NORD : Williams Syndrome

site URL - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Williams%20Syndrome

Site description: Offers alternative names, a general discussion and resources.




Topic: Top/Health/Conditions_and_Diseases/Genetic_Disorders/Williams_Syndrome

LINKURI & TITLEDESCRIPTION & TOPIC
Previous 10Xeroderma Pigmentosumhttp://digilander.libero.it/camdic/XERODERMA%20PIGMENTOSUM.html Xeroderma PigmentosumTop/Health/Conditions_and_Diseases/Genetic_Disorders/Xeroderma_Pigmentosum An article about this disorder in English and Italian along with some images.
PreviousA Music Camp for Those Afflicted but Gifted, Toohttp://nytimes.com/2002/08/26/national/26CAMP.html A Music Camp for Those Afflicted but Gifted, TooTop/Health/Conditions_and_Diseases/Genetic_Disorders/Williams_Syndrome New York Times feature article about the Belvoir Terrace summer music camp program for people with Williams syndrome.
Random 1Researchers May Have Pinpointed Virus Behind Mystery Ailmenthttp://www.canada.com/health/story.html?id=B0B6FDDB-959B-472B-A8F0-51285FCD47FC Researchers May Have Pinpointed Virus Behind Mystery AilmentTop/Health/Conditions_and_Diseases/Respiratory_Disorders/SARS/News_and_Media Update on the viral research into the etiology of SARS. [Canadian Press]
Random 2Only Condomshttp://www.only-condoms.co.uk Only CondomsTop/Shopping/Health/Reproduction_and_Sexuality/Birth_Control/Condoms Offers products for men and women.
Random 3Wilson's Drug Storehttp://www.wilsonsdrugstore.com/ Wilson's Drug StoreTop/Regional/North_America/United_States/Maine/Localities/B/Bath/Business_and_Economy A small town drugstore on Front Street in Bath.
Random 4Genetic Disorders: The Links to Diethttp://www.ctds.info/genetic_disorders.html Genetic Disorders: The Links to DietTop/Health/Conditions_and_Diseases/Genetic_Disorders Explores the role of diet in birth defects and genetic disorders. Includes nutritional links to disorders such as Down syndrome, cerebral palsy, homocystinuria, and cystic fibrosis.
Random 5Electra Medical Technologyhttp://www.electramedicaltechnology.com/ Electra Medical TechnologyTop/Regional/North_America/United_States/Iowa/Localities/J/Johnston Physical therapy equipment for sale to professionals and patients. List of equipment, company profile, contact information.
NextDept. of Dermatology - University of Iowa College of Medicinehttp://tray.dermatology.uiowa.edu/Alagil01.htm Dept. of Dermatology - University of Iowa College of MedicineTop/Health/Conditions_and_Diseases/Genetic_Disorders/Alagille_Syndrome Images of Alagille's Syndrome.
Next 10Mamas Healthhttp://www.mamashealth.com/cfibrosis.asp Mamas HealthTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Find out what Cystic Fibrosis is, the symptoms and the causes.
Random 1Ballet Northhttp://www.balletnorth.com/ Ballet NorthTop/Arts/Performing_Arts/Dance/Ballet/Companies/North_America/United_States/Regional_or_Civic Ballet North (Gladstone MO) is the Northland's original ballet company, having put on a full range of complete ballets and conducted extensive school tours for all Northland area elementary and junior high schools over the last 12 years. The goal of Ballet North is to put real ballet within easy grasp of all residents of the Northland
Random 4Enfleuragehttp://www.enfleurage.com EnfleurageTop/Shopping/Health/Alternative/Aromatherapy/Incense/Japanese Enfleurage is a aromatherapy store in New York City, Carries Shoyeido incense.
Random 4Lydall Corphttp://www.lydall.com/ Lydall CorpTop/Regional/North_America/United_States/Connecticut/Localities/M/Manchester/Business_and_Economy Manufacturer of engineered nonwovens that concentrate on air and liquid filtration, thermal barrier application, electrical insulation, battery separators and materials handling. The company also produces medical devices, thermal systems, aerospace, marine and automotive products.
Next 70Jake's Cystic Fibrosis Pagehttp://www.angelfire.com/mo2/cf/index.html Jake's Cystic Fibrosis PageTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Cystic Fibrosis Page with the CFAM newsletter.
Previous 70Hawkeye Area Down Syndrome Associationhttp://www.hadsa.org Hawkeye Area Down Syndrome AssociationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations The organizations' goals, and also how to get on the MR Waiver List.
Next 170Cystic Fibrosis: Gene to Producthttp://wsrv.clas.virginia.edu/~rjh9u/cfmap.html Cystic Fibrosis: Gene to ProductTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Research The most frequently occurring mutation, delta-F508, is a single amino acid deletion in exon 10 which codes for a portion of the first nucleotide binding function (NBF-1) domain of the cystic fibrosis transmembrane conductance regulation protein. A list of other CF mutations is available.
Previous 170NORD: Ablepharon Macrostomia Syndromehttp://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ablepharon%20Macrostomia%20Syndrome NORD: Ablepharon Macrostomia SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Ablepharon-Macrostomia_Syndrome A look at the alternate name, a general discussion and further resources.
Next 270
Previous 270Healthology - Hair Losshttp://healthology.com/focus_index.asp?b=healthology&f=hairloss Healthology - Hair LossTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss Information on hairloss, balding, thinning, as well as treatments and new advances, articles and web casts.
Other resource N0 Morphollica Hair Loss Information Centerhttp://www.morphollica.com Morphollica Hair Loss Information CenterTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss Includes treatment descriptions, news, product reviews, forums and the author's own commentary on hair loss.
Other resource N1 Unbalding: Hair Today, More Tomorrow?http://www.acsh.org/healthissues/newsID.773/healthissue_detail.asp Unbalding: Hair Today, More Tomorrow?Top/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss by Susan L. Narod. Hair growth products overview, causes of hair loss, hair transplant surgery.
Other resource N2 Delaware Valley Alopecia Support Grouphttp://members.tripod.com/alopecia Delaware Valley Alopecia Support GroupTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss/Alopecia_Areata Support and ideas for those with the condition of alopecia areata, alopecia totalis, and alopecia universalis.
Other resource N3 Alopecia Areata: Clinical Features and Treatment Options in the 90'shttp://www.derm.ubc.ca/skincare/hair/aa.html Alopecia Areata: Clinical Features and Treatment Options in the 90'sTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss/Alopecia_Areata A review by J. Shapiro MD including pictures of individuals treated with Diphencyprone.
Other resource N4 American Academy of Dermatologyhttp://npntserver.mcg.edu/html/alopecia/documents/WhitePaper.html American Academy of DermatologyTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss/Alopecia_Areata Alopecia areata, its symptoms, causes, research and treatments.
Other resource N5 Harry's Alopecia Areata Pagehttp://home.wanadoo.nl/alopecia/ Harry's Alopecia Areata PageTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss/Alopecia_Areata Personal page from the Netherlands. Email list and chat about alopecia areata.
Other resource N6 Alopecia Onlinehttp://www.alopeciaonline.org.uk Alopecia OnlineTop/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss/Alopecia_Areata Provides information, advice and support for people with Alopecia Areata, Alopecia Totalis and Alopecia Universalis.
Other resource N7 General Overview and Clinical Review of Hyperhidrosishttp://www.parsec.it/summit/hyper1e.htm General Overview and Clinical Review of HyperhidrosisTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis An overview, including classification, symptomolgy and treatments of excessive sweating.
Other resource N8 Clinical Hyperhidrosis Researchhttp://sympathectomy.info Clinical Hyperhidrosis ResearchTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis Informations on the treatment of hyperhidrosis with sympathectomy. FAQ about ETS and its efficacy. Clinical research of Giudiceandrea Alberto.
Other resource N9 Sweating.iehttp://www.sweating.ie/ Sweating.ieTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis This Irish site describes the process of normal sweating, and the problems caused by excessive sweating, or hyperhidrosis. It advises treatment methods.
Other resource N10 Neurosurgical Medical Clinichttp://sd-neurosurgeon.com/ Neurosurgical Medical ClinicTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Information about this clinic as well as introductions to a variety of neurological ailments, including Hyperhydrosis. Situated in San Diego, California.
Other resource N11 Physician Referral Network for Hyperhidrosishttp://www.surgicalteam.com/ Physician Referral Network for HyperhidrosisTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics The Global Network of Leading ETS Surgeons from Europe and Asia, North and South America. Treatment for sweating hands, face and facial blushing. Excessive perspiration causes.
Other resource N12 CSANT - Hyperhidrosis Centerhttp://www.hyperhidrosis-center.com/ CSANT - Hyperhidrosis CenterTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Includes details about the center, the procedure, the condition and a Q&A. Lists the locations in Texas, office hours and contact details.
Other resource N13 Northwood UK Based Practioner - Dr. Trevor Paeshttp://www.sympathectomy.co.uk Northwood UK Based Practioner - Dr. Trevor PaesTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics A UK resource site for the surgical treatment of palmar (hand), axillary (armpit) and facial hyperhidrosis (over-sweating) and facial blushing. Northwood UK Based Practioner - Dr. Trevor Paes
Other resource N14 Buffalo NY Hyperhidrosis Clinichttp://www.DiagnosisSweatyPalms.com Buffalo NY Hyperhidrosis ClinicTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Diagnosis Sweaty Palms.com: A hyperhidrosis information site. Learn about the disease, treatment options and more. Has discussion forums and news. Based in Buffalo NY.
Other resource N15 The Center for Hyperhidrosishttp://www.sweaty-armpit.com The Center for HyperhidrosisTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Excessive armpit sweating information and surgical treatment from Dr. Alon Pnini. Based in Los Angeles, California.
Other resource N16 Dr. David Edelmanhttp://www.sweatstop.com/ Dr. David EdelmanTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Tavenier, FL based clinc. Hospital privileges at Mariner's Hospital. Surgical treatment for handsweating and hyperhidrosis using the latest, most advanced techniques.
Other resource N17 Robert Szarnicki, M.D. Hyperhidrosis Clinichttp://www.veins-szarnicki.com Robert Szarnicki, M.D. Hyperhidrosis ClinicTop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics hyperhidrosis, veins, sweaty palms, varicose veins, spider veins, venous ulceration, stroke and peripheral vascular disease have been successfully treated by Dr. Robert Szarnicki, a Board Certified Cardiovascular Surgeon.
Other resource N18 Hyperhidrosis USAhttp://www.hyperhidrosis-usa.com Hyperhidrosis USATop/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Treatment for the hands, face, and underarms, as well as management of blushing and Raynaud's disease.
Other resource N19 HS-USA.orghttp://www.hs-usa.org HS-USA.orgTop/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa A nonprofit public charity dedicated to finding a solution to this disease. Features disease information and resources. Also includes an archive of the former hideintl.org site.
Other resource N20 UK Hidradenitis Suppurativa Supporthttp://www.btinternet.com/~little_willow/barricade/hsmf.html UK Hidradenitis Suppurativa SupportTop/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa Includes basic bactereological facts, self help hints, and articles from the UK press.
Other resource N21 MSN Communities: Hidradenitis Support Clubhttp://groups.msn.com/HidradenitisSupportClub MSN Communities: Hidradenitis Support ClubTop/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa Message board for sufferers of this disease.
Other resource N22 Yahoo! Groups: Healing HS With God Given Nutrientshttp://health.groups.yahoo.com/group/HealingHSwithGodgivennutrients/ Yahoo! Groups: Healing HS With God Given NutrientsTop/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa A discussion for the lifestyle changes and book; A Naturally Slim Reflection which deals with the healing of Hidradenitis Suppurativa with natural and holistic methods.
Other resource N23 Hidradenitis Suppurativahttp://www.hidradenitissuppurativa.net Hidradenitis SuppurativaTop/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa Dedicated to bring about awareness and understanding of HS; an organization dedicated to providing a service to the sufferers of this disease. From Athenea, Inc.
Other resource N24 Primary Ciliary Dyskinesiahttp://www.p-c-d.org/en/ Primary Ciliary DyskinesiaTop/Health/Conditions_and_Diseases/Genetic_Disorders Information on a rare congenital disease.
Other resource N25 XLH Networkhttp://www.xlhnetwork.org XLH NetworkTop/Health/Conditions_and_Diseases/Genetic_Disorders Patient support group for XLH, a genetic condition also known as X-Linked Hypophosphatemia, X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets.
Other resource N26 Your Genes, Your Healthhttp://www.ygyh.org Your Genes, Your HealthTop/Health/Conditions_and_Diseases/Genetic_Disorders The DNA Learning Center's multimedia guide to genetic disorders. Complete in depth articles about each disease listed.
Other resource N27 The Center For Jewish Genetics Disordershttp://www.jewishgeneticscenter.org/ The Center For Jewish Genetics DisordersTop/Health/Conditions_and_Diseases/Genetic_Disorders A critical effort to provide public and professional education for many of the identified Jewish genetic disorders. Find info on screening and counseling, advocacy, events and community resources.
Other resource N28 IOGA: International Organization of Glutaric Acidemiahttp://www.glutaricacidemia.org/ IOGA: International Organization of Glutaric AcidemiaTop/Health/Conditions_and_Diseases/Genetic_Disorders/Glutaricaciduria Information about the organization, their services and about the disease. Including events, newsletter, FAQs, message board and links.
Other resource N29 OMIM: National Center for Biotechnology Informationhttp://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?304110 OMIM: National Center for Biotechnology InformationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Craniofrontonasal_Dysplasia A clinical synopsis of Craniofrontonasal Dysplasia.
Other resource N30 Human Genome Mapping Projecthttp://www.hgmp.mrc.ac.uk/dhmhd-bin/hum-look-up?1084 Human Genome Mapping ProjectTop/Health/Conditions_and_Diseases/Genetic_Disorders/Ablepharon-Macrostomia_Syndrome A list of features for Ablepharon-Macrostomia Syndrome.
Other resource N31 Adam.com: An Overviewhttp://www.nlm.nih.gov/medlineplus/ency/article/001662.htm Adam.com: An OverviewTop/Health/Conditions_and_Diseases/Genetic_Disorders/Aase_Syndrome A definition of Aase syndrome with a brief discussion on causes, incidence and risk factors.
Other resource N32 Human Genome Mapping Projecthttp://www.hgmp.mrc.ac.uk/dhmhd-bin/hum-look-up?2 Human Genome Mapping ProjectTop/Health/Conditions_and_Diseases/Genetic_Disorders/Aarskog_Syndrome A list of features for Aarskog syndrome.
Other resource N33 NORD: Aarskog Syndromehttp://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Aarskog%20Syndrome NORD: Aarskog SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Aarskog_Syndrome A look at the alternate names, a general discussion and resources.
Other resource N34 Fragile X Syndrome - Diagnostic and Carrier Testinghttp://www.faseb.org/genetics/acmg/pol-16.htm Fragile X Syndrome - Diagnostic and Carrier TestingTop/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome A Policy Statement from the American College of Medical Genetics.
Other resource N35 Carolina Fragile X Projecthttp://www.fpg.unc.edu/~fx/ Carolina Fragile X ProjectTop/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them.
Other resource N36 Online Support Grouphttp://groups.yahoo.com/group/fragilex/ Online Support GroupTop/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome Support group for Family's who are dealing with Fragile X Syndrome.
Other resource N37 Fragile X Association of Australiahttp://www.fragilex.org.au/ Fragile X Association of AustraliaTop/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome Information on this disease, medical aspects, education, references, contacts and what's new in Australia
Other resource N38 Fragile X Research Foundation of Canadahttp://www.fragile-x.ca/ Fragile X Research Foundation of CanadaTop/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join.
Other resource N39 Prader-Willi Syndrome Association of Victoria (Australia)http://www.pws.asn.au Prader-Willi Syndrome Association of Victoria (Australia)Top/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome Includes details about the organization, a diagnosis/infant guide, a general guide, members stories and links.
Other resource N40 Ontario Prader-Willi Syndrome Associationhttp://members.attcanada.ca/~opwsa/ Ontario Prader-Willi Syndrome AssociationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome OPWSA provides support and information to all those interested in finding out about this syndrome. A special emphasis on Canadian content.
Other resource N41 Gretton Homeshttp://www.gretton-homes.co.uk/ Gretton HomesTop/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome Information about the organization that offers residential care for people with Prader-Willi Syndrome.
Other resource N42 Prader-Willi Syndrome Association of South Africahttp://www.praderwilli.org.za Prader-Willi Syndrome Association of South AfricaTop/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome Informative regarding PWS, its symptoms, causes, prevention and treatment.
Other resource N43 Uno Mas Down Syndrome Onlinehttp://www.unomas21.com/ Uno Mas Down Syndrome OnlineTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Supportive online group of parents & friends of kids with Down Syndrome. Message Boards and Personal Stories. Hundreds of photos.
Other resource N44 Down Syndrome: For New Parentshttp://www.downsyn.com Down Syndrome: For New ParentsTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Dedicated to providing parents with information about Down syndrome.
Other resource N45 [HealthBoards.com] Down Syndrome Message Boardhttp://www.healthboards.com/down-syndrome/ [HealthBoards.com] Down Syndrome Message BoardTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome The archives of this board.
Other resource N46 Jesus and Downshttp://members3.boardhost.com/DownsAndJesus Jesus and DownsTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Message board to connect Christian parents who have a loved one with Down Syndrome.
Other resource N47 Health Care for Adults With Down Syndromehttp://healthlink.mcw.edu/article/1001820316.html Health Care for Adults With Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Recommendations on their specific health maintenance needs.
Other resource N48 Yahoo! Groups : Christian-DS-Parentshttp://groups.yahoo.com/group/Christian-DS-Parents Yahoo! Groups : Christian-DS-ParentsTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Mailing list for parents of Down Syndrome children who are practicing Christians.
Other resource N49 Articles on Communicationhttp://www.jamesdmacdonald.org/Articles/DownSyndrome.html Articles on CommunicationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome How parents can teach their children with Down Syndrome to talk and communicate effectively.
Other resource N50 Positively Downhttp://www.btinternet.com/~suer/pd Positively DownTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Parent led resource, support and social group for families of children with Down syndrome in and around London Borough of Richmond, UK
Other resource N51 Duo - The Filmhttp://www.duo.agprods.com Duo - The FilmTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Duo is the first film to star a boy with Down syndrome, Stephane Ginnsz. The site features a trailer and info on Duo.
Other resource N52 Cincinnati Children's Hospital Medical Centerhttp://www.cincinnatichildrens.org/health/heart-encyclopedia/disease/syndrome/down.htm Cincinnati Children's Hospital Medical CenterTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Page provides information about Down Syndrome (Trisomy 21) and its characteristics, problems, signs, treatment, prognosis information and pediatric specialists.
Other resource N53 The Possible Dream Foundation, Inc.http://possibledream.org The Possible Dream Foundation, Inc.Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Camille and Dr. Michael Geraldi provide long and short term respite and medical care for Down Syndrome children and adults in non-sectarian group homes. Find a newsletter, events and trips, photos, news and contact details.
Other resource N54 Dr. Davehttp://www.tri21.org/DrDave/ Dr. DaveTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Nutrition Includes two slide shows, one on the biochemical aspects of Down Syndrome, and the other on Targeted Nutritional Intervention.
Other resource N55 The Ragans Targeted Nutritional Intervention Sitehttp://members.aol.com/TheRagans The Ragans Targeted Nutritional Intervention SiteTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Nutrition Has more than ten parent testamonials on what TNI did for their child. Also included is a frequently asked questions page.
Other resource N56 National Association for Down Syndromehttp://www.nads.org National Association for Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations In Chicago. Includes a bulletin board.
Other resource N57 Down Syndrome Parent Networkhttp://www.dspn.org/ Down Syndrome Parent NetworkTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Includes a list of service providers, also books to consider reading.
Other resource N58 Down Syndrome Research Foundation and Resource Centrehttp://www.dsrf.org Down Syndrome Research Foundation and Resource CentreTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Articles on psychological, social, and physical development, also on health issues. Research project reports and summaries.
Other resource N59 The Down Syndrome Educational Trusthttp://www.downsed.org/ The Down Syndrome Educational TrustTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Based in the United Kingdom. Working to advance the development and education of individuals with Down syndrome
Other resource N60 Down Syndrome Research Foundationhttp://www.dsrf.co.uk Down Syndrome Research FoundationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Information on the Antioxidant Research Project and raising funds for it. Includes news, health issues, research, events, education, alternate therapies and contact details.
Other resource N61 Oshkosh Down Syndrome Grouphttp://www.oshkoshsupportgroup.homestead.com/tiffany.html Oshkosh Down Syndrome GroupTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations For parents of a down syndrome child, located in Oshkosh, Wisconsin. Includes newsletter, links and a photograph gallery.
Other resource N62 DS Network, Inc.http://www.dsnetworkaz.org DS Network, Inc.Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Includes bulletin board and events calendar.
Other resource N63 Ups & Downs Calgary Down Syndrome Associationhttp://www.upsdowns.org Ups & Downs Calgary Down Syndrome AssociationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Includes newsletters and discussion.
Other resource N64 Hawkeye Area Down Syndrome Associationhttp://www.hadsa.org Hawkeye Area Down Syndrome AssociationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations The organizations' goals, and also how to get on the MR Waiver List.
Other resource N65 Down Syndrome in the Broward County Communityhttp://www.dsbroward.org/ Down Syndrome in the Broward County CommunityTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Local information for parents and families with children who have Down syndrome. Specifically in the Broward County area of the State of Florida.
Other resource N66 Connecticut Down Syndrome Congresshttp://www.ctdownsyndrome.org Connecticut Down Syndrome CongressTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Dedicated to improving the lives of persons with Down syndrome. Includes information on scholarships, and resources.
Other resource N67 Canadian Down Syndrome Society (CDSS)http://www.cdss.ca/Home.html Canadian Down Syndrome Society (CDSS)Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Includes their newsletter and their position statements.
Other resource N68 Down Syndrome Association of Western Australiahttp://www.dsawa.asn.au Down Syndrome Association of Western AustraliaTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Works to support the community to develop the potential of people with Down syndrome (Trisomy 21) to live a valued life.
Other resource N69 Riverbend Down Syndrome Parent Support Grouphttp://www.altonweb.com/cs/downsyndrome/ Riverbend Down Syndrome Parent Support GroupTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Resources and abstracts for parents and professionals on communication, early intervention, therapies, medicine, literacy, medical issues, mathematics, vitamins and other supplements.
Other resource N70 Home of the Baumli'shttp://www.geocities.com/HotSprings/Falls/9103 Home of the Baumli'sTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Stories about the Baumli's children, one of whom has Spina Bifida and one who has Down Syndrome.
Other resource N71 Fabiohttp://www.down-syndrom.ch/Fabio_E.htm FabioTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Fabio's story, pictures, poems and information on Down Syndrome, as well as links and addresses of organizations and parents groups in the U.S. and worldwide.
Other resource N72 Down Around Townhttp://www.geocities.com/downtownmom/DownAroundTown.html Down Around TownTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Has pictures of Ashley at the Special Olympics, also her with her sister.
Other resource N73 Jonathan's Pagehttp://home.planet.nl/~honingby Jonathan's PageTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Information about his daily life, his school, his hobbies, his family and friends.
Other resource N74 Logan's Linkhttp://www.c-magic.com/logan/ Logan's LinkTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Logan's story, Down Syndrome links, and picture galleries.
Other resource N75 I'm Down's Syndrome. But I know how to Type!http://www.geocities.com/Heartland/Hills/7835/ I'm Down's Syndrome. But I know how to Type!Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Karen Hicks tells about her life and interests.
Other resource N76 Regehr Family Down Syndrome Resourcehttp://www.mts.net/~jlregeh1/ds/ Regehr Family Down Syndrome ResourceTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Providing simple information about Down Syndrome.
Other resource N77 My Name is Georgiahttp://www.motherandchild.com.au/georgia/index.htm My Name is GeorgiaTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages The story of Georgia Arnel in Queensland, Australia.
Other resource N78 The Turner's Syndrome Society of the UShttp://www.turner-syndrome-us.org/ The Turner's Syndrome Society of the USTop/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome Learn about this disease, find medical information, order publications, share experiences, see some TS kids, and get screening information for TS.
Other resource N79 Pediatric Oncallhttp://www.pediatriconcall.com/forpatients/CommonChild/turner_syndrome.asp Pediatric OncallTop/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome Information about approach to a child with Turner's syndrome.
Other resource N80 Turner Syndrome Clinical Trialshttp://www.turner-syndrome-clinical-trials.com Turner Syndrome Clinical TrialsTop/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome Explains the importance of participating in Turner Syndrome clinical trials and how even participants who take placebos contribute and benefit from volunteering.

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