site URL - http://www.liverkids.org.au/alagille.htm
Site description: A description, the diagnosis, symptoms, treatment and complications of Alagille syndrome.
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| LINK | URI & TITLE | DESCRIPTION & TOPIC | |
| Previous 10 | National Library of Medicine | http://www.nlm.nih.gov/cgi/jablonski/syndrome_cgi?term=Williams+syndrome+(WMS,+WS)&field=name National Library of Medicine | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Williams_Syndrome A list of synonyms of Williams syndrome, a summary and major features. |
| Previous | Alagille Syndrome | http://www.cincinnatichildrens.org/svc/prog/liver/diseases/alagilles-syndrome.htm Alagille Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Alagille_Syndrome A rare inherited disorder in which there are fewer than normal bile ducts in the liver. Information by Cincinnati Children's Hospital Medical Center. |
| Random 1 | Trowbridge & Trowbridge | http://www.trowbridgeandtrowbridge.com/ Trowbridge & Trowbridge | Top/Business/Financial_Services/Credit_and_Collection/Collection_Services Collection agency with expertise in consumer, medical and business debt. |
| Random 2 | Shaily Engineering Plastics Limited | http://www.shaily.com/ Shaily Engineering Plastics Limited | Top/Business/Chemicals/Polymers/Processing_Methods/Molding/Injection_Molding Injection modular molded plastic components for the electronics, electrical, medical, automotive, and telecommunications industries. |
| Random 3 | Lifeboat Services Web Ring | http://members.tripod.com/~thelifeboat0/public_html/tripodwebringlifeboatsandcoastguards_nn4.html Lifeboat Services Web Ring | Top/Health/Public_Health_and_Safety/Emergency_Services/Search_and_Rescue/Water_Rescue/Coast_Guards_and_Rescue/Lifeboat_Stations Has links to numerous UK Lifeboat sites. |
| Random 4 | National Latino Behavioral Health Association | http://nlbha.org/ National Latino Behavioral Health Association | Top/Regional/North_America/United_States/Colorado/Localities/B/Berthoud National leadership for the advancement of Latino behavioral health and mental health services. Featuring policy issues, news alerts, event schedules, and resources. |
| Random 5 | Braille Bug | http://www.afb.org/braillebug Braille Bug | Top/Health/Conditions_and_Diseases/Eye_Disorders/Blindness/Braille Designed for children in grades two through six. It features an assortment of games and activities that are both fun and educational. |
| Next | CF Advantage | http://wsrv.clas.virginia.edu/~rjh9u/cysfib.html CF Advantage | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis The mutation that causes deadly cystic fibrosis has survived for 52,000 years - perhaps because it offers protection against diarrhea. By Josie Clausiusz |
| Next 10 | The Breathing Room | http://www.thebreathingroom.org The Breathing Room | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Guidance about the art of living with cystic fibrosis. |
| Random 1 | Saminas Bellydance | http://www.saminasbellydance.com/ Saminas Bellydance | Top/Arts/Performing_Arts/Dance/Middle_Eastern/Teachers_and_Performers/United_Kingdom Dancer with classes in Inverurie, Aberdeen and Ellon. Photographs, step by step dance routines, class details and occasional extravaganzas. |
| Random 4 | NRG Health and Safety Advisory Services | http://www.nrgltd.com NRG Health and Safety Advisory Services | Top/Regional/Europe/United_Kingdom/England/Cumbria/Kirkby_Lonsdale/Business_and_Economy Health and safety consultants. Details of services. |
| Random 4 | About.com: Gout and Pseudogout | http://arthritis.about.com/cs/gout/index.htm About.com: Gout and Pseudogout | Top/Health/Conditions_and_Diseases/Musculoskeletal_Disorders/Arthritis/Gout Information and resources about these disorders. |
| Next 70 | Mel Kotlyar | http://www.my2by2.net/shop4cf/now.html Mel Kotlyar | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Personal page by a man with CF. Includes links to shop at various stores with a percent of the proceeds of sales going to the CFF. |
| Previous 70 | Down Syndrome Association of NSW Australia | http://www.dsansw.org.au/ Down Syndrome Association of NSW Australia | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Articles, newsletters, stories & photos for people with Down syndrome, their families, friends, educators and health care professionals. |
| Next 170 | Iron Overload, Public Health and Genetics | http://www.acponline.org/journals/annals/01dec98/supptoc.htm Iron Overload, Public Health and Genetics | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Hemochromatosis A supplement to the Annals of Internal Medicine with articles about hemochromatosis. |
| Previous 170 | NORD: Aarskog Syndrome | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Aarskog%20Syndrome NORD: Aarskog Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Aarskog_Syndrome A look at the alternate names, a general discussion and resources. |
| Next 270 | |||
| Previous 270 | Practical Management of Hair Loss | http://www.derm.ubc.ca/hairinfo/ Practical Management of Hair Loss | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss A detailed source of information for the treatment of hair loss conditions like androgenetic hair loss, alopecia areata, telogen effluvium, and trichotillomania. |
| Other resource N0 | Alopecia Areata Frequently Asked Questions | http://npntserver.mcg.edu/html/alopecia/AlopeciaFAQ(part01).html Alopecia Areata Frequently Asked Questions | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss/Alopecia_Areata An extensive FAQ on alopecia areata from the Medical College of Georgia. Also access to an alopecia areata email support group list. |
| Other resource N1 | Now and Before | http://www.scn.org/~dcv/alopecia.html Now and Before | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss/Alopecia_Areata Links, conferences, and treatments for alopecia areata. |
| Other resource N2 | Wichita Alopecia Areata Support Group | http://home.swbell.net/roadbum1/waasg.html Wichita Alopecia Areata Support Group | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss/Alopecia_Areata Includes general information on condition, meeting schedule, and calendar of events. |
| Other resource N3 | National Alopecia Areata Foundation | http://www.naaf.org/ National Alopecia Areata Foundation | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss/Alopecia_Areata A non profit organization dedicated to providing information about alopecia areata. With support groups in the USA and contacts with similar support groups worldwide. |
| Other resource N4 | Alopecia Areata Support Community | http://groups.msn.com/AlopeciaAreataSupportCommunity/ Alopecia Areata Support Community | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hair_Loss/Alopecia_Areata An online support community for all sufferers of alopecia areata, totalis, and universalis. Offers links, message boards, and chat. |
| Other resource N5 | Hyperhidrosis Discussion Board | http://www.voy.com/14653/ Hyperhidrosis Discussion Board | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis A discussion board for hyperhidrosis sufferers and facial blushers. |
| Other resource N6 | Janet's Experience w/ Hyperhidrosis | http://www.geocities.com/janet_7419 Janet's Experience w/ Hyperhidrosis | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis An upbeat perspective for women coping with excessive underarm perspiration (hyperhidrosis). Treatment options, experiences, letters, links, and more. |
| Other resource N7 | Yahoo! Hyperhidrosis Mailing List | http://health.groups.yahoo.com/group/hyperhydrosis/ Yahoo! Hyperhidrosis Mailing List | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis Mailing list for hyperhidrosis and facial blushing. |
| Other resource N8 | The Center for Hyperhidrosis | http://sweaty-palms.com The Center for Hyperhidrosis | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Situated in Los Angeles the procedure, known as Endoscopic Thoracic Sympathectomy, is performed to eliminate sweaty palms, sweaty hands, and facial blushing. |
| Other resource N9 | Farshad Malekmehr, M.D. | http://www.endsweat.com Farshad Malekmehr, M.D. | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Minimally invasive surgery, ETS (endoscopic thoracic sympathectomy) to treat sweaty palms, sweaty face and facial blushing. Offices in Beverly Hills, Glendale, and Los Angeles. |
| Other resource N10 | Clinic at The Nuffield Hospital, Ipswich | http://www.btinternet.com/~webwizards/sweatfree Clinic at The Nuffield Hospital, Ipswich | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Offers information about these conditions and their treatment together with contact details of two specialist consultant surgeons who offer a range of treatment options for sufferers. |
| Other resource N11 | Minnesota Clinic | http://www.stop-perspiration.com/ Minnesota Clinic | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Botulin Clinic, eden Prairie, Minnesota, experienced physicians who pioneered botulin (BOTOX?)injections as a non-surgical treatment for excessive underarm sweating Hyperhidrosis. |
| Other resource N12 | Columbia University Hyperhidrosis Clinic | http://www.hyperhidrosiscumc.com/ Columbia University Hyperhidrosis Clinic | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Treating patients suffering from excessive sweating (hyperhidrosis) and facial blushing in the New York area. |
| Other resource N13 | Center For The Cure Of Sweaty Palms | http://www.curesweatypalms.com Center For The Cure Of Sweaty Palms | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Excessive sweaty palms is a condition refer to as palmar hyperhidrosis. The only long lasting, effective treatment is by thoracoscopic sympathectomy, which can be performed as an outpatient, same day surgery. Based in Santa Ana, California. |
| Other resource N14 | Dr. Jiri A. Konecny, D.O. | http://controlexcessivesweating.com Dr. Jiri A. Konecny, D.O. | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Specializes in minimally invasive prodedures to control hyperhidrosis. Based in San Jose, California. |
| Other resource N15 | Newport Beach Hyperhidrosis Clinic | http://www.hyperhidrosis-california.com Newport Beach Hyperhidrosis Clinic | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Leading hyperhidrosis clinic in Newport Beach, California. Comprehensive website provides information on hyperhidrosis, sweaty palms or feet, excessive sweating and perspiration. Also gives information on surgical treatment with Endoscopic Thoracic Sympathectomy. |
| Other resource N16 | British Institutute for Blushing and Sweating | http://www.eblushing.com/ British Institutute for Blushing and Sweating | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Explains the conditions and pharmaceutical and operative treatment. Part of The Hospital of St John and St Elizabeth in London. |
| Other resource N17 | David's Place on the Web for HS Sufferers | http://www.hidradenitis-suppurativa.org/ David's Place on the Web for HS Sufferers | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa Features research, resources, links, photos, and David's personal story. |
| Other resource N18 | Hidradenitis Suppurativa Support Group - UK and Ireland | http://www.angelfire.com/amiga/hssg Hidradenitis Suppurativa Support Group - UK and Ireland | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa UK-based member of HIDE International. Includes FAQs, care and treatment details, information about UK disability benefits and help options, and message board. |
| Other resource N19 | Wendy's Home | http://home.earthlink.net/~aromalady/ Wendy's Home | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa Features 2002 rally information and photos, story of fellow sufferer Tammy Ferris, articles, and related links. |
| Other resource N20 | Hidradenitis Suppurativa | http://mysite.freeserve.com/hs_sucks/index.htm Hidradenitis Suppurativa | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa An illustrated personal view of living with HS - with sarcastic pain control. Contains adult warning on front page. |
| Other resource N21 | Dr. Greene's HouseCalls | http://www.drgreene.com/html/21614.html Dr. Greene's HouseCalls | Top/Health/Conditions_and_Diseases/Genetic_Disorders A discussion of medical information on trisomy, trisomy 13, genetics, and his own personal family experience with this rare disease. |
| Other resource N22 | Gene Clinics | http://www.geneclinics.org Gene Clinics | Top/Health/Conditions_and_Diseases/Genetic_Disorders Medical genetics knowledge base. NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management and genetic counseling of patients. |
| Other resource N23 | Genetic Disorders: The Links to Diet | http://www.ctds.info/genetic_disorders.html Genetic Disorders: The Links to Diet | Top/Health/Conditions_and_Diseases/Genetic_Disorders Explores the role of diet in birth defects and genetic disorders. Includes nutritional links to disorders such as Down syndrome, cerebral palsy, homocystinuria, and cystic fibrosis. |
| Other resource N24 | Blepharophimosis Ptosis Epicanthus Inversus Syndrome | http://freespace.virgin.net/andy.bowles/ Blepharophimosis Ptosis Epicanthus Inversus Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders The BPEI (BPES) Family Network encourages people to get in touch with each other, share information and ask questions. Explanation of this rare eye disorder. |
| Other resource N25 | A3243G.com | http://www.a3243g.com/home.asp A3243G.com | Top/Health/Conditions_and_Diseases/Genetic_Disorders Information about a gene defect which causes a variety of diseases. Find a discussion forum and an newsletter. |
| Other resource N26 | NORD: Glutaricaciduria I | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Glutaricaciduria%20I NORD: Glutaricaciduria I | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Glutaricaciduria Offers alternate names, a general discussion and resources. |
| Other resource N27 | NORD: Craniofrontonasal Dysplasia | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Craniofrontonasal%20Dysplasia NORD: Craniofrontonasal Dysplasia | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Craniofrontonasal_Dysplasia Offers a general discussion and resources. |
| Other resource N28 | OMIM: National Center for Biotechnology Information | http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?200110 OMIM: National Center for Biotechnology Information | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Ablepharon-Macrostomia_Syndrome A clinical synopsis for Ablepharon-Macrostomia syndrome. |
| Other resource N29 | NORD: Aase Syndrome | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Aase%20Syndrome NORD: Aase Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Aase_Syndrome A look at the alternate names, a general discussion and resources. |
| Other resource N30 | OMIM: National Center for Biotechnology Information | http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?100050.cs OMIM: National Center for Biotechnology Information | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Aarskog_Syndrome Clinical synopsis for Aarskog syndrome. |
| Other resource N31 | Fragile X Association of Southern California | http://www.fraxsocal.org Fragile X Association of Southern California | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation. |
| Other resource N32 | Fragile X Syndrome | http://home.coqui.net/myrna/fragile.htm Fragile X Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome Single page on recognition of the condition in young children. |
| Other resource N33 | Conquer Fragile X, Inc. | http://www.conquerfragilex.org Conquer Fragile X, Inc. | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome Creating a virtual research center in Israel to find a cure. |
| Other resource N34 | Fact Sheets for Health Professionals: Fragile X Syndrome | http://hnb.dhs.vic.gov.au/commcare/yafs_yf.nsf/bced7550634b825a4a25676c00482e1b/1d5baac3ccee72744a256744000645a3?OpenDocument Fact Sheets for Health Professionals: Fragile X Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome From the Victorian Government, Australia. |
| Other resource N35 | The National Fragile X Foundation | http://www.fragilex.org/ The National Fragile X Foundation | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome Features information about the disease, its teatment, and inheritance. |
| Other resource N36 | Pediatric Oncal | http://www.pediatriconcall.com/fordoctor/diseasesandcondition/fragile_x.asp Pediatric Oncal | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations. |
| Other resource N37 | Williams Syndrome and Prader-Willi Syndrome | http://info.med.yale.edu/chldstdy/wspws Williams Syndrome and Prader-Willi Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome Diagnostic assessment, selected treatment services and opportunities to participate in research from the Yale University Child Study Center. |
| Other resource N38 | Prader-Willi Syndrome - Suite101 | http://www.suite101.com/welcome.cfm/prader_willi_syndrome Prader-Willi Syndrome - Suite101 | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome A forum to provide a support base for PWS without having to join one of the national or international associations, and to make people more aware of PWS. |
| Other resource N39 | The New Jersey Chapter of the Prader-Willi Syndrome Association | http://www.pwsausa.org/nj/ The New Jersey Chapter of the Prader-Willi Syndrome Association | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome Includes news, important dates, fund raising, maps and links. |
| Other resource N40 | PWS Notes | http://www.pwsnotes.org/ PWS Notes | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome Designed to provide useful background on Prader-Willi Syndrome (PWS) for parents and to organize medical information that may be helpful for future research directions. |
| Other resource N41 | Down Syndrome | http://www.nas.com/downsyn/ Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome A listing of organizations worldwide, support groups, and toy catalogs for children of special needs. |
| Other resource N42 | Health Issues in Down Syndrome | http://www.ds-health.com Health Issues in Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome A collection of medical essays and abstracts for parents. |
| Other resource N43 | Down Syndrome Information Network | http://www.down-syndrome.net/ Down Syndrome Information Network | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Includes a online library of books and articles. |
| Other resource N44 | Mayo Clinic: Down's Syndrome | http://www.mayoclinic.com/home?id=5.1.1.4.5 Mayo Clinic: Down's Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome A description of the disease plus complications, risk factors, diagnosis and treatment. |
| Other resource N45 | Down Syn On-Line Magazine | http://home.epix.net/~mcross/down-syn.html Down Syn On-Line Magazine | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Focusing on first-person experiences, opinions, pictures, and questions from those who love someone with Down Syndrome. |
| Other resource N46 | Epilepsy-Down Syndrome Foundation | http://members.aol.com/dsepilepsy/org.htm Epilepsy-Down Syndrome Foundation | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Research into the dual diagnoses of Down syndrome and epilepsy. Emphasizes nutritional and non-medical interventions. |
| Other resource N47 | Trisomy 21 Online Community | http://trisomy21online.com Trisomy 21 Online Community | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome For all those touched by people with all three forms of Trisomy 21. Community includes message forums, chat room, information for parents who have just found out their child has Trisomy 21, pictures and many other information pages and links. |
| Other resource N48 | Diagnosis Down Syndrome | http://diagnosisdownsyndrome.info Diagnosis Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome News, Information and resources related to Down Syndrome. |
| Other resource N49 | Downscreening | http://www.downscreening.be Downscreening | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Deze website wil U informeren over de screening tijdens de zwangerschap naar Down syndroom door analyse van moederlijk bloed en echografie. Deze screeningstest bepaalt het risico op Down syndroom. |
| Other resource N50 | Families Dealing With Down Syndrome | http://groups.msn.com/FamiliesDealingWithDownSyndrome/ Families Dealing With Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome A family oriented e-mail group that is geared towards the love, support and health of children with Down Syndrome. |
| Other resource N51 | eMedicine Health: Down Syndrome | http://www.emedicinehealth.com/articles/50095-1.asp eMedicine Health: Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Provides an introduction to the disease and its characteristics, symptoms and treatment. |
| Other resource N52 | Treatment of Children and Adults | http://www.lleichtman.org/tni.shtml Treatment of Children and Adults | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Nutrition Principles behind TNI's use, treatment protocols, and an expanded bibliography. By Dr. Lawrence G. Leichtman, MD, PhD |
| Other resource N53 | Initiative for People with Down's Syndrome | http://members.aol.com/InitiativeDown/index.htm Initiative for People with Down's Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Includes photos of children from around the world, and an online exhibition entitled "Variety Enriches Our World." |
| Other resource N54 | Bringing Up Down Syndrome | http://www.buds-sj.org/ Bringing Up Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations In southern New Jersey. Includes a message board, chatroom, and a variety of links. |
| Other resource N55 | Down Syndrome Association of Toronto | http://dsat.ca/ Down Syndrome Association of Toronto | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Information on education and health as it relates to Down Syndrome. |
| Other resource N56 | Friends of Frederick Maryland | http://www.cornetser.com/friends/index.html Friends of Frederick Maryland | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Family Resource Information Education Network for Down Syndrome. Includes a list of events in that area. |
| Other resource N57 | Colorado Springs Down Syndrome Association | http://www.csdsa.org Colorado Springs Down Syndrome Association | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Information about the organization as well as the disease. Includes membership, events, a photo album, articles and links. |
| Other resource N58 | Triangle Down Syndrome Network | http://www.triangledownsyndrome.org Triangle Down Syndrome Network | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations For families in central North Carolina. Online newsletter and stories about their kids. |
| Other resource N59 | Association of Greater Cincinnati for Down Syndrome | http://www.dsagc.com/ Association of Greater Cincinnati for Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Information on the programs they offer, and upcoming events. |
| Other resource N60 | Sharing Down Syndrome Arizona | http://sharingds.org/ Sharing Down Syndrome Arizona | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Has a listing of Down Syndrome events in their area, also many poems and stories. |
| Other resource N61 | Mile High Down Syndrome Association | http://www.mhdsa.org Mile High Down Syndrome Association | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Has a section on research, as well as examples of the Kids 'R Kids calendar. |
| Other resource N62 | Central Illinois Down Syndrome Organization (CIDSO) | http://www.cidso.org/ Central Illinois Down Syndrome Organization (CIDSO) | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Contains a list of the organization's goals, and information about their library and events. |
| Other resource N63 | Northern New England Down Syndrome Congress | http://nnedsc.org Northern New England Down Syndrome Congress | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Non-profit organization of families, professionals, and others who are interested in sharing knowledge and the experience of Down Syndrome. |
| Other resource N64 | Down Syndrome Association of NSW Australia | http://www.dsansw.org.au/ Down Syndrome Association of NSW Australia | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Articles, newsletters, stories & photos for people with Down syndrome, their families, friends, educators and health care professionals. |
| Other resource N65 | DSAOC- Down Syndrome Association of Orange County | http://www.dsaoc.org DSAOC- Down Syndrome Association of Orange County | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Down Syndrome Association of Orange County, based in Santa Ana, California. |
| Other resource N66 | Mosaic Down Syndrome UK | http://www.mosaicdownsyndrome.org/default.htm Mosaic Down Syndrome UK | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations A support group for parents of children born with Mosaic Down Syndrome. Based in the UK, the group warmly welcomes parents from outside the UK. |
| Other resource N67 | International Mosaic Down Syndrome Association | http://www.imdsa.com International Mosaic Down Syndrome Association | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations A non profit organization to help and support parents around the world in research and meeting new people. Includes research, education and contact details. |
| Other resource N68 | Treating Down Syndrome: Mary Alice's Page | http://www.bestweb.net/~castella Treating Down Syndrome: Mary Alice's Page | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Includes resources, pictures, and the accomplishments of Mary Alice. |
| Other resource N69 | Rose | http://www.therosepage.com Rose | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages This family's story of how they almost lost their daughter after heart surgery, and her life since then. |
| Other resource N70 | George and Charley | http://homepages.tesco.net/~d.w.dossett/index.htm George and Charley | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Pictures and links. |
| Other resource N71 | Down's Really Up | http://www.81x.com/DownsReallyUp/MeetMe Down's Really Up | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Jonathan's story. |
| Other resource N72 | Keeping UP With Matthew | http://members.tripod.com/~MattLK/home.html Keeping UP With Matthew | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Story of Matthew Kelley, a boy with Down Syndrome. Includes family pictures. |
| Other resource N73 | Elle | http://mysite.freeserve.com/elles_page Elle | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Story of her mother's pregnancy, and thoughts about Down Syndrome. |
| Other resource N74 | The Story of Kathlyn "Pooh" | http://home.insightbb.com/~momapoohbear/kathlyn.html The Story of Kathlyn "Pooh" | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages The Miracle of Kathlyn Justice Marie.What she went though in her short life and the memories she left behind. Written by her mother. |
| Other resource N75 | Down Syndrome : A Parent's Resource | http://www3.sympatico.ca/terry.edwards/Shelby.html Down Syndrome : A Parent's Resource | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Information about Down Syndrome, and a collection of parents' stories. |
| Other resource N76 | The National University Hospital Turner Support Group | http://www.med.nus.edu.sg/paed/tsgweb/tsg.html The National University Hospital Turner Support Group | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome For patients with Turner Syndrome and their families, combined with the pharmaceutical company Serono Singapore Pte. Ltd. to co-organise biannual meetings and parties for the group. |
| Other resource N77 | Turner Syndrome: Toward Early Recognition and Improved Outcomes | http://www.medscape.com/viewprogram/2155 Turner Syndrome: Toward Early Recognition and Improved Outcomes | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome Detailed overview of this condition, including clinical features, genetics, diagnosis, defects and medical problems associated with the syndrome, and recommendations for treatment. Includes many photos. [Requires free registration.] |
| Other resource N78 | NORD - Turner Syndrome | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Turner%20Syndrome NORD - Turner Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome Offers alternative names, a general discussion and further resources. |
| Other resource N79 | Alkaptonuria | http://www.kfshrc.edu.sa/annals/185/98-055.html Alkaptonuria | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Alkaptonuria A brief discussion about this disease and its statistics world wide. Followed by a case study of a 4 year old boy, whose parents noted the darkening of the urine to an almost black color when it was left standing. |
| Other resource N80 | The Alkaptonuria Society | http://www.alkaptonuria.info/ The Alkaptonuria Society | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Alkaptonuria An information and support network for those people diagnosed with Alkaptonuria. Includes discussions, articles and related resources. |