystrophy Association of America | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Reflex_Sympathetic_Dystrophy Information site. Promotes great awareness for Reflex Sympathetic Dystrophy. Includes video, news clips and links. |
| Other resource N77 | Donald A. Rhodes | http://members.aol.com/drrhodes2/RSDS.htm Donald A. Rhodes | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Reflex_Sympathetic_Dystrophy Information on diagnosis, treatment, and research on RSDS. |
| Other resource N78 | RSD Alert | http://www.rsdalert.co.uk RSD Alert | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Reflex_Sympathetic_Dystrophy Information about Reflex Sympathetic Dystrophy Syndrome, including personal experience, data and links to support groups. For sufferers and all active people who are at risk. |
| Other resource N79 | Neurovascular Dystrophy in Feet due to Frostbite | http://rpm.spinn.net/FootPain.htm Neurovascular Dystrophy in Feet due to Frostbite | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Reflex_Sympathetic_Dystrophy Case History: major post traumatic Neurovascular Dystrophy in feet and lower legs resulting from severe frostbite, cold injury and toe amputation. |
| Other resource N80 | RSDS/CRPS for the Southwest of the UK | http://www.angelfire.com/weird/health12/ RSDS/CRPS for the Southwest of the UK | Top/Health/Conditions_and_Diseases/Neurological_Disorders/Muscle_Diseases/Reflex_Sympathetic_Dystrophy Includes an introduction, facts and fiction, new research and links. |