The Cystic Fibrosis Center at Rush Children's Hospital

site URL - http://www.rush.edu/patients/children/services/specialties/cysticfibrosis/

Site description: Offers a state-of-the-art multidisciplinary team approach to the care and treatment of infants, children, adolescents and adults with cystic fibrosis.




Topic: Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Medical_Facilities
LINKURI & TITLEDESCRIPTION & TOPIC
Previous 10Eulogy for Jef Bairdhttp://www.geocities.com/CapeCanaveral/9740/JEFEULGY.HTM Eulogy for Jef BairdTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages/Memorials Eulogy for a young man who lost his life to CF.
PreviousIsrael's CF Centerhttp://www.y2lungs.com/TelHashomer.htm Israel's CF CenterTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Medical_Facilities National Center for Cystic Fibrosis at the Chaim Sheba Medical Center, Tel Hashomer, is the largest center in Israel. Contact information and hours included.
Random 1Searchlight Dental and Health Productshttp://searchlightdental.com/ Searchlight Dental and Health ProductsTop/Shopping/Health/Dental Dental health care products, oral hygiene items, nutritional supplements, home and personal care products.
Random 2Bruker Spectrospin (Canada)http://www.bruker.ca/ Bruker Spectrospin (Canada)Top/Science/Chemistry/Nuclear_Magnetic_Resonance/Commercial_Companies/New_Instruments Bruker is a manufacturer of analytical and medical instruments covering NMR, ESR, FT-IR, X-RAY spectroscopy.
Random 3South Orange Wellness and Injury Centerhttp://www.southorangewellness.com South Orange Wellness and Injury CenterTop/Health/Alternative/Practitioners/Wellness_Centers/North_America/United_States/Maryland Providing chiropractic, medical, physical and massage therapy and rehabilitative services. (Orlando)
Random 4St. Bernards Health Carehttp://www.sbrmc.com/ St. Bernards Health CareTop/Health/Medicine/Facilities/Hospitals/North_America/United_States/Arkansas Includes HealthLine and a section for 55plus as well as information on the services offered at this Jonesboro based hospital.
Random 5Health-o-Ramahttp://www.health-o-rama.org/ Health-o-RamaTop/Shopping/Publications/Books/Audio Audio publications on health issues.
NextAllergy & Pulmonary Medicine CF Centerhttp://peds.wustl.edu/div/pulmonary/spec/cystic_fibrosis/ Allergy & Pulmonary Medicine CF CenterTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Medical_Facilities Cystic Fibrosis Center at Washington University in St. Louis Missouri. Information on pediatric and adult clinics.
Next 10Cystic Fibrosis Index of On-Line Resourceshttp://vmsb.csd.mu.edu/%7e5418lukasr/cystic.html Cystic Fibrosis Index of On-Line ResourcesTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Support_Groups The CysticFibrosis Index of On-Line Resources is intended to be an exhaustive guide toAll on-line web pages, news groups, FAQs, chat rooms, and mailing listsassociated with Cystic Fibrosis.
Random 1Lucknow Kathakhttp://www.pathcom.com/~ericp/kathak.html Lucknow KathakTop/Arts/Performing_Arts/Dance/Classical_Indian/Kathak Excellent description and history of Kathak.
Random 4Council on the Economic Impact of Health System Changehttp://sihp.brandeis.edu/council Council on the Economic Impact of Health System ChangeTop/Society/Issues/Health/Health_Policy The Council, based at Brandeis University, presents the findings of nationally-recognized health policy experts on emerging health policy issues, such as medicare reform, managed care regulation and the uninsured.
Random 4Forum on HIV and Oral Healthhttp://www.thebody.com/cgi/oralans.html Forum on HIV and Oral HealthTop/Health/Conditions_and_Diseases/Infectious_Diseases/Viral/Epstein-Barr_Virus/Hairy_Leukoplakia Information resources on hairy leukoplakia (HK) and other oral conditions, including FAQs, from The Body.
Next 70North American Cystic Fibrosis Conference in New Orleanshttp://www.nacfconference.org North American Cystic Fibrosis Conference in New OrleansTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Conferences Information on program and location.
Previous 70Official Site for CFF Jack Buck Book Eventhttp://www.jackbuckbook.com/homepage.asp Official Site for CFF Jack Buck Book EventTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Fund-Raisers "Jack Buck, A Collection of Poems and Stories", by Jack Buck. 100% of the proceeds from the sale of this book go directly to Cystic Fibrosis Foundation.
Next 170Maddy's Pagehttp://members.aol.com/kymwig Maddy's PageTop/Health/Conditions_and_Diseases/Genetic_Disorders/Personal_Pages The story of Madison Wigglesworth who has hurler syndrome. Includes photo album and links to informative sites.
Previous 170Northern New England Down Syndrome Congresshttp://nnedsc.org Northern New England Down Syndrome CongressTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Non-profit organization of families, professionals, and others who are interested in sharing knowledge and the experience of Down Syndrome.
Next 270
Previous 270Human Genome Mapping Projecthttp://www.hgmp.mrc.ac.uk/dhmhd-bin/hum-look-up?2 Human Genome Mapping ProjectTop/Health/Conditions_and_Diseases/Genetic_Disorders/Aarskog_Syndrome A list of features for Aarskog syndrome.
Other resource N0 Fragile X Fact's Pagehttp://www.ich.ucl.ac.uk/cmgs/frax98.htm Fragile X Fact's PageTop/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome Describing Fragile X Syndrome.
Other resource N1 Queensland Fragile X Associationhttp://cwpp.slq.qld.gov.au/qldfragilex/ Queensland Fragile X AssociationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome About QFXA, news, events, links and contacts. Also information of fragile X syndrome.
Other resource N2 Living with Fragile Xhttp://fragilex.ca Living with Fragile XTop/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome One family's account of raising 3 children with Fragile X.
Other resource N3 Maryland Fragile X Resource Grouphttp://www.mdfragilex.org/ Maryland Fragile X Resource GroupTop/Health/Conditions_and_Diseases/Genetic_Disorders/Fragile_X_Syndrome A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources.
Other resource N4 Prader-Willi Alliance of New Yorkhttp://www.prader-willi.org Prader-Willi Alliance of New YorkTop/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome Represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population.
Other resource N5 Prader-Willi Syndrome Association (USA)http://www.pwsausa.org/ Prader-Willi Syndrome Association (USA)Top/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome Characteristics include hypotonia, insatiable appetite, obesity if food intake is uncontrolled, hypogonadism and incomplete sexual development, developmental delays, variable degrees of mental retardation or functional retardation, short stature (adult), small hands and feet, mild dysmorphology, and behavior problems which can be severe.
Other resource N6 The Prader-Willi Syndrome Association (UK)http://www.pwsa-uk.demon.co.uk/ The Prader-Willi Syndrome Association (UK)Top/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome Information and resources about this chromosomal disorder.
Other resource N7 The Foundation for Prader-Willi Researchhttp://www.pwsresearch.org/ The Foundation for Prader-Willi ResearchTop/Health/Conditions_and_Diseases/Genetic_Disorders/Prader-Willi_Syndrome A non-profit group of volunteer families, friends and researchers aiming to raise funds for research into finding treatments.
Other resource N8 Growth Charts for Children with Down Syndromehttp://www.growthcharts.com Growth Charts for Children with Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Charts included are for height, weight, and head circumferences. Printable.
Other resource N9 DS Sites on the Internethttp://www.ds-health.com/ds_sites.htm DS Sites on the InternetTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome A large listing of sites on the internet dealing with Down Syndrome, compiled by Len Leshin, M.D.
Other resource N10 Mosaic Down Syndromehttp://www.mosaicdownsyndrome.com Mosaic Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Stories, message boards, and a FAQ.
Other resource N11 Diagnosis Down Syndromehttp://leeworks.net/DDS/ Diagnosis Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Personal, loving stories from parents on adoption of a Down Syndrome baby. Also stories from those that found out during the pregnancy, and those that had a diagnosis after.
Other resource N12 The PREP Programhttp://www.prepprog.org The PREP ProgramTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome A school and resource centre. Includes descriptions of what they do with toddlers, school-aged children, and teens. Also included are their fees.
Other resource N13 Learn about Down Syndromehttp://www.mamashealth.com/syndrome/downsyn.asp Learn about Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome What it is, symptoms, and statistics as to how often it occurs.
Other resource N14 Down's Syndrome Medical Interest Group (UK)http://www.dsmig.org.uk/ Down's Syndrome Medical Interest Group (UK)Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Information for healthcare professionals, including UK-specific growth charts, guidelines, and medical information library.
Other resource N15 Chapel Haven - New Haven, Connecticuthttp://www.chapelhaven.org Chapel Haven - New Haven, ConnecticutTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Residential school and independent living facility offering a range of supports for adults (18+) with cognitive disabilities
Other resource N16 National Down Syndrome Cytogenetic Register (UK)http://www.mds.qmw.ac.uk/wolfson/ndscr/ National Down Syndrome Cytogenetic Register (UK)Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Information about an anonymous register allowing researchers to analyse possible causal factors. Includes interpretation of the results.
Other resource N17 New Attitudes Enhance Care of Adults with Down Syndromehttp://healthlink.mcw.edu/article/1031002308.html New Attitudes Enhance Care of Adults with Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome A short MCW healthlink article by Dr. David Smith regarding successful health care management of people with Down syndrome.
Other resource N18 Down Syndrome Forumhttp://www.downsyndromeforum.com Down Syndrome ForumTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Find a community for families associated with down syndrome to share. Includes discussions, web links, surveys and stats.
Other resource N19 Cognitive Enhancement Research Institutehttp://www.ceri.com/downhome.htm Cognitive Enhancement Research InstituteTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Nutrition Articles on smart drugs, antioxidants, and other vitamins in nutritional intervention in Down Syndrome. Also includes an interview with Dixie Lawrence.
Other resource N20 Jacob and DS Treatmenthttp://home.austarnet.com.au/caradonhouse/down.htm Jacob and DS TreatmentTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Nutrition A personal story of how Jacob was successfully treated using metabolic therapy. There are pictures.
Other resource N21 Down's Syndrome Association, Lincolnshire Branchhttp://www.emandan.freeserve.co.uk Down's Syndrome Association, Lincolnshire BranchTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Poems and stories, articles, and book reviews.
Other resource N22 Down's Syndrome Association, London Branch, UKhttp://www.downs-syndrome-london.org.uk Down's Syndrome Association, London Branch, UKTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Support group for parents and carers of people with Down's Syndrome.
Other resource N23 Eastern Pennsylvania Down Syndrome Centerhttp://www.epdsc.org/ Eastern Pennsylvania Down Syndrome CenterTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Includes a message board and chat room, also a list of their coming events.
Other resource N24 Down Syndrome Research Online Advocacy Grouphttp://www.dsresearch.org Down Syndrome Research Online Advocacy GroupTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Information on clinical, biomedical, and scientific research into Down syndrome.
Other resource N25 Piedmont Down Syndrome Support Networkhttp://www.thedepot.com/groups-downsyndrome Piedmont Down Syndrome Support NetworkTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Information about the parent support group for Winston-Salem, North Carolina.
Other resource N26 Gold Coast Down Syndrome Organizationhttp://www.goldcoastdownsyndrome.org Gold Coast Down Syndrome OrganizationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations In Palm Beach county, FL. Provides a FAQ and inclusion information.
Other resource N27 Aim - High Down Syndromehttp://www.aim-high.org Aim - High Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations In New York. Articles, membership, and events.
Other resource N28 Down Syndrome Catalana Foundationhttp://www.fcsd.org/eng/index.htm Down Syndrome Catalana FoundationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Information about the foundation.
Other resource N29 Trisomy 21 Foundation of Northern New Yorkhttp://www.trisomy21foundation.com Trisomy 21 Foundation of Northern New YorkTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Includes information on clinical studies, a scrapbook, upcoming events, and newsletter.
Other resource N30 North Country Down Syndrome Associationhttp://ncdsasite.org North Country Down Syndrome AssociationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Provides information about the association, which is located in Plattsburgh, NY, serving Clinton and Essex Counties. Also has pictures.
Other resource N31 Piedmont Buddy Walkhttp://www.piedmontbuddywalk.org Piedmont Buddy WalkTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Annual non-profit event to benefit families affected by Down syndrome with all proceeds going to the Piedmont Down syndrome Support Network (PDSSN)of North Carolina.
Other resource N32 Down Syndrome Liverpoolhttp://www.ds-liverpool.org.uk Down Syndrome LiverpoolTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Local support group for those with DS, their parents and carers. A registered charity in the UK
Other resource N33 Down Syndrome Association of Greater New Orleanshttp://www.dsagno.com/ Down Syndrome Association of Greater New OrleansTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Has photo gallery and a list of the association's board members.
Other resource N34 Jane and Richard Thomas Center for Down Syndromehttp://www.cincinnatichildrens.org/svc/dept-div/disabilities/down/default.htm Jane and Richard Thomas Center for Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations at Cincinnati Children's Hospital Medical Center offers innovative approaches to caring for children with Down syndrome.
Other resource N35 The Ups of Downshttp://www.littleangels.gbr.cc The Ups of DownsTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Dedicated to parents of children with Down Syndrome. Membership is free and open to anyone. Includes information about Downs, education and literature.
Other resource N36 John: The Sky's the Limithttp://www.comwares.net/marrs/index.html John: The Sky's the LimitTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Includes his developmental program that resulted in John being at the head of his Kindergarten class at age five. Also lists his nutritional supplements.
Other resource N37 Abigail's Down Syndrome Pictures and Storieshttp://www.iolky.com/down-syndrome/children/pics/ Abigail's Down Syndrome Pictures and StoriesTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Stories and pictures from her and her family's daily life. Also the article, "God, Do You Care," and a FAQ providing information on how Abigail achieved good health and development.
Other resource N38 Darbi's Placehttp://coolbeansdesigns.com/darbisplace/index.htm Darbi's PlaceTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Pictures, a mom's story, and information about about Darbi's open heart surgery.
Other resource N39 ELIJAH-dot-NEThttp://elijah.net/ ELIJAH-dot-NETTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Pictures of Elijah at various ages, with links to information on Down Syndrome.
Other resource N40 Ryan's Storyhttp://leeworks.net/Lee/ryan.html Ryan's StoryTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Ryan's birth and diagnosis, Down Syndrome links, and family pictures.
Other resource N41 Rachel's Storyhttp://freespace.virgin.net/rachels.story/ Rachel's StoryTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Has a diary by Rachel's Mum to chart her milestones. Also a hospital diary on Rachel's heart surgery.
Other resource N42 About A Boy With Down Syndromehttp://www.gabrieldownsyn.com About A Boy With Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages This site has photos, a book list, and essays on having a child with disabilities
Other resource N43 Turner's Syndrome Society, Texashttp://www.onr.com/ts-texas/ Turner's Syndrome Society, TexasTop/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome Providing links and information about Turner's Syndrome. Definition and Synonyms, FAQ, TSS Societies (National, State, and Local), Associated Links, Newsgroup discussions, Conference Information.
Other resource N44 National Library of Medicinehttp://www.nlm.nih.gov/cgi/jablonski/syndrome_cgi?term=Turner+syndrome+(TS)&field=name National Library of MedicineTop/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome Offers synonyms for Turner syndrome, a summary and a list of major features.
Other resource N45 Turner Syndromehttp://www.turnersendromu.8m.com Turner SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome A site prepared by the family of a young girl with TS. Includes her story, information about the syndrome and its treatment, FAQs, photos and links. [English, Turkish]
Other resource N46 Turners Syndrome Supporthttp://www.geocities.com/turnersonline Turners Syndrome SupportTop/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome A personal site offering support and information.
Other resource N47 MedicineNet.com : Alkaptonuriahttp://www.medicinenet.com/Script/Main/Art.asp?li=MNI&ArticleKey=7804 MedicineNet.com : AlkaptonuriaTop/Health/Conditions_and_Diseases/Genetic_Disorders/Alkaptonuria An article about this disease beginning with an explanation as to what it is, followed by how it is inherited, how it affects the joints, symptoms, diagnosis and treatment.
Other resource N48 Xeroderma Pigmentosum Societyhttp://www.xps.org Xeroderma Pigmentosum SocietyTop/Health/Conditions_and_Diseases/Genetic_Disorders/Xeroderma_Pigmentosum Resource for information about the disease and about the not-for-profit support organization devoted to supporting patients and families and promoting research. Links, contact information, XP Society news about fund raising events and the unique Camp Sundown program.
Other resource N49 Xeroderma Pigmentosumhttp://digilander.libero.it/camdic/XERODERMA%20PIGMENTOSUM.html Xeroderma PigmentosumTop/Health/Conditions_and_Diseases/Genetic_Disorders/Xeroderma_Pigmentosum An article about this disorder in English and Italian along with some images.
Other resource N50 Understanding Xeroderma Pigmentosumhttp://www.cc.nih.gov/ccc/patient_education/pepubs/xeroderma.pdf Understanding Xeroderma PigmentosumTop/Health/Conditions_and_Diseases/Genetic_Disorders/Xeroderma_Pigmentosum Online booklet providing a general overview and description of the disorder and answers to frequently asked questions. Produced by the US National Institues of Health. [PDF Format]
Other resource N51 Williams Syndromehttp://www.ninds.nih.gov/health_and_medical/disorders/williams.htm Williams SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Williams_Syndrome Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Other resource N52 A Music Camp for Those Afflicted but Gifted, Toohttp://nytimes.com/2002/08/26/national/26CAMP.html A Music Camp for Those Afflicted but Gifted, TooTop/Health/Conditions_and_Diseases/Genetic_Disorders/Williams_Syndrome New York Times feature article about the Belvoir Terrace summer music camp program for people with Williams syndrome.
Other resource N53 Moylan Family Websitehttp://homepage.eircom.net/~moylanfamily Moylan Family WebsiteTop/Health/Conditions_and_Diseases/Genetic_Disorders/Williams_Syndrome An Irish family's experience of Williams Syndrome.
Other resource N54 Alagille Syndromehttp://www.ikp.unibe.ch/lab2/Alagille.htm Alagille SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Alagille_Syndrome Discussion of the genetics, clinical presentation, natural history, and treatment of Alagille's syndrome.
Other resource N55 Children's Liver Alliancehttp://www.liverkids.org.au/alagille.htm Children's Liver AllianceTop/Health/Conditions_and_Diseases/Genetic_Disorders/Alagille_Syndrome A description, the diagnosis, symptoms, treatment and complications of Alagille syndrome.
Other resource N56 PulmonologyChannelhttp://www.pulmonologychannel.com/cf/ PulmonologyChannelTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Information on cystic fibrosis.
Other resource N57 Cystic Fibrosis Resource Centerhttp://www.healingwell.com/cysticfibrosis/ Cystic Fibrosis Resource CenterTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.
Other resource N58 Cystic Fibrosis Linkshttp://www.goodgulf.com/cystic.html Cystic Fibrosis LinksTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Cystic Fibrosis Links and Information
Other resource N59 Cystic Fibrosis Managementhttp://www.thorne.com/altmedrev/fulltext/cystic.html Cystic Fibrosis ManagementTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Article detailing therapeutic options for co-management.
Other resource N60 Cystic Fibrosis Western Australiahttp://www.cysticfibrosiswa.org Cystic Fibrosis Western AustraliaTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
Other resource N61 The Spirit of Lo - Inspirational Bookhttp://www.spiritoflo.com The Spirit of Lo - Inspirational BookTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.
Other resource N62 Home Page-Harminderhttp://student.biology.arizona.edu/honors96/group9/Page2.html Home Page-HarminderTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true.
Other resource N63 CysticFibrosis.comhttp://cysticfibrosis.com/ CysticFibrosis.comTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.
Other resource N64 Official Site for CFF Jack Buck Book Eventhttp://www.jackbuckbook.com/homepage.asp Official Site for CFF Jack Buck Book EventTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Fund-Raisers "Jack Buck, A Collection of Poems and Stories", by Jack Buck. 100% of the proceeds from the sale of this book go directly to Cystic Fibrosis Foundation.
Other resource N65 Corrine's Pride: 5K Run for Cystic Fibrosishttp://web.tampabay.rr.com/corrinespride/ Corrine's Pride: 5K Run for Cystic FibrosisTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Fund-Raisers A non-profit organization inspired by Corrine who was diagnosed with Cystic Fibrosis. The 5K run is an annual event in Staten Island, NY.
Other resource N66 Raise for CFhttp://www.raiseforcf.com Raise for CFTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Fund-Raisers Dedicated to raising funds for the Cystic Fibrosis Trust's gene therapy research through organizing fund raising events. Find useful links, news, donate and get involved.
Other resource N67 Camp Jenneyhttp://www.lungnebraska.org/whatwedo/jenney.asp Camp JenneyTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Camps Summer residential camp for all Nebraska children who have cystic fibrosis. An infirmary is staffed 24 hours a day with specialist physicians, nurses and respiratory therapists. Camp Jenney is a joint project of the lung association and Concerned Nebraskans for Cystic Fibrosis.
Other resource N68 Camp Wak-n-Hakhttp://www.glrs.org/MetroGLRS%20summer%20Directory%2001/cystic_fibrosis/camp_wak_n_hak.htm Camp Wak-n-HakTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Camps Overnight camp lasting one week for medically fragile children with cystic fibrosis. All programming and medical care included throughout the week. Horseback riding, swimming, canoeing, and creative cooking are offered. Campers need to bring their own medications. Camp is located at Camp Twin Lakes, Rutledge, Georgia.
Other resource N69 Genevieve's Cystic Fibrosis Sitehttp://www.angelfire.com/ok4/cfgen Genevieve's Cystic Fibrosis SiteTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages About a personal journey living with this disease, and alternative therapies used, besides antibiotics.
Other resource N70 Billycook.comhttp://www.billycook.com Billycook.comTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Billy Cook battled cystic fibrosis and died. The site generates funding for patients of this deadly disease.
Other resource N71 CF101http://www3.nbnet.nb.ca/normap/CF.htm CF101Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Page by a woman with CF. Features links to various information on cystic fibrosis.
Other resource N72 The Cystic Fibrosis Web page of the Niagara Cystic Fibrosis Chapter Canadahttp://www.iaw.on.ca/~meb/ The Cystic Fibrosis Web page of the Niagara Cystic Fibrosis Chapter CanadaTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Information from the Niagara Cystic Fibrosis chapter in Canada.
Other resource N73 Welcome to Ricky's Pagehttp://www.geocities.com/enchantedforest/mountain/8989/ Welcome to Ricky's PageTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages About a little boy with CF.
Other resource N74 Bauer Pagehttp://www.geocities.com/Area51/Station/9096/cfpage.html Bauer PageTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Links and personal story of a woman with CF who has had two children.
Other resource N75 Personal page for Aleeyahttp://www.geocities.com/WallStreet/Floor/1739/ Personal page for AleeyaTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Page by a woman for her granddaughter who has cystic fibrosis.
Other resource N76 Simon Stothardhttp://www.cfbutterflies.4t.com/ Simon StothardTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Personal site with "bits" from family members.
Other resource N77 Chazes CF pageshttp://www.members.tripod.com/chuckmayer/cf.html Chazes CF pagesTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Site by a man with CF. Includes a list of symptoms and other information.
Other resource N78 vital statisticshttp://members.tripod.com/GRJohns/vital.htm vital statisticsTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Site by an English man with CF.
Other resource N79 Seth Meldehttp://members.aol.com/O65Roses/index.html Seth MeldeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Site for a boy with Cystic Fibrosis.
Other resource N80 All About Kurthttp://members.tripod.com/deanandkurt/all_about_kurt.htm All About KurtTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Site by a Canadian man with Cystic Fibrosis.

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