National Down Syndrome Cytogenetic Register (UK)

site URL - http://www.mds.qmw.ac.uk/wolfson/ndscr/

Site description: Information about an anonymous register allowing researchers to analyse possible causal factors. Includes interpretation of the results.




Topic: Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome

LINKURI & TITLEDESCRIPTION & TOPIC
Previous 10Health Care for Adults With Down Syndromehttp://healthlink.mcw.edu/article/1001820316.html Health Care for Adults With Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Recommendations on their specific health maintenance needs.
PreviousPositively Downhttp://www.btinternet.com/~suer/pd Positively DownTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Parent led resource, support and social group for families of children with Down syndrome in and around London Borough of Richmond, UK
Random 1Louis Bolk Institutehttp://www.louisbolk.nl/eng/index.htm Louis Bolk InstituteTop/Society/Religion_and_Spirituality/Esoteric_and_Occult/Anthroposophy/Biodynamic_Farming An initiator in fields of work like: Anthroposophic medicine, organic farming and organic food.
Random 2Equine Sciencehttp://www.herbs4horses.com/ Equine ScienceTop/Shopping/Sports/Equestrian/Healthcare_and_Grooming/Feed_and_Supplements/Herbal Herbs for horses. ES's products were developed to give the horseman an alternative way of improving the health and performance of their horse.
Random 3Little City Foundation Adoption Programhttp://www.littlecityadoptions.org Little City Foundation Adoption ProgramTop/Regional/North_America/United_States/Illinois/Localities/C/Chicago/Society_and_Culture/Family Matching preadoptive parents with children who are wards of the State of Illinois with developmental, behavioral, medical and emotional disorders.
Random 4Drugdetoxification.comhttp://www.drugdetoxification.com Drugdetoxification.comTop/Shopping/Recreation/Drugs/Detox_Products Sells various detox products including hair follicle shampoo and urine additives. Also offers home testing kits. Information on how testing works.
Random 5Ordine dei Medici chirurghi ed odontoiatri della provincia di Maceratahttp://www.ordinemedicimc.sinp.net/ Ordine dei Medici chirurghi ed odontoiatri della provincia di MacerataTop/World/Italiano/Regionale/Europa/Italia/Marche/Provincia_di_Macerata/Pubblica_Amministrazione Attività istituzionale, normativa, servizi erogati e notiziario.
NextDownscreeninghttp://www.downscreening.be DownscreeningTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Deze website wil U informeren over de screening tijdens de zwangerschap naar Down syndroom door analyse van moederlijk bloed en echografie. Deze screeningstest bepaalt het risico op Down syndroom.
Next 10Treatment of Children and Adultshttp://www.lleichtman.org/tni.shtml Treatment of Children and AdultsTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Nutrition Principles behind TNI's use, treatment protocols, and an expanded bibliography. By Dr. Lawrence G. Leichtman, MD, PhD
Random 1World Salsa Federationhttp://www.worldsalsafederation.com/ World Salsa FederationTop/Arts/Performing_Arts/Dance/Latin/Salsa Includes competitions, workshops, and certification rules.
Random 4Wickert-Institutehttp://www.wickert-institute.de/ Wickert-InstituteTop/World/Deutsch/Wirtschaft/Marketing_und_Werbung/Markt-_und_Meinungsforschung Das Institut führt Befragungen in allen Zielgruppen durch und wendet dabei verschiedene Methoden an. Die Auftraggeber werden vom Fragebogendesign bis hin zur Datenauswertung unterstützt. Zu den Spezialthemen gehören beispielsweise Medical- und Best Ager-Forschung sowie Imageanalysen. [D-31134 Hildesheim]
Random 4Senate committee votes to lift food and medicine sanctions on Cuba http://www.cnn.com/2000/ALLPOLITICS/stories/05/09/senate.cuba/index.html Senate committee votes to lift food and medicine sanctions on Cuba Top/News/Online_Archives/CNN.com/2000/May/Politics [CNN]
Next 70George and Charleyhttp://homepages.tesco.net/~d.w.dossett/index.htm George and CharleyTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Pictures and links.
Previous 70A3243G.comhttp://www.a3243g.com/home.asp A3243G.comTop/Health/Conditions_and_Diseases/Genetic_Disorders Information about a gene defect which causes a variety of diseases. Find a discussion forum and an newsletter.
Next 170cystic fibrosishttp://members.aol.com/JAW060664/html/cf.html cystic fibrosisTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Site for those wanting to learn about end stage. Not for someone whose child has been recently diagnosed. By a woman waiting for a lung transplant.
Previous 170HairSite.comhttp://www.hairsite.com/ HairSite.comTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss A resource center featuring close to 300 discussion topics on hair care and hair loss treatments.
Next 270
Previous 270Rosacea Support: Mayo Clinic Definition of Seb Derm.http://www.escribe.com/health/rosacea-support/index.html?mID=4658 Rosacea Support: Mayo Clinic Definition of Seb Derm.Top/Health/Conditions_and_Diseases/Skin_Disorders/Seborrheic_Dermatitis A chat session with Dr. Gibson from the Mayo Clinic in Rochester, Minn.
Other resource N0 Seborrheic Dermatitis Support: Apple Cider Vinegar with Motherhttp://health.groups.yahoo.com/group/seborrheic-dermatitis-support/ Seborrheic Dermatitis Support: Apple Cider Vinegar with MotherTop/Health/Conditions_and_Diseases/Skin_Disorders/Seborrheic_Dermatitis Support group for Seborrheic Dermatitis sufferers. Provides information on how to control SD with a healthy diet and by using Apple Cider Vinegar with Mother.
Other resource N1 Seborrehic Dermatitis FAQShttp://www.geocities.com/mall_lago/html/sebderm1.html Seborrehic Dermatitis FAQSTop/Health/Conditions_and_Diseases/Skin_Disorders/Seborrheic_Dermatitis Provides detailed information about Seborrheic Dermatitis and its treatments. Includes orthodox and alternative treatments.
Other resource N2 Dr. Greene - Wart Treatmenthttp://www.drgreene.com/000724.asp Dr. Greene - Wart TreatmentTop/Health/Conditions_and_Diseases/Skin_Disorders/Warts This detailed discussion explains what causes warts, why children get them, and which conventional and alternative treatments work.
Other resource N3 Emedicine - Nongenital Wartshttp://www.emedicine.com/derm/topic457.htm Emedicine - Nongenital WartsTop/Health/Conditions_and_Diseases/Skin_Disorders/Warts Professional medical reference details the diagnosis and treatment of the different types of warts.
Other resource N4 About - Wartshttp://dermatology.about.com/library/weekly/aa081902a.htm About - WartsTop/Health/Conditions_and_Diseases/Skin_Disorders/Warts A discussion of what warts look like and conventional treatment options.
Other resource N5 eMedicine Healthhttp://www.emedicinehealth.com/articles/20289-1.asp eMedicine HealthTop/Health/Conditions_and_Diseases/Skin_Disorders/Warts Consumer health resource center providing information on the causes, symptoms, and treatment of warts.
Other resource N6 Plantar-warts.comhttp://www.plantar-warts.com Plantar-warts.comTop/Health/Conditions_and_Diseases/Skin_Disorders/Warts Describes one person's battle (and victory over) painful plantar warts. Provides friendly advice and discusses various treatment methods.
Other resource N7 OMIM Entry for Adiposis Dolorosa (Dercum's Disease)http://www.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?103200 OMIM Entry for Adiposis Dolorosa (Dercum's Disease)Top/Health/Conditions_and_Diseases/Skin_Disorders/Dercum_Disease This OMIM (Online Mendelian Inheritance in Man) site uses some very limited research (2 papers dealing with 3 families) to conclude that this may be an inherited illness.
Other resource N8 National Library of Medicine PubMed Referenceshttp://Dercums_Data.tripod.com/ref-list.html National Library of Medicine PubMed ReferencesTop/Health/Conditions_and_Diseases/Skin_Disorders/Dercum_Disease This is a listing of the references to Dercum's Disease culled from Medline, the National Library of Medicine data base.  (aka Dercum Syndrome, Adiposis Dolorosa)
Other resource N9 DOIA - Adipositas Dolorosahttp://www.dermis.net/doia/diagnose.asp?zugr=d&lang=e&diagnr=214003&topic=i DOIA - Adipositas DolorosaTop/Health/Conditions_and_Diseases/Skin_Disorders/Dercum_Disease The DOIA, or Dermatological Online Image Atlas, is a listing of images relating to skin diseases. They do not have any pictures of Dercum's Disease, but they do ask for sufferers to fill out a questionnaire at the bottom of this page (the form doesn't always work properly, so save your answers elsewhere).
Other resource N10 Lipomahttp://www.thedoctorsdoctor.com/diseases/lipoma.htm LipomaTop/Health/Conditions_and_Diseases/Skin_Disorders/Dercum_Disease This site references some articles dealing with Dercum's Disease, and provides synopses of them.
Other resource N11 Lipoma Excision- March 1, 2002 - American Family Physicianhttp://www.aafp.org/afp/20020301/901.html Lipoma Excision- March 1, 2002 - American Family PhysicianTop/Health/Conditions_and_Diseases/Skin_Disorders/Dercum_Disease An article describing the excision of a lipoma. Dercum's in mentioned within the article.
Other resource N12 Italian Dercum Disease pagehttp://malattierare.pediatria.unipd.it/pubblicaMR/mr_dx_ing.asp?mr=102 Italian Dercum Disease pageTop/Health/Conditions_and_Diseases/Skin_Disorders/Dercum_Disease An Italian page discussing Dercum's Disease. This site is in Italian and English - this is the English reference.
Other resource N13 ILDS: ICD-10 - by Code [E88.210 - G71.110]http://www.ilds.org/icd10_list.php?VIEW=1&START_CODE=E88.2&START_EXT=10 ILDS: ICD-10 - by Code [E88.210 - G71.110]Top/Health/Conditions_and_Diseases/Skin_Disorders/Dercum_Disease This site contains a list of Dermatology disease codes that include Dercum's. Adiposis dolorosa is at the top of list: E88.210 (use to be E88200).
Other resource N14 Dercum's Syndrome, Lipomatosis Dolorosa-Adiposis Dolorosa and Morbus Dercum,http://www.dstressdoc.com/dercum's.htm Dercum's Syndrome, Lipomatosis Dolorosa-Adiposis Dolorosa and Morbus Dercum,Top/Health/Conditions_and_Diseases/Skin_Disorders/Dercum_Disease Generally describes the disease. The author thinks that it may respond to special diet.
Other resource N15 Brorson/Fagher Article on Dercum's Disease or Adiposis Dolorosahttp://members.tripod.com/dercums_data/brorson.html Brorson/Fagher Article on Dercum's Disease or Adiposis DolorosaTop/Health/Conditions_and_Diseases/Skin_Disorders/Dercum_Disease This is an excellent overview article on the disease characterized by painful lipomas (benign fatty tumors). Note that the first part of the article is a biography of Dr. Dercum.
Other resource N16 Nunnie's Story - Adiposis Dolorosa AKA Dercum's Diseasehttp://www.nunnie.com/dercums.html Nunnie's Story - Adiposis Dolorosa AKA Dercum's DiseaseTop/Health/Conditions_and_Diseases/Skin_Disorders/Dercum_Disease These are more extensive, and better edited diary entries of Nunnie, aka Pam Pole, on her road of discovery of Dercum's, and extend past the original posts which are replicated on http://dercums_data.tripod.com/nunnie1.html
Other resource N17 Shine Onhttp://www.angelfire.com/ab2/birthmarks Shine OnTop/Health/Conditions_and_Diseases/Skin_Disorders/Birthmarks Personal, yet informative site offering resources, feedback and support to others dealing with a similar situation.
Other resource N18 Hemangiomas and Vascular Anomalieshttp://www.birthmarks.us/ Hemangiomas and Vascular AnomaliesTop/Health/Conditions_and_Diseases/Skin_Disorders/Birthmarks Features detailed information on various birthmarks, hemangioma, arterial, and venous vascular malformations. Explains prognosis, treatment, and tests' options.
Other resource N19 My port wine stainhttp://www.myportwinestain.com My port wine stainTop/Health/Conditions_and_Diseases/Skin_Disorders/Birthmarks Information about port-wine stain and other birthmarks that present with skin lesions similar to port-wine stain. Useful links to other inbformative sites are provided.
Other resource N20 Rosacea Awareness Programhttp://www.rosaceainfo.com Rosacea Awareness ProgramTop/Health/Conditions_and_Diseases/Skin_Disorders/Rosacea Educational Program offering information regarding early detection and camouflage, as well as support and treatment options.
Other resource N21 Public Resourceshttp://www.aad.org/pamphlets/rosacea.html Public ResourcesTop/Health/Conditions_and_Diseases/Skin_Disorders/Rosacea Pamphlet information regarding diagnosis and treatment.
Other resource N22 About-Rosacea.Comhttp://www.about-rosacea.com/ About-Rosacea.ComTop/Health/Conditions_and_Diseases/Skin_Disorders/Rosacea Offers information about symptoms, treatment, lifestyle triggers research studies and links to other resources.
Other resource N23 Rosacea, More than Just a Red Facehttp://groups.yahoo.com/group/rosacea-support Rosacea, More than Just a Red FaceTop/Health/Conditions_and_Diseases/Skin_Disorders/Rosacea Yahoo group offering email support.
Other resource N24 NZ Dermnethttp://www.dermnetnz.org/index.html NZ DermnetTop/Health/Conditions_and_Diseases/Skin_Disorders/Rosacea Designed as a resource for patients, general practitioners and dermatologists. Includes photos and treatment information.
Other resource N25 Rosacea.comhttp://www.rosacea.com Rosacea.comTop/Health/Conditions_and_Diseases/Skin_Disorders/Rosacea Information regarding avoiding triggers, treatment options and resources.
Other resource N26 Yahoo! Groups - Rosacea-Curehttp://groups.yahoo.com/group/rosacea-cure Yahoo! Groups - Rosacea-CureTop/Health/Conditions_and_Diseases/Skin_Disorders/Rosacea Group raises awareness, concerning a new powerful treatment and cure for rosacea. Find joining instructions.
Other resource N27 Rosaceahttp://rosacea.ws.net.nz RosaceaTop/Health/Conditions_and_Diseases/Skin_Disorders/Rosacea Information on where to get treatment for rosacea in New Zealand.
Other resource N28 Rosacea Research and Development Institutehttp://www.irosacea.org Rosacea Research and Development InstituteTop/Health/Conditions_and_Diseases/Skin_Disorders/Rosacea RRDi is a member driven organization and invites rosaceans to become involved. Find forums, a chat, and publications.
Other resource N29 Rosacea Clinicshttp://www.rosacea.ca Rosacea ClinicsTop/Health/Conditions_and_Diseases/Skin_Disorders/Rosacea Provides information on rosacea, symptoms, skin care, topical and oral treatments and medications, and laser treatments.
Other resource N30 Tetracycline Hydrochloridehttp://ntp-server.niehs.nih.gov/htdocs/LT-studies/tr344.html Tetracycline HydrochlorideTop/Health/Conditions_and_Diseases/Skin_Disorders/Rosacea/Research Toxicology and carcinogenesis studies of tetracycline hydrochloride.
Other resource N31 European Hair Research Society (EHRS)http://www.ehrs.org European Hair Research Society (EHRS)Top/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss A non-profit organization dedicated to the advancement of hair research. Extensive links lists for dermatology clinics and articles about hair and hair loss.
Other resource N32 How Stuff Works: Hair Losshttp://www.howstuffworks.com/hair-replacement.htm How Stuff Works: Hair LossTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss Illustrated 13-part narrative explains what hair loss is and describes the various hair replacement options available today.
Other resource N33 Stop Hair Loss Nowhttp://www.stophairlossnow.co.uk Stop Hair Loss NowTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss Information on hair loss and thinning hair as well as treatment details including propecia and minoxidil.
Other resource N34 Healthology - Hair Losshttp://healthology.com/focus_index.asp?b=healthology&f=hairloss Healthology - Hair LossTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss Information on hairloss, balding, thinning, as well as treatments and new advances, articles and web casts.
Other resource N35 Hair Loss and Baldness Solutionshttp://www.newhairgrowth.com Hair Loss and Baldness SolutionsTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss Provides information about hair loss, includes product reviews and recommendations.
Other resource N36 Women's Hair Losshttp://beehive.thisishull.co.uk/hairloss Women's Hair LossTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss Support for women suffering with hair loss. Read the personal story of one women and learn about the possible causes.
Other resource N37 Hair Loss and Its Causeshttp://familydoctor.org/081.xml Hair Loss and Its CausesTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss American Academy of Family Physicians (AAFP). A description of possible reasons for hair loss, and treatment.
Other resource N38 No Gray Hairhttp://www.no-gray-hair.com No Gray HairTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss Information and advice on the treatment and prevention of hair loss and gray hair.
Other resource N39 Alopecia Areata Frequently Asked Questionshttp://npntserver.mcg.edu/html/alopecia/AlopeciaFAQ(part01).html Alopecia Areata Frequently Asked QuestionsTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss/Alopecia_Areata An extensive FAQ on alopecia areata from the Medical College of Georgia. Also access to an alopecia areata email support group list.
Other resource N40 Now and Beforehttp://www.scn.org/~dcv/alopecia.html Now and BeforeTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss/Alopecia_Areata Links, conferences, and treatments for alopecia areata.
Other resource N41 Wichita Alopecia Areata Support Grouphttp://home.swbell.net/roadbum1/waasg.html Wichita Alopecia Areata Support GroupTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss/Alopecia_Areata Includes general information on condition, meeting schedule, and calendar of events.
Other resource N42 National Alopecia Areata Foundationhttp://www.naaf.org/ National Alopecia Areata FoundationTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss/Alopecia_Areata A non profit organization dedicated to providing information about alopecia areata. With support groups in the USA and contacts with similar support groups worldwide.
Other resource N43 Alopecia Areata Support Communityhttp://groups.msn.com/AlopeciaAreataSupportCommunity/ Alopecia Areata Support CommunityTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss/Alopecia_Areata An online support community for all sufferers of alopecia areata, totalis, and universalis. Offers links, message boards, and chat.
Other resource N44 Hyperhidrosis Discussion Boardhttp://www.voy.com/14653/ Hyperhidrosis Discussion BoardTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis A discussion board for hyperhidrosis sufferers and facial blushers.
Other resource N45 Janet's Experience w/ Hyperhidrosishttp://www.geocities.com/janet_7419 Janet's Experience w/ HyperhidrosisTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis An upbeat perspective for women coping with excessive underarm perspiration (hyperhidrosis). Treatment options, experiences, letters, links, and more.
Other resource N46 Yahoo! Hyperhidrosis Mailing Listhttp://health.groups.yahoo.com/group/hyperhydrosis/ Yahoo! Hyperhidrosis Mailing ListTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis Mailing list for hyperhidrosis and facial blushing.
Other resource N47 The Center for Hyperhidrosishttp://sweaty-palms.com The Center for HyperhidrosisTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Situated in Los Angeles the procedure, known as Endoscopic Thoracic Sympathectomy, is performed to eliminate sweaty palms, sweaty hands, and facial blushing.
Other resource N48 Farshad Malekmehr, M.D.http://www.endsweat.com Farshad Malekmehr, M.D.Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Minimally invasive surgery, ETS (endoscopic thoracic sympathectomy) to treat sweaty palms, sweaty face and facial blushing. Offices in Beverly Hills, Glendale, and Los Angeles.
Other resource N49 Clinic at The Nuffield Hospital, Ipswichhttp://www.btinternet.com/~webwizards/sweatfree Clinic at The Nuffield Hospital, IpswichTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Offers information about these conditions and their treatment together with contact details of two specialist consultant surgeons who offer a range of treatment options for sufferers.
Other resource N50 Minnesota Clinichttp://www.stop-perspiration.com/ Minnesota ClinicTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Botulin Clinic, eden Prairie, Minnesota, experienced physicians who pioneered botulin (BOTOX?)injections as a non-surgical treatment for excessive underarm sweating Hyperhidrosis.
Other resource N51 Columbia University Hyperhidrosis Clinichttp://www.hyperhidrosiscumc.com/ Columbia University Hyperhidrosis ClinicTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Treating patients suffering from excessive sweating (hyperhidrosis) and facial blushing in the New York area.
Other resource N52 Center For The Cure Of Sweaty Palmshttp://www.curesweatypalms.com Center For The Cure Of Sweaty PalmsTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Excessive sweaty palms is a condition refer to as palmar hyperhidrosis. The only long lasting, effective treatment is by thoracoscopic sympathectomy, which can be performed as an outpatient, same day surgery. Based in Santa Ana, California.
Other resource N53 Dr. Jiri A. Konecny, D.O.http://controlexcessivesweating.com Dr. Jiri A. Konecny, D.O.Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Specializes in minimally invasive prodedures to control hyperhidrosis. Based in San Jose, California.
Other resource N54 Newport Beach Hyperhidrosis Clinichttp://www.hyperhidrosis-california.com Newport Beach Hyperhidrosis ClinicTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Leading hyperhidrosis clinic in Newport Beach, California. Comprehensive website provides information on hyperhidrosis, sweaty palms or feet, excessive sweating and perspiration. Also gives information on surgical treatment with Endoscopic Thoracic Sympathectomy.
Other resource N55 British Institutute for Blushing and Sweatinghttp://www.eblushing.com/ British Institutute for Blushing and SweatingTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Explains the conditions and pharmaceutical and operative treatment. Part of The Hospital of St John and St Elizabeth in London.
Other resource N56 David's Place on the Web for HS Sufferershttp://www.hidradenitis-suppurativa.org/ David's Place on the Web for HS SufferersTop/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa Features research, resources, links, photos, and David's personal story.
Other resource N57 Hidradenitis Suppurativa Support Group - UK and Irelandhttp://www.angelfire.com/amiga/hssg Hidradenitis Suppurativa Support Group - UK and IrelandTop/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa UK-based member of HIDE International. Includes FAQs, care and treatment details, information about UK disability benefits and help options, and message board.
Other resource N58 Wendy's Homehttp://home.earthlink.net/~aromalady/ Wendy's HomeTop/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa Features 2002 rally information and photos, story of fellow sufferer Tammy Ferris, articles, and related links.
Other resource N59 Hidradenitis Suppurativahttp://mysite.freeserve.com/hs_sucks/index.htm Hidradenitis SuppurativaTop/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa An illustrated personal view of living with HS - with sarcastic pain control. Contains adult warning on front page.
Other resource N60 Dr. Greene's HouseCallshttp://www.drgreene.com/html/21614.html Dr. Greene's HouseCallsTop/Health/Conditions_and_Diseases/Genetic_Disorders A discussion of medical information on trisomy, trisomy 13, genetics, and his own personal family experience with this rare disease.
Other resource N61 Gene Clinicshttp://www.geneclinics.org Gene ClinicsTop/Health/Conditions_and_Diseases/Genetic_Disorders Medical genetics knowledge base. NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management and genetic counseling of patients.
Other resource N62 Genetic Disorders: The Links to Diethttp://www.ctds.info/genetic_disorders.html Genetic Disorders: The Links to DietTop/Health/Conditions_and_Diseases/Genetic_Disorders Explores the role of diet in birth defects and genetic disorders. Includes nutritional links to disorders such as Down syndrome, cerebral palsy, homocystinuria, and cystic fibrosis.
Other resource N63 Blepharophimosis Ptosis Epicanthus Inversus Syndromehttp://freespace.virgin.net/andy.bowles/ Blepharophimosis Ptosis Epicanthus Inversus SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders The BPEI (BPES) Family Network encourages people to get in touch with each other, share information and ask questions. Explanation of this rare eye disorder.
Other resource N64 A3243G.comhttp://www.a3243g.com/home.asp A3243G.comTop/Health/Conditions_and_Diseases/Genetic_Disorders Information about a gene defect which causes a variety of diseases. Find a discussion forum and an newsletter.
Other resource N65 NORD: Glutaricaciduria Ihttp://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Glutaricaciduria%20I NORD: Glutaricaciduria ITop/Health/Conditions_and_Diseases/Genetic_Disorders/Glutaricaciduria Offers alternate names, a general discussion and resources.
Other resource N66 NORD: Craniofrontonasal Dysplasiahttp://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Craniofrontonasal%20Dysplasia NORD: Craniofrontonasal DysplasiaTop/Health/Conditions_and_Diseases/Genetic_Disorders/Craniofrontonasal_Dysplasia Offers a general discussion and resources.
Other resource N67 OMIM: National Center for Biotechnology Informationhttp://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?200110 OMIM: National Center for Biotechnology InformationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Ablepharon-Macrostomia_Syndrome A clinical synopsis for Ablepharon-Macrostomia syndrome.
Other resource N68 NORD: Aase Syndromehttp://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Aase%20Syndrome NORD: Aase SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Aase_Syndrome A look at the alternate names, a general discussion and resources.
Other resource N69 OMIM: National Center for Biotechnology Informationhttp://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?100050.cs OMIM: National Center for Biotechnology InformationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Aarskog_Syndrome Clinical synopsis for Aarskog syndrome.
Other resource N70 Fragile X Association of Southern Californiahttp://www.fraxsocal.org Fragile X Association of Southern CaliforniaTop/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation.
Other resource N71 Fragile X Syndromehttp://home.coqui.net/myrna/fragile.htm Fragile X SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome Single page on recognition of the condition in young children.
Other resource N72 Conquer Fragile X, Inc.http://www.conquerfragilex.org Conquer Fragile X, Inc.Top/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome Creating a virtual research center in Israel to find a cure.
Other resource N73 Fact Sheets for Health Professionals: Fragile X Syndromehttp://hnb.dhs.vic.gov.au/commcare/yafs_yf.nsf/bced7550634b825a4a25676c00482e1b/1d5baac3ccee72744a256744000645a3?OpenDocument Fact Sheets for Health Professionals: Fragile X SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome From the Victorian Government, Australia.
Other resource N74 The National Fragile X Foundationhttp://www.fragilex.org/ The National Fragile X FoundationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome Features information about the disease, its teatment, and inheritance.
Other resource N75 Pediatric Oncalhttp://www.pediatriconcall.com/fordoctor/diseasesandcondition/fragile_x.asp Pediatric OncalTop/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations.
Other resource N76 Williams Syndrome and Prader-Willi Syndromehttp://info.med.yale.edu/chldstdy/wspws Williams Syndrome and Prader-Willi SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome Diagnostic assessment, selected treatment services and opportunities to participate in research from the Yale University Child Study Center.
Other resource N77 Prader-Willi Syndrome - Suite101http://www.suite101.com/welcome.cfm/prader_willi_syndrome Prader-Willi Syndrome - Suite101Top/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome A forum to provide a support base for PWS without having to join one of the national or international associations, and to make people more aware of PWS.
Other resource N78 The New Jersey Chapter of the Prader-Willi Syndrome Associationhttp://www.pwsausa.org/nj/ The New Jersey Chapter of the Prader-Willi Syndrome AssociationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome Includes news, important dates, fund raising, maps and links.
Other resource N79 PWS Noteshttp://www.pwsnotes.org/ PWS NotesTop/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome Designed to provide useful background on Prader-Willi Syndrome (PWS) for parents and to organize medical information that may be helpful for future research directions.
Other resource N80 Down Syndromehttp://www.nas.com/downsyn/ Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome A listing of organizations worldwide, support groups, and toy catalogs for children of special needs.

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