site URL - http://members.cox.net/emilysbreathofhope/
Site description: Fundraising for a 10 year old girl in need of a double lung transplant. Find a calendar of events and contribute online.
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| LINK | URI & TITLE | DESCRIPTION & TOPIC | |
| Previous 10 | Cystic Fibrosis Resource Centre | http://www.cysticfibrosis.co.uk Cystic Fibrosis Resource Centre | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis A source of information for cystic fibrosis patients, parents, doctors and other carers. |
| Previous | Richard Shannon Lung Transplant Fund | http://www.shannonlungs.org/index.html Richard Shannon Lung Transplant Fund | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Fund-Raisers Richard Shannon has Cystic Fibrosis. He is on the list for a lung transplant. A fund raiser is ongoing to pay for expenses beyond what insurance covers. Prayers and contributions are helpful. |
| Random 1 | NYTimes.com: Trading Barbie for Drugs, Sex and Halter Tops | http://query.nytimes.com/gst/fullpage.html?res=9D03E6DB1130F933A1575BC0A9659C8B63 NYTimes.com: Trading Barbie for Drugs, Sex and Halter Tops | Top/Arts/Movies/Titles/T/Thirteen Elvis Mitchell reviews the film 'Thirteen.' |
| Random 2 | This Is Your Life If You Choose Drugs | http://members.aol.com/gidgetda/beer.html This Is Your Life If You Choose Drugs | Top/Society/Issues/Health/Drugs/Illegal/Anti-Legalization Anti-drug information, including: signs of teen usage, rehabilitation and help links, crack baby syndrome, and negative effects of club drugs such as roofies, marihuana, cocaine, and ecstacy. |
| Random 3 | Health Leadership Nursing Certification | http://www.healthleadership.com Health Leadership Nursing Certification | Top/Health/Nursing/Education/Continuing_Education Provides nurse practitioner certification reviews and continuing education. |
| Random 4 | Pediatric and Adolescent Medicine | http://www.pedsny.com Pediatric and Adolescent Medicine | Top/Health/Medicine/Medical_Specialties/Pediatrics/Clinics_and_Physicians/United_States General pediatric practice serving infants, children and teenagers in New York City and West Chester County. |
| Random 5 | First Medical Imaging, Corp. | http://www.1medical.com/ First Medical Imaging, Corp. | Top/Business/Healthcare/Products_and_Services/Diagnostic/Radiology Used and new radiological equipment. |
| Next | Raise for CF | http://www.raiseforcf.com Raise for CF | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Fund-Raisers Dedicated to raising funds for the Cystic Fibrosis Trust's gene therapy research through organizing fund raising events. Find useful links, news, donate and get involved. |
| Next 10 | Genevieve's Cystic Fibrosis Site | http://www.angelfire.com/ok4/cfgen Genevieve's Cystic Fibrosis Site | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages About a personal journey living with this disease, and alternative therapies used, besides antibiotics. |
| Random 1 | Concordia University | http://dance.concordia.ca/ Concordia University | Top/Arts/Performing_Arts/Dance/Education/Colleges_and_Departments The department of Contemporary Dance at Concordia University, Montreal, Canada, offers programs in dance and choreography. This page describes department curriculum, faculty and activities. English and French versions. |
| Random 4 | Blumeks Ltd. | http://www.blumeks.com/ Blumeks Ltd. | Top/Business/Food_and_Related_Products/Condiments_and_Seasonings/Seasonings/Herbs_and_Spices/Import_and_Export Producers and exporters of spices, spice seeds, dried fruits, and medicinal herbs. |
| Random 4 | Liang, Chun Asian Acrobatic Show | http://www.acrobatshow.com Liang, Chun Asian Acrobatic Show | Top/Arts/Performing_Arts/Circus/Performers/Variety_Acts One woman show featuring Plate Spinning, Head Balancing, Chinese YoYo, Hula Hoops, and Chinese Dance, hosted by MC/Comedian Bill Patti. Corporate Events, Parties, Strolling Performer, Trade Shows. |
| Next 70 | Cystic Fibrosis | http://www.med.monash.edu.au/paediatrics/cf.html Cystic Fibrosis | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Medical_Facilities Page for Monash University, Department of Paediatrics. Admission policy, treatment, and sweat test. |
| Previous 70 | About A Boy With Down Syndrome | http://www.gabrieldownsyn.com About A Boy With Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages This site has photos, a book list, and essays on having a child with disabilities |
| Next 170 | National Library of Medicine: Coffin-Lowry Syndrome (CLS) | http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome238.html National Library of Medicine: Coffin-Lowry Syndrome (CLS) | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Coffin_Lowry_Syndrome A table showing the synonyms, a summary and major features. |
| Previous 170 | Down Syndrome | http://www.nas.com/downsyn/ Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome A listing of organizations worldwide, support groups, and toy catalogs for children of special needs. |
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| Previous 270 | Neurosurgical Medical Clinic | http://sd-neurosurgeon.com/ Neurosurgical Medical Clinic | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Information about this clinic as well as introductions to a variety of neurological ailments, including Hyperhydrosis. Situated in San Diego, California. |
| Other resource N0 | Hyperhidrosis - Surgical Team | http://hyperhidrosis.com Hyperhidrosis - Surgical Team | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Treatment for excessive sweating and facial blushing. Experienced ETS surgeons in the USA, Europe, South America and Australia as well as other parts of the world. |
| Other resource N1 | Ceders Sinai | http://www.cedars-sinai.edu/2602.html Ceders Sinai | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Top treatmenet center in Los Angeles. High profile surgeons with over 1,000 treatment cases. Practioners of revolutionary ETS procedure. |
| Other resource N2 | University of Iowa Hyperhidrosis Clinic | http://www.vh.org/adult/patient/surgery/hyperhidrosis/ University of Iowa Hyperhidrosis Clinic | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Excellent FAQ section for hyperhidrosis treatment options. Includes strong section on treatment alternatives, and video. |
| Other resource N3 | Baylor College of Medicine Hyperhidrosis Treatment | http://www.sweatypalmsinfo.com Baylor College of Medicine Hyperhidrosis Treatment | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Dr. Joseph Coselli offers hyperhidrosis treatment. |
| Other resource N4 | Mr Mark Whiteley MS Hyperhidrosis Clinic | http://www.sweating.co.uk Mr Mark Whiteley MS Hyperhidrosis Clinic | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Excessive sweating of hands and arm-pits can be disabling. Effective treatment is possible using Botulinum Toxin or Key-hole Surgery (TES). A UK specialist explains. |
| Other resource N5 | Sweat Breaker | http://www.sweatbreaker.co.uk Sweat Breaker | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hyperhidrosis/Clinics Botox treatments for excessive sweating. Nationwide clinics in the UK. |
| Other resource N6 | Yahoo Groups: Hidradenitis Suppurativa Awareness | http://groups.yahoo.com/group/HS-Awareness Yahoo Groups: Hidradenitis Suppurativa Awareness | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa Details about the group and its purpose which is to spread the word and offer support through activism. |
| Other resource N7 | Yahoo Groups: Hidradenitis | http://groups.yahoo.com/group/hidradenitis Yahoo Groups: Hidradenitis | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa Large message board for sufferers of this disease. |
| Other resource N8 | Hidradenitis Research | http://www.expage.com/hidradenitisindex Hidradenitis Research | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa Collection of articles and information about the research into this disease. |
| Other resource N9 | Dermatlas | http://dermatlas.med.jhmi.edu/derm/result.cfm?Diagnosis=63 Dermatlas | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa Offers a Dynamic Hidradenitis Suppurativa image collection. |
| Other resource N10 | Hidradenitis Suppurativa Links | http://www.frontiernet.net/%7eruthb/HidradenitisSuppurativa.html Hidradenitis Suppurativa Links | Top/Health/Conditions_and_Diseases/Skin_Disorders/Hidradenitis_Suppurativa Find a comprehensive listing of links relating to all aspects of HS. |
| Other resource N11 | The UDGD Spot | http://www.camp-a-roo.com/UDGD/ The UDGD Spot | Top/Health/Conditions_and_Diseases/Genetic_Disorders Resources and information for families of children with genetic disabilities or syndromes that are still awaiting a diagnosis. |
| Other resource N12 | Genetic and Rare Conditions | http://www.kumc.edu/gec/support/ Genetic and Rare Conditions | Top/Health/Conditions_and_Diseases/Genetic_Disorders Lay advocacy groups, support groups, information on genetic conditions and birth defects for professionals, educators and individuals. Disorders from A-Z. |
| Other resource N13 | Washington University in St Louis | http://www.siteman.wustl.edu/physician/clinical_trials/non_therapeutic_1736_detail.shtml Washington University in St Louis | Top/Health/Conditions_and_Diseases/Genetic_Disorders Family resource for individuals with Papillon Lefevre, Haim-Munk Syndrome and Prepubertal Periodontis. Interested families may participate in a registry dedicated to learning about the natural history of these three conditions. |
| Other resource N14 | IMMD Institute of Medical Molecular Diagnostics Ltd. | http://www.immd.de/ IMMD Institute of Medical Molecular Diagnostics Ltd. | Top/Health/Conditions_and_Diseases/Genetic_Disorders The IMMD is a genetic testing laboratory located in Germany. Provides genetic tests for hereditary breast cancer, various cardiovascular diseases or diseases with onset in childhood. |
| Other resource N15 | Glutaric Aciduria Type 1 | http://www.ga1.freeservers.com Glutaric Aciduria Type 1 | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Glutaricaciduria Information and links for children with GA1. |
| Other resource N16 | National Library of Medicine: CNFS | http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome252.html National Library of Medicine: CNFS | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Craniofrontonasal_Dysplasia Offers synonyms of craniofrontonasal syndrome, a summary and a list of features. |
| Other resource N17 | Ablepharon Macrostomia Syndrome | http://www.angelfire.com/ga2/AMS/ Ablepharon Macrostomia Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Ablepharon-Macrostomia_Syndrome A personal site with information and links about this disease. |
| Other resource N18 | NORD: Ablepharon Macrostomia Syndrome | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ablepharon%20Macrostomia%20Syndrome NORD: Ablepharon Macrostomia Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Ablepharon-Macrostomia_Syndrome A look at the alternate name, a general discussion and further resources. |
| Other resource N19 | National Library of Medicine | http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome001.html National Library of Medicine | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Aarskog_Syndrome Aarskog syndrome, the synonyms, a summary and a list of the major features. |
| Other resource N20 | Family Village - Aarskog Syndrome | http://www.familyvillage.wisc.edu/lib_aars.htm Family Village - Aarskog Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Aarskog_Syndrome Offers links for support and information concerning this disease. |
| Other resource N21 | FRAXA Research Foundation Home Page | http://www.fraxa.org/ FRAXA Research Foundation Home Page | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's. |
| Other resource N22 | Fragile X Fact's Page | http://www.ich.ucl.ac.uk/cmgs/frax98.htm Fragile X Fact's Page | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome Describing Fragile X Syndrome. |
| Other resource N23 | Queensland Fragile X Association | http://cwpp.slq.qld.gov.au/qldfragilex/ Queensland Fragile X Association | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome About QFXA, news, events, links and contacts. Also information of fragile X syndrome. |
| Other resource N24 | Living with Fragile X | http://fragilex.ca Living with Fragile X | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome One family's account of raising 3 children with Fragile X. |
| Other resource N25 | Maryland Fragile X Resource Group | http://www.mdfragilex.org/ Maryland Fragile X Resource Group | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources. |
| Other resource N26 | Prader-Willi Alliance of New York | http://www.prader-willi.org Prader-Willi Alliance of New York | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome Represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population. |
| Other resource N27 | Prader-Willi Syndrome Association (USA) | http://www.pwsausa.org/ Prader-Willi Syndrome Association (USA) | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome Characteristics include hypotonia, insatiable appetite, obesity if food intake is uncontrolled, hypogonadism and incomplete sexual development, developmental delays, variable degrees of mental retardation or functional retardation, short stature (adult), small hands and feet, mild dysmorphology, and behavior problems which can be severe. |
| Other resource N28 | The Prader-Willi Syndrome Association (UK) | http://www.pwsa-uk.demon.co.uk/ The Prader-Willi Syndrome Association (UK) | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome Information and resources about this chromosomal disorder. |
| Other resource N29 | The Foundation for Prader-Willi Research | http://www.pwsresearch.org/ The Foundation for Prader-Willi Research | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome A non-profit group of volunteer families, friends and researchers aiming to raise funds for research into finding treatments. |
| Other resource N30 | Growth Charts for Children with Down Syndrome | http://www.growthcharts.com Growth Charts for Children with Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Charts included are for height, weight, and head circumferences. Printable. |
| Other resource N31 | DS Sites on the Internet | http://www.ds-health.com/ds_sites.htm DS Sites on the Internet | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome A large listing of sites on the internet dealing with Down Syndrome, compiled by Len Leshin, M.D. |
| Other resource N32 | Mosaic Down Syndrome | http://www.mosaicdownsyndrome.com Mosaic Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Stories, message boards, and a FAQ. |
| Other resource N33 | Diagnosis Down Syndrome | http://leeworks.net/DDS/ Diagnosis Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Personal, loving stories from parents on adoption of a Down Syndrome baby. Also stories from those that found out during the pregnancy, and those that had a diagnosis after. |
| Other resource N34 | The PREP Program | http://www.prepprog.org The PREP Program | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome A school and resource centre. Includes descriptions of what they do with toddlers, school-aged children, and teens. Also included are their fees. |
| Other resource N35 | Learn about Down Syndrome | http://www.mamashealth.com/syndrome/downsyn.asp Learn about Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome What it is, symptoms, and statistics as to how often it occurs. |
| Other resource N36 | Down's Syndrome Medical Interest Group (UK) | http://www.dsmig.org.uk/ Down's Syndrome Medical Interest Group (UK) | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Information for healthcare professionals, including UK-specific growth charts, guidelines, and medical information library. |
| Other resource N37 | Chapel Haven - New Haven, Connecticut | http://www.chapelhaven.org Chapel Haven - New Haven, Connecticut | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Residential school and independent living facility offering a range of supports for adults (18+) with cognitive disabilities |
| Other resource N38 | National Down Syndrome Cytogenetic Register (UK) | http://www.mds.qmw.ac.uk/wolfson/ndscr/ National Down Syndrome Cytogenetic Register (UK) | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Information about an anonymous register allowing researchers to analyse possible causal factors. Includes interpretation of the results. |
| Other resource N39 | New Attitudes Enhance Care of Adults with Down Syndrome | http://healthlink.mcw.edu/article/1031002308.html New Attitudes Enhance Care of Adults with Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome A short MCW healthlink article by Dr. David Smith regarding successful health care management of people with Down syndrome. |
| Other resource N40 | Down Syndrome Forum | http://www.downsyndromeforum.com Down Syndrome Forum | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Find a community for families associated with down syndrome to share. Includes discussions, web links, surveys and stats. |
| Other resource N41 | Cognitive Enhancement Research Institute | http://www.ceri.com/downhome.htm Cognitive Enhancement Research Institute | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Nutrition Articles on smart drugs, antioxidants, and other vitamins in nutritional intervention in Down Syndrome. Also includes an interview with Dixie Lawrence. |
| Other resource N42 | Jacob and DS Treatment | http://home.austarnet.com.au/caradonhouse/down.htm Jacob and DS Treatment | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Nutrition A personal story of how Jacob was successfully treated using metabolic therapy. There are pictures. |
| Other resource N43 | Down's Syndrome Association, Lincolnshire Branch | http://www.emandan.freeserve.co.uk Down's Syndrome Association, Lincolnshire Branch | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Poems and stories, articles, and book reviews. |
| Other resource N44 | Down's Syndrome Association, London Branch, UK | http://www.downs-syndrome-london.org.uk Down's Syndrome Association, London Branch, UK | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Support group for parents and carers of people with Down's Syndrome. |
| Other resource N45 | Eastern Pennsylvania Down Syndrome Center | http://www.epdsc.org/ Eastern Pennsylvania Down Syndrome Center | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Includes a message board and chat room, also a list of their coming events. |
| Other resource N46 | Down Syndrome Research Online Advocacy Group | http://www.dsresearch.org Down Syndrome Research Online Advocacy Group | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Information on clinical, biomedical, and scientific research into Down syndrome. |
| Other resource N47 | Piedmont Down Syndrome Support Network | http://www.thedepot.com/groups-downsyndrome Piedmont Down Syndrome Support Network | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Information about the parent support group for Winston-Salem, North Carolina. |
| Other resource N48 | Gold Coast Down Syndrome Organization | http://www.goldcoastdownsyndrome.org Gold Coast Down Syndrome Organization | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations In Palm Beach county, FL. Provides a FAQ and inclusion information. |
| Other resource N49 | Aim - High Down Syndrome | http://www.aim-high.org Aim - High Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations In New York. Articles, membership, and events. |
| Other resource N50 | Down Syndrome Catalana Foundation | http://www.fcsd.org/eng/index.htm Down Syndrome Catalana Foundation | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Information about the foundation. |
| Other resource N51 | Trisomy 21 Foundation of Northern New York | http://www.trisomy21foundation.com Trisomy 21 Foundation of Northern New York | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Includes information on clinical studies, a scrapbook, upcoming events, and newsletter. |
| Other resource N52 | North Country Down Syndrome Association | http://ncdsasite.org North Country Down Syndrome Association | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Provides information about the association, which is located in Plattsburgh, NY, serving Clinton and Essex Counties. Also has pictures. |
| Other resource N53 | Piedmont Buddy Walk | http://www.piedmontbuddywalk.org Piedmont Buddy Walk | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Annual non-profit event to benefit families affected by Down syndrome with all proceeds going to the Piedmont Down syndrome Support Network (PDSSN)of North Carolina. |
| Other resource N54 | Down Syndrome Liverpool | http://www.ds-liverpool.org.uk Down Syndrome Liverpool | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Local support group for those with DS, their parents and carers. A registered charity in the UK |
| Other resource N55 | Down Syndrome Association of Greater New Orleans | http://www.dsagno.com/ Down Syndrome Association of Greater New Orleans | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Has photo gallery and a list of the association's board members. |
| Other resource N56 | Jane and Richard Thomas Center for Down Syndrome | http://www.cincinnatichildrens.org/svc/dept-div/disabilities/down/default.htm Jane and Richard Thomas Center for Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations at Cincinnati Children's Hospital Medical Center offers innovative approaches to caring for children with Down syndrome. |
| Other resource N57 | The Ups of Downs | http://www.littleangels.gbr.cc The Ups of Downs | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Dedicated to parents of children with Down Syndrome. Membership is free and open to anyone. Includes information about Downs, education and literature. |
| Other resource N58 | John: The Sky's the Limit | http://www.comwares.net/marrs/index.html John: The Sky's the Limit | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Includes his developmental program that resulted in John being at the head of his Kindergarten class at age five. Also lists his nutritional supplements. |
| Other resource N59 | Abigail's Down Syndrome Pictures and Stories | http://www.iolky.com/down-syndrome/children/pics/ Abigail's Down Syndrome Pictures and Stories | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Stories and pictures from her and her family's daily life. Also the article, "God, Do You Care," and a FAQ providing information on how Abigail achieved good health and development. |
| Other resource N60 | Darbi's Place | http://coolbeansdesigns.com/darbisplace/index.htm Darbi's Place | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Pictures, a mom's story, and information about about Darbi's open heart surgery. |
| Other resource N61 | ELIJAH-dot-NET | http://elijah.net/ ELIJAH-dot-NET | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Pictures of Elijah at various ages, with links to information on Down Syndrome. |
| Other resource N62 | Ryan's Story | http://leeworks.net/Lee/ryan.html Ryan's Story | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Ryan's birth and diagnosis, Down Syndrome links, and family pictures. |
| Other resource N63 | Rachel's Story | http://freespace.virgin.net/rachels.story/ Rachel's Story | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Has a diary by Rachel's Mum to chart her milestones. Also a hospital diary on Rachel's heart surgery. |
| Other resource N64 | About A Boy With Down Syndrome | http://www.gabrieldownsyn.com About A Boy With Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages This site has photos, a book list, and essays on having a child with disabilities |
| Other resource N65 | Turner's Syndrome Society, Texas | http://www.onr.com/ts-texas/ Turner's Syndrome Society, Texas | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome Providing links and information about Turner's Syndrome. Definition and Synonyms, FAQ, TSS Societies (National, State, and Local), Associated Links, Newsgroup discussions, Conference Information. |
| Other resource N66 | National Library of Medicine | http://www.nlm.nih.gov/cgi/jablonski/syndrome_cgi?term=Turner+syndrome+(TS)&field=name National Library of Medicine | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome Offers synonyms for Turner syndrome, a summary and a list of major features. |
| Other resource N67 | Turner Syndrome | http://www.turnersendromu.8m.com Turner Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome A site prepared by the family of a young girl with TS. Includes her story, information about the syndrome and its treatment, FAQs, photos and links. [English, Turkish] |
| Other resource N68 | Turners Syndrome Support | http://www.geocities.com/turnersonline Turners Syndrome Support | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome A personal site offering support and information. |
| Other resource N69 | MedicineNet.com : Alkaptonuria | http://www.medicinenet.com/Script/Main/Art.asp?li=MNI&ArticleKey=7804 MedicineNet.com : Alkaptonuria | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Alkaptonuria An article about this disease beginning with an explanation as to what it is, followed by how it is inherited, how it affects the joints, symptoms, diagnosis and treatment. |
| Other resource N70 | Xeroderma Pigmentosum Society | http://www.xps.org Xeroderma Pigmentosum Society | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Xeroderma_Pigmentosum Resource for information about the disease and about the not-for-profit support organization devoted to supporting patients and families and promoting research. Links, contact information, XP Society news about fund raising events and the unique Camp Sundown program. |
| Other resource N71 | Xeroderma Pigmentosum | http://digilander.libero.it/camdic/XERODERMA%20PIGMENTOSUM.html Xeroderma Pigmentosum | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Xeroderma_Pigmentosum An article about this disorder in English and Italian along with some images. |
| Other resource N72 | Understanding Xeroderma Pigmentosum | http://www.cc.nih.gov/ccc/patient_education/pepubs/xeroderma.pdf Understanding Xeroderma Pigmentosum | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Xeroderma_Pigmentosum Online booklet providing a general overview and description of the disorder and answers to frequently asked questions. Produced by the US National Institues of Health. [PDF Format] |
| Other resource N73 | Williams Syndrome | http://www.ninds.nih.gov/health_and_medical/disorders/williams.htm Williams Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Williams_Syndrome Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
| Other resource N74 | A Music Camp for Those Afflicted but Gifted, Too | http://nytimes.com/2002/08/26/national/26CAMP.html A Music Camp for Those Afflicted but Gifted, Too | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Williams_Syndrome New York Times feature article about the Belvoir Terrace summer music camp program for people with Williams syndrome. |
| Other resource N75 | Moylan Family Website | http://homepage.eircom.net/~moylanfamily Moylan Family Website | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Williams_Syndrome An Irish family's experience of Williams Syndrome. |
| Other resource N76 | Alagille Syndrome | http://www.ikp.unibe.ch/lab2/Alagille.htm Alagille Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Alagille_Syndrome Discussion of the genetics, clinical presentation, natural history, and treatment of Alagille's syndrome. |
| Other resource N77 | Children's Liver Alliance | http://www.liverkids.org.au/alagille.htm Children's Liver Alliance | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Alagille_Syndrome A description, the diagnosis, symptoms, treatment and complications of Alagille syndrome. |
| Other resource N78 | PulmonologyChannel | http://www.pulmonologychannel.com/cf/ PulmonologyChannel | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Information on cystic fibrosis. |
| Other resource N79 | Cystic Fibrosis Resource Center | http://www.healingwell.com/cysticfibrosis/ Cystic Fibrosis Resource Center | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards. |
| Other resource N80 | Cystic Fibrosis Links | http://www.goodgulf.com/cystic.html Cystic Fibrosis Links | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Cystic Fibrosis Links and Information |