Readers Digest Health

site URL - http://www.readersdigesthealth.com/kbase/nord/nord988.htm

Site description: Bardet-Biedl syndrome: General information and resources.




Topic: Top/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Bardet-Biedl_Syndrome

LINKURI & TITLEDESCRIPTION & TOPIC
Previous 10NINDS: Olivopontocerebellar Atrophyhttp://www.ninds.nih.gov/health_and_medical/disorders/opca_doc.htm NINDS: Olivopontocerebellar AtrophyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Olivopontocerebellar_Atrophy Information sheet compiled by National Institute of Neurological Disorders and Stroke.
PreviousAmerican Academy of Neurologyhttp://www.eurekalert.org/pub_releases/2000-12/AAoN-Nabt-2512100.php American Academy of NeurologyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Intracranial_Hypotension An article entitled: Not a brain tumor: serious headaches explained.
Random 1Helen Keller Internationalhttp://www.hki.org/ Helen Keller InternationalTop/Health/Conditions_and_Diseases/Eye_Disorders/Blindness/Organizations Helps organizations and institutions in countries where the need is great. Includes resources, programs and general information.
Random 2Allergy Storehttp://www.allergystore.net Allergy StoreTop/Shopping/Health/Conditions_and_Diseases/Allergies Allergy, asthma, and sinus information and non-drug relief products for people who suffer from allergies, asthma, or sinusitis caused by pollen, cat dander and pet allergies, mold spore and dust mites.
Random 3ALPHA - Alaska Public Health Associationhttp://www.alaskapublichealth.org/ ALPHA - Alaska Public Health AssociationTop/Health/Public_Health_and_Safety/Organizations Public Health professionals in Alaska use the combined strength of scientific knowledge, professional skill, individual commitment, community support, and political will to enable people to achieve their potential to live full, active lives.
Random 4Rachel's Dancing pagehttp://www.freewebs.com/rachelsdancingpage Rachel's Dancing pageTop/Arts/Performing_Arts/Dance/Morris_Dancing/Carnival A morris dancing site by Rachel - a dancers from Leigh West Park
Random 5Growth Househttp://www.growthhouse.org/default.html Growth HouseTop/Health/Nursing/Specialties/Palliative_Care Resources for bereavement and grief, death and dying, death with dignity, euthanasia, hospice, palliative care, suicide, terminal illness, AIDS, HIV, and related topics.
NextLaurence-Moon-Bardet-Biedl Syndrome Networkhttp://www.geocities.com/HotSprings/Spa/1761/ Laurence-Moon-Bardet-Biedl Syndrome NetworkTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Bardet-Biedl_Syndrome Raises public awareness of the Laurence-Moon Bardet-Biedl syndrome and serves as a place for parents of LMBBS children to meet and exchange ideas.
Next 10NINDS Neuroleptic Malignant Syndrome Information Pagehttp://www.ninds.nih.gov/health_and_medical/disorders/neuroleptic_syndrome.htm NINDS Neuroleptic Malignant Syndrome Information PageTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Basal_Ganglia/Neuroleptic_Malignant_Syndrome Compiled by the National Institute of Neurological Disorders and Stroke.
Random 1Central Florida Country Dance Stampedehttp://www.cwdancing.com/stampede/ Central Florida Country Dance StampedeTop/Arts/Performing_Arts/Dance/Folk_Dancing/Country_and_Western/Competitions Cocoa Beach, FL, event in February, includes registration form and hotel information.
Random 4StoneCenterhttp://www.urostonecenter.com StoneCenterTop/Health/Conditions_and_Diseases/Genitourinary_Disorders/Kidney/Stones Provides information on kidney stones, treatment, and prevention. Also provides physician referrals.
Random 4Moonraker Morrishttp://uk.geocities.com/mmorris01uk Moonraker MorrisTop/Arts/Performing_Arts/Dance/Morris_Dancing/Cotswold Cotswold style morris from Devizes in the heart of Wiltshire.
Next 70Medinfo - Meningitishttp://www.medinfo.co.uk/conditions/meningitis.html Medinfo - MeningitisTop/Health/Conditions_and_Diseases/Neurological_Disorders/Meningitis Information on the symptoms and signs, what to do and where to go for further information, from Medinfo.co.uk
Previous 70Fahr's Syndromehttp://www.ninds.nih.gov/health_and_medical/disorders/fahrs.htm Fahr's SyndromeTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
Next 170This is MShttp://www.thisisms.com This is MSTop/Health/Conditions_and_Diseases/Neurological_Disorders/Demyelinating_Diseases/Multiple_Sclerosis Provides news, research and a interactive community.
Previous 170Northwest Regional Spinal Cord Injury System/UW Rehabilitation Medicinehttp://depts.washington.edu/rehab/sci/ Northwest Regional Spinal Cord Injury System/UW Rehabilitation MedicineTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Research Federally-funded model spinal cord injury center. Website features newsletter, speaker series, patient education pamphlets, research and links to SCI-related sites.
Next 270
Previous 270Central Nervous System Injury Laboratoryhttp://www.giccs.georgetown.edu/labs/faden/ Central Nervous System Injury LaboratoryTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Brain_Injury/Research Research probing the cellular and molecular events that contribute to the physiological, behavioral, neurologic, and histologic damage associated with TBIs. The goal is to develop new, more effective therapies to treat brain injury patients.
Other resource N0 Survivor Acceptancehttp://survivoracceptance.com/ Survivor AcceptanceTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Brain_Injury/Support_Groups Providing support, resources, and inspiration for survivors of brain or other traumatic injuries, disabilities or illnesses.
Other resource N1 My Day at the Fiesta Bowl Paradehttp://www.angelfire.com/az2/music4/tbisurvivor.html My Day at the Fiesta Bowl ParadeTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Brain_Injury/Personal_Pages Jean's story about her interaction with a horse and cart in the parade.
Other resource N2 In My Solitudehttp://www.angelfire.com/in/solitude3/ In My SolitudeTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Brain_Injury/Personal_Pages Brain injury: a personal perspective, coping and moving on after a TBI with focus on personal growth and setting goals to overcome deficits, including a daily journal.
Other resource N3 Dale's Homepage For Fun!http://www.geocities.com/epee_guy_1996 Dale's Homepage For Fun!Top/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Brain_Injury/Personal_Pages A TBI survivor who refuses to dwell on his injuries talks about his singing, friends, family, dreams, and fencing.
Other resource N4 Betsy's Support Page for Traumatic Brain Injuryhttp://www.homestead.com/betsysupportpage/index.html Betsy's Support Page for Traumatic Brain InjuryTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Brain_Injury/Personal_Pages Help and suggestions for care givers, family members, loved ones, and all who have been affected by traumatic brain injury from a daughter of a survivor.
Other resource N5 The World of TBIhttp://www.angelfire.com/country/rhapsodyblue22/Home.html The World of TBITop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Brain_Injury/Personal_Pages Through poetry and musings, a young singer shares her heartbreak, anger, and feelings of what she is forced to live with daily, five years after a horrific car accident.
Other resource N6 Friendship Corner/Brain buddieshttp://pub51.ezboard.com/bfriendshipcorner32203 Friendship Corner/Brain buddiesTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Brain_Injury/Personal_Pages A message board for those who wish to talk about surgery, traumas, tumors, aneurysm and brain injuries.
Other resource N7 The Road to Recoveryhttp://thebonedaddies.tripod.com/theroadtorecovery/ The Road to RecoveryTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Brain_Injury/Personal_Pages A site dedicated to tracking the progress of one man's brother, an Air Force Captain, who suffered a TBI in November, 2001.
Other resource N8 Chris' Story: Survivor of TBIhttp://lynch.c.tripod.com/ Chris' Story: Survivor of TBITop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Brain_Injury/Personal_Pages "Trooper," an Airborne Soldier and survivor of traumatic brain injury offers pictures and text chronicling his life with pride, trauma, struggle, and inspiration. Also provides ideas for therapeutic activities Brain Injury Survivors can do at home.
Other resource N9 Site Copernicushttp://www.dickibus.co.uk/ Site CopernicusTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Brain_Injury/Personal_Pages Provides support and resources for people with a brain injury. Offers poetry, journal writings, chat room, and links to information about a variety of disabilities and medical issues.
Other resource N10 Spinal Cord Injury Resource Centerhttp://www.spinalinjury.net/ Spinal Cord Injury Resource CenterTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury Explains basic anatomy, physiology, and the complications resulting from a spinal cord injury, with sections on recent research news, tips on finding a rehabilitation center, and a chat room.
Other resource N11 National Spinal Cord Injury Associationhttp://www.spinalcord.org/ National Spinal Cord Injury AssociationTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury Helping individuals and families with spinal cord injury issues to make informed choices and take actions to achieve their highest level of independence and personal fulfillment.
Other resource N12 Spinal Cord Injury Network Internationalhttp://www.spinalcordinjury.org/ Spinal Cord Injury Network InternationalTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury Information and referral services for spinal-cord-injured individuals and their families.
Other resource N13 Spinal Cord Societyhttp://members.aol.com/scsweb/ Spinal Cord SocietyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury An international organization for cure, research, and treatment of spinal cord injury, paralysis, and related problems.
Other resource N14 Spinal Timeshttp://spinaltimes.org/ Spinal TimesTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury Information for people who have received spinal cord injuries and for their families. Offers helpful how to information.
Other resource N15 Go Out And Live Successfullyhttp://www.goalsinc.net Go Out And Live SuccessfullyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury Foundation dedicated to helping spinal cord injured people better access the non-handicapped environment.
Other resource N16 How To Prove Spinal Disabilityhttp://www.DisabilityEvaluation.com How To Prove Spinal DisabilityTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury Your one stop source for spinal disability evaluations, functional capacity assessments, ask the doctor, scoliosis, spine information, disability facts and business help or check out current news and contact information.
Other resource N17 National Institute of Neurological Disorders and Strokehttp://www.ninds.nih.gov/health_and_medical/disorders/sci.htm National Institute of Neurological Disorders and StrokeTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury Spinal cord injury information sheet compiled by NINDS.
Other resource N18 Health Dangershttp://www.healthdangers.com/injuries/spinal-cord-injury/index.htm Health DangersTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury Information and resources about the causes, costs and living with a spinal cord injury.
Other resource N19 Spinal Cord Injury Resource Centerhttp://www.sci-recovery.org/ Spinal Cord Injury Resource CenterTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury Advice, resources, and assistance for people with spinal cord injuries and their families. Describes major causes of SCI and common therapies.
Other resource N20 The Society to Increase Mobility, Inc.http://www.thestim.org/ The Society to Increase Mobility, Inc.Top/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury Learn about neurotechnology and how it can help, and communicate in the forum.
Other resource N21 Spinal Cord Research Centrehttp://www.scrc.umanitoba.ca/ Spinal Cord Research CentreTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Research To inform prospective students and postdoctoral trainees, as well as others interested in spinal cord research, of the research underway at the Spinal Cord Research Centre.
Other resource N22 National Institute of Neurological Disorders and Strokehttp://www.ninds.nih.gov/health_and_medical/disorder_index.htm National Institute of Neurological Disorders and StrokeTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Research Supporter of biomedical research on disorders of the brain and nervous system.
Other resource N23 Spinal Cord Injury: Advancement in Recovery and Researchhttp://www.chem.uwec.edu/Chem412_S99/41299/spinal/index.htm Spinal Cord Injury: Advancement in Recovery and ResearchTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Research Information on current research in spinal cord injurie and treatment.
Other resource N24 Quest for the Curehttp://carecure.rutgers.edu/quest/QuestHome.html Quest for the CureTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Research Group of people dedicated to lobbying for more spinal cord injury research funding at the state and federal levels.
Other resource N25 Pediatric Neurosurgery - Tethered Spinal Cordhttp://cpmcnet.columbia.edu/dept/nsg/PNS/TetheredSpinalCord.html Pediatric Neurosurgery - Tethered Spinal CordTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Research Dedicated to providing families with information regarding various aspects of the field of pediatric neurosurgery.
Other resource N26 Cleveland FES Center - FES Institutehttp://feswww.fes.cwru.edu/ Cleveland FES Center - FES InstituteTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Research A research consortium in Functional Electrical Stimulation.
Other resource N27 Spinal Research  -  A cure for paralysis from spinal cord injuryhttp://www.spinal-research.org/ Spinal Research  -  A cure for paralysis from spinal cord injuryTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Research The International Spinal Research Trust leads the way in finding a cure for paralysis caused by spinal cord injury.
Other resource N28 National Center for Medical Rehabilitation Researchhttp://www.nichd.nih.gov/about/ncmrr/ncmrr.htm National Center for Medical Rehabilitation ResearchTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Research Funds research in the rehabilitation of impairment, disability and handicap; including that due to spinal cord injury, brain injury, stroke, amputation, cerebral palsy, spina bifida, and other disabling conditions.
Other resource N29 National Spinal Cord Injury Statistical Centerhttp://main.uab.edu/show.asp?durki=10766 National Spinal Cord Injury Statistical CenterTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Research Supervises and directs the collection, management and analysis of the world's largest spinal cord injury database.
Other resource N30 Spinal Cord Research Centerhttp://neurobio.mcphu.edu/scrc/Default.html Spinal Cord Research CenterTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Research Six members of the faculty of the Medical College of Pennsylvania/Hahnemann University are actively engaged in an innovative and multidisciplinary program for studying the pathophysiology and treatment of spinal cord injury.
Other resource N31 National Center for the Dissemination of Disability Researchhttp://www.ncddr.org/ National Center for the Dissemination of Disability ResearchTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Research Activities are in the areas of research , demonstration, dissemination and utilization and technical assistance.
Other resource N32 Stem Cell Research in Spinal Cord Injuryhttp://www.namiscc.org/newsletters/December01/SCI-stem-cell-research.htm Stem Cell Research in Spinal Cord InjuryTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Research Summary of current research in treating spinal cord injury and the new applications of stem cells in that research.
Other resource N33 In Search of the Lost Cord: Solving the Mystery of Spinal Cord Regenerationhttp://www.nap.edu/catalog/10124.html In Search of the Lost Cord: Solving the Mystery of Spinal Cord RegenerationTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Research Complete text of Luba Vikhanski's book.
Other resource N34 Rick Hansen Institute - Spinal Cord Injuries Research and Resourcehttp://www.rickhansen.com/ Rick Hansen Institute - Spinal Cord Injuries Research and ResourceTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Research Accelerating the discovery of a cure for spinal cord injury and improving quality of life, through fundraising and facilitating research. Learn about the Rick Hansen Foundation, its programs, special events, and how your donations can make a difference.
Other resource N35 Regional Spinal Cord Injury Center of the Delaware Valleyhttp://www.spinalcordcenter.org Regional Spinal Cord Injury Center of the Delaware ValleyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Research Provides clinical research, emergency and acute treatment, rehabilitation, support groups, and a lifetime system of follow up care. Find information about the programs as well as a patient education manual in PDF format.
Other resource N36 Project Walk Spinal Cord Injury Recoveryhttp://www.projectwalk.org Project Walk Spinal Cord Injury RecoveryTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Treatment A two year exercise recovery program for individuals with certain spinal cord injuries. The goal of Project Walk is to demonstrate that the incredible results achieved by our clients case are not isolated, but rather the reproducible results of proven techniques and hardwork.
Other resource N37 The VAX-D Networkhttp://www.vaxd.net The VAX-D NetworkTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Treatment Vertebral Axial Decompression (VAX-D) is a non-surgical procedure for low back pain. Find information, and patient's and doctor's comments.
Other resource N38 Alabama Head Injury Foundationhttp://www.ahif.org Alabama Head Injury FoundationTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Support_Groups Improving life for people with traumatic brain injury or spinal cord injury.
Other resource N39 CAST - Continuing After Spinal Cord Traumahttp://cast.4dw.net CAST - Continuing After Spinal Cord TraumaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Support_Groups A support group for spinal cord injured people, their family, and friends.
Other resource N40 Proactive Spinal Networkhttp://www.proactivespinalnetwork.com Proactive Spinal NetworkTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Support_Groups An online community for women with spinal injuries (SCI/D). Offers articles, a forum and chat room for support. It is targeted at women in Ontario, Canada.
Other resource N41 A Positive Light - HemiManhttp://www.execpc.com/~shepler/hemiman1.html A Positive Light - HemiManTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages An aspiring athlete finds both his body and future shattered after a near-fatal bicycle accident. Jay Enloe chooses to wake up from a coma and face the seemingly impossible challenge of re-activating his broken body and dreams.
Other resource N42 Living with Spinal Cord Injuryhttp://www.angelfire.com/ar2/hart Living with Spinal Cord InjuryTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages He's not Superman, Just ordinary. The wife tells her story of a man paralyzed by diving into a backyard pool. Includes details on a job discrimination suit.
Other resource N43 Nicki's Homepagehttp://www.geocities.com/Heartland/Trail/6860/index.html Nicki's HomepageTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages About Nicki and family.
Other resource N44 Wheelz Red Wings Pagehttp://members.tripod.com/~Wheelz_2/index.html Wheelz Red Wings PageTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages Dedicated to the Detroit Red Wings and features the biography of Dave Schaedig a C4/5 Quad.
Other resource N45 Nikos Voulgaropouloshttp://www.disabled.gr/nikos Nikos VoulgaropoulosTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages A personal account of spinal cord injuries and independent living.
Other resource N46 DeanJoyce.comhttp://www.deanjoyce.com/ DeanJoyce.comTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages Here's a site about everything. Me, my interests, my spinal injury, my car club, and my dad's sportscard shop.
Other resource N47 Mr. Mans Home Pagehttp://geocities.com/mkhodge/ Mr. Mans Home PageTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages The story, home and adaptive equipment of Mike Hodge a C4/5 Quad and his favorite links.
Other resource N48 Life Is Goodhttp://www.expage.com/page/aboutbill Life Is GoodTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages The story of and poetry from William Tice, Jr. A C3/4 quad.
Other resource N49 The Mitch Longlely Web Pagehttp://www.geocities.com/~mitchlongley/ The Mitch Longlely Web PageTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages The biography and photo album of wheelchair actor Mitch Longley.
Other resource N50 dotkatehttp://www.dotkate.com dotkateTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages A wheelchair accessible site about life with spinal cord injury, wheelchair adaptations reviews, work and sex with sci. Also find photoshop tutorials, Kate's diary, and web design info
Other resource N51 Day That Changed My Life, Thehttp://home.att.net/~doctordialtone/life.htm Day That Changed My Life, TheTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages The story of Rick Williams and the accident that caused his spinal injury.
Other resource N52 Music by Jonhttp://jonweems.hostrack.com Music by JonTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages Man who writes music after a spinal cord injury.
Other resource N53 Randall's Hopehttp://www.randallk.20m.com Randall's HopeTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages A stand for what is right. For Liberty and Justice for all and Freedom in its most basic form. You will find much food for thought within.
Other resource N54 Netta's Homepagehttp://my.magicpage.co.il/Art/nettag Netta's HomepageTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages Information about Netta and her mouth-made paintings, Rene Magritte, about Israel and disability information.
Other resource N55 News From the Edgehttp://www.from-the-edge.net News From the EdgeTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages An uplifting chronicle of one mans rebirth after a spinal cord injury. Inspirational writings for anyone with a life crisis.
Other resource N56 Gary Robertshttp://www.gazrobs.freeuk.com Gary RobertsTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages A frank account & site by Gary, C3-4 incomplete, with good links on spinal cord injury.
Other resource N57 Keith Piskur's Home Pagehttp://webpages.charter.net/kpiskur/ Keith Piskur's Home PageTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages Features information about Spina Bifida and other disabilities.
Other resource N58 Vasile Stoicahttp://www.geocities.com/vasile_stoica Vasile StoicaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages About the Guinness Book Records holder, born with congenital paraplegia.
Other resource N59 Toddman Imageshttp://www.toddman.com/ Toddman ImagesTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages C5 Quad that enjoys working with and editing photos. The touch up, art work and manipulating of the graphics are done by the author with adaptive equipment.
Other resource N60 Steve Lail aka Rainbow Kidhttp://www.angelfire.com/il/kuntrylife/page3.html Steve Lail aka Rainbow KidTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages He was a journalist, a teacher, a writer,and a friend. Paralyzed after a fall from a flight of stairs, and bedridden for over 15 years, he continued to write and to share his giving heart and humor with his nurses, his family his community. Read 'Memories of Steve Lail'.
Other resource N61 Greg Euston Update Pagehttp://www.faith4recovery.org Greg Euston Update PageTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages Chronicles recovery of Greg Euston who was victim of a spinal injury as a result of motorcycle accident.
Other resource N62 SCI Info Exchangehttp://www.msouza.net SCI Info ExchangeTop/Health/Conditions_and_Diseases/Neurological_Disorders/Trauma_and_Injuries/Spinal_Cord_Injury/Personal_Pages Resources are offered by the author who suffered a spinal cord injury and is a T-11 paraplegic.
Other resource N63 The Hypoxic Ischemic Encephalopathy Support Centerhttp://www.angelfire.com/folk/hie The Hypoxic Ischemic Encephalopathy Support CenterTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases Offers a resource page and a place where you can join the on-line support group. Includes profiles of children effected with HIE, many have pictures included.
Other resource N64 Fahr's Syndromehttp://www.ninds.nih.gov/health_and_medical/disorders/fahrs.htm Fahr's SyndromeTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
Other resource N65 Indiana University: NMDhttp://www.indiana.edu/~pietsch/nmd.html Indiana University: NMDTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases A literature search from MEDLINE on Neuronal Migration disorder.
Other resource N66 Brainhttp://courses.ncsu.edu/classes/psy502001/psy502/l4nsgros/brain/bran_pg1.htm BrainTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases Includes the general characteristics, surface and internal anatomy.
Other resource N67 Hemimegalencephaly Support Grouphttp://www.cv.quik.com.au/hmegroup Hemimegalencephaly Support GroupTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases A group of parents and friends of children with Hemimegalencephaly (HME).Provides contacts and information.
Other resource N68 eMedicine Health - Electroencephalography (EEG)http://www.emedicinehealth.com/articles/6573-1.asp eMedicine Health - Electroencephalography (EEG)Top/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases Consumer health resource center providing information on EEG, which is used in the evaluation of brain disorders.
Other resource N69 Yahoo! Groups: Abetalipoproteinemiahttp://groups.yahoo.com/group/Abetalipoproteinemia/ Yahoo! Groups: AbetalipoproteinemiaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Metabolic/Abetalipoproteinemia Discussion group for people diagnosed with abetalipoproteinemia.
Other resource N70 Mitochondrial Disease in Childrenhttp://www.kathleensworld.com/mitochon.html Mitochondrial Disease in ChildrenTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Metabolic/Mitochondrial All seven of Kathleen's children have mitochondrial encephalomyopathy, and two of them have hearing loss as a reult.
Other resource N71 United Mitochondrial Disease Foundationhttp://www.umdf.org/ United Mitochondrial Disease FoundationTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Metabolic/Mitochondrial To promote research for the cure and treatment, and to provide support to families. The UMDF offers a library, patient registry, support information, conferences, research and grant updates, and a special section for physicians.
Other resource N72 Leigh's Diseasehttp://www.ninds.nih.gov/health_and_medical/disorders/leighsdisease_doc.htm Leigh's DiseaseTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Metabolic/Leigh's Information sheet compiled by NINDS.
Other resource N73 NORD: Leigh's Diseasehttp://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Leigh%27s%20Disease NORD: Leigh's DiseaseTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Metabolic/Leigh's Offers synonyms, a general discussion, disorder subdivisions and further resources.
Other resource N74 NORD - Galactosemiahttp://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Galactosemia NORD - GalactosemiaTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Metabolic/Galactosemia Offers the synonyms, a general discussion and further resources.
Other resource N75 Pediatric Oncallhttp://www.pediatriconcall.com/fordoctor/casereports/galactosemia.asp Pediatric OncallTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Metabolic/Galactosemia Presented is a case study of galactosemia in a four month old female child.
Other resource N76 Family Practice Notebook: Hepatic Encephalopathyhttp://www.fpnotebook.com/GI141.htm Family Practice Notebook: Hepatic EncephalopathyTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Metabolic/Hepatic_Encephalopathy Offers participating factors, pathophysiology, symptoms and signs, diagnosis and management.
Other resource N77 Family Practice Notebook: Kernicterushttp://www.fpnotebook.com/NIC39.htm Family Practice Notebook: KernicterusTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Metabolic/Kernicterus Offers the pathophysiology, symptoms and signs and prognosis.
Other resource N78 Benign Intracranial Hypertensionhttp://www.mjmoore.co.uk/bih/ Benign Intracranial HypertensionTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Intracranial_Hypertension Within this site you will find information regarding symptoms, possible causes, and diagnosis of BIH. The personal experience of the author of the site are also shared here, along with multiple message boards to talk with others who have BIH (also known as Pseudotumor Cerebri).
Other resource N79 Yahoo! Groups : PTChttp://groups.yahoo.com/group/ptc/ Yahoo! Groups : PTCTop/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Intracranial_Hypertension If you are looking for information and support regarding PTC, join our PTC email support group that currently has 358 members. This group allows email attachments, so please be careful of viruses that can be passed via email.
Other resource N80 NORD (National Organization for Rare Disorders)http://www.rarediseases.org/nord/search/rdbdetail_abstract.html?disname=Pseudotumor%20Cerebri NORD (National Organization for Rare Disorders)Top/Health/Conditions_and_Diseases/Neurological_Disorders/Brain_Diseases/Intracranial_Hypertension National Organization of Rare Disorders (NORD) database, which contains information about over 1,100 rare diseases. A discussion about Pseudotumor Cerebri contains common signs and symptoms, and provides links to organizations related to PTC.

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