Cystic Fibrosis Victoria Inc

site URL - http://www.cfv.org.au

Site description: Information about Cystic Fibrosis and the organisation, online chat room and message board.




Topic: Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Organizations

LINKURI & TITLEDESCRIPTION & TOPIC
Previous 10Pre-implantation, Pre-natal and Newborn Screening for CFhttp://personal.nbnet.nb.ca/normap/screening.htm Pre-implantation, Pre-natal and Newborn Screening for CFTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Testing Details the tests available for fetuses and newborns for early Cystic Fibrosis diagnosis.
PreviousCystic Fibrosis Nurses: the International Specialist Grouphttp://www.cfnurses.net Cystic Fibrosis Nurses: the International Specialist GroupTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Organizations Organization whose goals include setting and promoting high standards of nursing practice in the treatment of persons with Cystic Fibrosis.
Random 1Ayur Helphttp://www.ayurhelp.com/ Ayur HelpTop/Regional/Asia/India/Karnataka/Localities/Mysore/Business_and_Economy Offer Ayurvedic medicines and free consultations.
Random 2Hydrocephalus Centerhttp://www.patientcenters.com/hydrocephalus/ Hydrocephalus CenterTop/Health/Conditions_and_Diseases/Neurological_Disorders/Hydrocephalus Patient centered guide to hydrocephalus information, resources, and reading material.
Random 3Podiatry Todayhttp://www.podiatrytoday.com/ Podiatry TodayTop/Health/Medicine/Medical_Specialties/Podiatry/Publications Resource for podiatrists and other professionals involved in the medical care of the feet.
Random 4Vital Link Training Serviceshttp://www.vitallinkonline.com Vital Link Training ServicesTop/Regional/North_America/Canada/Ontario/Localities/S/Smithville Offers an emergency medical response program and training in first aid and CPR for organizations. Includes course summaries and an order form for medical supplies.
Random 5Myasthenia Gravis Association of Coloradohttp://www.4-mga.org/myasthenia-gravis.htm Myasthenia Gravis Association of ColoradoTop/Health/Conditions_and_Diseases/Immune_Disorders/Auto-Immune/Myasthenia_Gravis/Organizations To promote the better understanding of this disease through educational and information programs, support services to improve the quality of life for MG, patients and their families.
NextCystic Fibrosis Victoria Inchttp://www.cysticfibrosisvic.org.au/ Cystic Fibrosis Victoria IncTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Organizations Current information on Cystic Fibrosis, Cystic Fibrosis Victoria the organisation, online chat room, message board, '65 Roses Magazine', SSL Secure Online Shop and donations, events
Next 10Milan Foundationhttp://www.milanfoundation.org Milan FoundationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Organizations Created in the name of Milan Brown who, at the age of 3 1/2, was diagnosed with Cystic Fibrosis. Includes a calendar, stories and poems about CF, how to donate, and the foundation's mission.
Random 1Ballet Fantasquehttp://www.balletfantasque.org Ballet FantasqueTop/Arts/Performing_Arts/Dance/Ballet/Companies/North_America/United_States/Regional_or_Civic Home Page for Ballet Fantasque on the Monterey Peninsula, California.
Random 4The HGH Shophttp://www.thehghshop.com/ The HGH ShopTop/Shopping/Health/Alternative/Life_Extension/Human_Growth_Hormone Injectable HGH replacement therapy includes benefits, product comparisons, and patient instructions.
Random 4Anime Homehttp://animehome.1afm.com/ Anime HomeTop/Arts/Animation/Anime/Fandom/A Information and pictures from Dragon Ball Z, Gundam Wing, and Outlaw Star.
Next 70National Library of Medicine: Coffin-Lowry Syndrome (CLS)http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome238.html National Library of Medicine: Coffin-Lowry Syndrome (CLS)Top/Health/Conditions_and_Diseases/Genetic_Disorders/Coffin_Lowry_Syndrome A table showing the synonyms, a summary and major features.
Previous 70Simon Stothardhttp://www.cfbutterflies.4t.com/ Simon StothardTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Personal site with "bits" from family members.
Next 170MCW Healthlink: Incontinentia Pigmentihttp://healthlink.mcw.edu/article/921770674.html MCW Healthlink: Incontinentia PigmentiTop/Health/Conditions_and_Diseases/Genetic_Disorders/Incontinentia_Pigmenti An article about this rare genetic disorder, its stages and symptoms.
Previous 170Down Syndrome : A Parent's Resourcehttp://www3.sympatico.ca/terry.edwards/Shelby.html Down Syndrome : A Parent's ResourceTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Information about Down Syndrome, and a collection of parents' stories.
Next 270
Previous 270Down Syndrome: For New Parentshttp://www.downsyn.com Down Syndrome: For New ParentsTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Dedicated to providing parents with information about Down syndrome.
Other resource N0 The PREP Programhttp://www.prepprog.org The PREP ProgramTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome A school and resource centre. Includes descriptions of what they do with toddlers, school-aged children, and teens. Also included are their fees.
Other resource N1 Learn about Down Syndromehttp://www.mamashealth.com/syndrome/downsyn.asp Learn about Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome What it is, symptoms, and statistics as to how often it occurs.
Other resource N2 Down's Syndrome Medical Interest Group (UK)http://www.dsmig.org.uk/ Down's Syndrome Medical Interest Group (UK)Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Information for healthcare professionals, including UK-specific growth charts, guidelines, and medical information library.
Other resource N3 Chapel Haven - New Haven, Connecticuthttp://www.chapelhaven.org Chapel Haven - New Haven, ConnecticutTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Residential school and independent living facility offering a range of supports for adults (18+) with cognitive disabilities
Other resource N4 National Down Syndrome Cytogenetic Register (UK)http://www.mds.qmw.ac.uk/wolfson/ndscr/ National Down Syndrome Cytogenetic Register (UK)Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Information about an anonymous register allowing researchers to analyse possible causal factors. Includes interpretation of the results.
Other resource N5 New Attitudes Enhance Care of Adults with Down Syndromehttp://healthlink.mcw.edu/article/1031002308.html New Attitudes Enhance Care of Adults with Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome A short MCW healthlink article by Dr. David Smith regarding successful health care management of people with Down syndrome.
Other resource N6 Down Syndrome Forumhttp://www.downsyndromeforum.com Down Syndrome ForumTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Find a community for families associated with down syndrome to share. Includes discussions, web links, surveys and stats.
Other resource N7 Cognitive Enhancement Research Institutehttp://www.ceri.com/downhome.htm Cognitive Enhancement Research InstituteTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Nutrition Articles on smart drugs, antioxidants, and other vitamins in nutritional intervention in Down Syndrome. Also includes an interview with Dixie Lawrence.
Other resource N8 Jacob and DS Treatmenthttp://home.austarnet.com.au/caradonhouse/down.htm Jacob and DS TreatmentTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Nutrition A personal story of how Jacob was successfully treated using metabolic therapy. There are pictures.
Other resource N9 Down's Syndrome Association, Lincolnshire Branchhttp://www.emandan.freeserve.co.uk Down's Syndrome Association, Lincolnshire BranchTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Poems and stories, articles, and book reviews.
Other resource N10 Down's Syndrome Association, London Branch, UKhttp://www.downs-syndrome-london.org.uk Down's Syndrome Association, London Branch, UKTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Support group for parents and carers of people with Down's Syndrome.
Other resource N11 Eastern Pennsylvania Down Syndrome Centerhttp://www.epdsc.org/ Eastern Pennsylvania Down Syndrome CenterTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Includes a message board and chat room, also a list of their coming events.
Other resource N12 Down Syndrome Research Online Advocacy Grouphttp://www.dsresearch.org Down Syndrome Research Online Advocacy GroupTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Information on clinical, biomedical, and scientific research into Down syndrome.
Other resource N13 Piedmont Down Syndrome Support Networkhttp://www.thedepot.com/groups-downsyndrome Piedmont Down Syndrome Support NetworkTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Information about the parent support group for Winston-Salem, North Carolina.
Other resource N14 Gold Coast Down Syndrome Organizationhttp://www.goldcoastdownsyndrome.org Gold Coast Down Syndrome OrganizationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations In Palm Beach county, FL. Provides a FAQ and inclusion information.
Other resource N15 Aim - High Down Syndromehttp://www.aim-high.org Aim - High Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations In New York. Articles, membership, and events.
Other resource N16 Down Syndrome Catalana Foundationhttp://www.fcsd.org/eng/index.htm Down Syndrome Catalana FoundationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Information about the foundation.
Other resource N17 Trisomy 21 Foundation of Northern New Yorkhttp://www.trisomy21foundation.com Trisomy 21 Foundation of Northern New YorkTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Includes information on clinical studies, a scrapbook, upcoming events, and newsletter.
Other resource N18 North Country Down Syndrome Associationhttp://ncdsasite.org North Country Down Syndrome AssociationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Provides information about the association, which is located in Plattsburgh, NY, serving Clinton and Essex Counties. Also has pictures.
Other resource N19 Piedmont Buddy Walkhttp://www.piedmontbuddywalk.org Piedmont Buddy WalkTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Annual non-profit event to benefit families affected by Down syndrome with all proceeds going to the Piedmont Down syndrome Support Network (PDSSN)of North Carolina.
Other resource N20 Down Syndrome Liverpoolhttp://www.ds-liverpool.org.uk Down Syndrome LiverpoolTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Local support group for those with DS, their parents and carers. A registered charity in the UK
Other resource N21 Down Syndrome Association of Greater New Orleanshttp://www.dsagno.com/ Down Syndrome Association of Greater New OrleansTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Has photo gallery and a list of the association's board members.
Other resource N22 Jane and Richard Thomas Center for Down Syndromehttp://www.cincinnatichildrens.org/svc/dept-div/disabilities/down/default.htm Jane and Richard Thomas Center for Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations at Cincinnati Children's Hospital Medical Center offers innovative approaches to caring for children with Down syndrome.
Other resource N23 The Ups of Downshttp://www.littleangels.gbr.cc The Ups of DownsTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Dedicated to parents of children with Down Syndrome. Membership is free and open to anyone. Includes information about Downs, education and literature.
Other resource N24 John: The Sky's the Limithttp://www.comwares.net/marrs/index.html John: The Sky's the LimitTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Includes his developmental program that resulted in John being at the head of his Kindergarten class at age five. Also lists his nutritional supplements.
Other resource N25 Abigail's Down Syndrome Pictures and Storieshttp://www.iolky.com/down-syndrome/children/pics/ Abigail's Down Syndrome Pictures and StoriesTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Stories and pictures from her and her family's daily life. Also the article, "God, Do You Care," and a FAQ providing information on how Abigail achieved good health and development.
Other resource N26 Darbi's Placehttp://coolbeansdesigns.com/darbisplace/index.htm Darbi's PlaceTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Pictures, a mom's story, and information about about Darbi's open heart surgery.
Other resource N27 ELIJAH-dot-NEThttp://elijah.net/ ELIJAH-dot-NETTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Pictures of Elijah at various ages, with links to information on Down Syndrome.
Other resource N28 Ryan's Storyhttp://leeworks.net/Lee/ryan.html Ryan's StoryTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Ryan's birth and diagnosis, Down Syndrome links, and family pictures.
Other resource N29 Rachel's Storyhttp://freespace.virgin.net/rachels.story/ Rachel's StoryTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Has a diary by Rachel's Mum to chart her milestones. Also a hospital diary on Rachel's heart surgery.
Other resource N30 About A Boy With Down Syndromehttp://www.gabrieldownsyn.com About A Boy With Down SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages This site has photos, a book list, and essays on having a child with disabilities
Other resource N31 Turner's Syndrome Society, Texashttp://www.onr.com/ts-texas/ Turner's Syndrome Society, TexasTop/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome Providing links and information about Turner's Syndrome. Definition and Synonyms, FAQ, TSS Societies (National, State, and Local), Associated Links, Newsgroup discussions, Conference Information.
Other resource N32 National Library of Medicinehttp://www.nlm.nih.gov/cgi/jablonski/syndrome_cgi?term=Turner+syndrome+(TS)&field=name National Library of MedicineTop/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome Offers synonyms for Turner syndrome, a summary and a list of major features.
Other resource N33 Turner Syndromehttp://www.turnersendromu.8m.com Turner SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome A site prepared by the family of a young girl with TS. Includes her story, information about the syndrome and its treatment, FAQs, photos and links. [English, Turkish]
Other resource N34 Turners Syndrome Supporthttp://www.geocities.com/turnersonline Turners Syndrome SupportTop/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome A personal site offering support and information.
Other resource N35 MedicineNet.com : Alkaptonuriahttp://www.medicinenet.com/Script/Main/Art.asp?li=MNI&ArticleKey=7804 MedicineNet.com : AlkaptonuriaTop/Health/Conditions_and_Diseases/Genetic_Disorders/Alkaptonuria An article about this disease beginning with an explanation as to what it is, followed by how it is inherited, how it affects the joints, symptoms, diagnosis and treatment.
Other resource N36 Xeroderma Pigmentosum Societyhttp://www.xps.org Xeroderma Pigmentosum SocietyTop/Health/Conditions_and_Diseases/Genetic_Disorders/Xeroderma_Pigmentosum Resource for information about the disease and about the not-for-profit support organization devoted to supporting patients and families and promoting research. Links, contact information, XP Society news about fund raising events and the unique Camp Sundown program.
Other resource N37 Xeroderma Pigmentosumhttp://digilander.libero.it/camdic/XERODERMA%20PIGMENTOSUM.html Xeroderma PigmentosumTop/Health/Conditions_and_Diseases/Genetic_Disorders/Xeroderma_Pigmentosum An article about this disorder in English and Italian along with some images.
Other resource N38 Understanding Xeroderma Pigmentosumhttp://www.cc.nih.gov/ccc/patient_education/pepubs/xeroderma.pdf Understanding Xeroderma PigmentosumTop/Health/Conditions_and_Diseases/Genetic_Disorders/Xeroderma_Pigmentosum Online booklet providing a general overview and description of the disorder and answers to frequently asked questions. Produced by the US National Institues of Health. [PDF Format]
Other resource N39 Williams Syndromehttp://www.ninds.nih.gov/health_and_medical/disorders/williams.htm Williams SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Williams_Syndrome Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Other resource N40 A Music Camp for Those Afflicted but Gifted, Toohttp://nytimes.com/2002/08/26/national/26CAMP.html A Music Camp for Those Afflicted but Gifted, TooTop/Health/Conditions_and_Diseases/Genetic_Disorders/Williams_Syndrome New York Times feature article about the Belvoir Terrace summer music camp program for people with Williams syndrome.
Other resource N41 Moylan Family Websitehttp://homepage.eircom.net/~moylanfamily Moylan Family WebsiteTop/Health/Conditions_and_Diseases/Genetic_Disorders/Williams_Syndrome An Irish family's experience of Williams Syndrome.
Other resource N42 Alagille Syndromehttp://www.ikp.unibe.ch/lab2/Alagille.htm Alagille SyndromeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Alagille_Syndrome Discussion of the genetics, clinical presentation, natural history, and treatment of Alagille's syndrome.
Other resource N43 Children's Liver Alliancehttp://www.liverkids.org.au/alagille.htm Children's Liver AllianceTop/Health/Conditions_and_Diseases/Genetic_Disorders/Alagille_Syndrome A description, the diagnosis, symptoms, treatment and complications of Alagille syndrome.
Other resource N44 PulmonologyChannelhttp://www.pulmonologychannel.com/cf/ PulmonologyChannelTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Information on cystic fibrosis.
Other resource N45 Cystic Fibrosis Resource Centerhttp://www.healingwell.com/cysticfibrosis/ Cystic Fibrosis Resource CenterTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.
Other resource N46 Cystic Fibrosis Linkshttp://www.goodgulf.com/cystic.html Cystic Fibrosis LinksTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Cystic Fibrosis Links and Information
Other resource N47 Cystic Fibrosis Managementhttp://www.thorne.com/altmedrev/fulltext/cystic.html Cystic Fibrosis ManagementTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Article detailing therapeutic options for co-management.
Other resource N48 Cystic Fibrosis Western Australiahttp://www.cysticfibrosiswa.org Cystic Fibrosis Western AustraliaTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
Other resource N49 The Spirit of Lo - Inspirational Bookhttp://www.spiritoflo.com The Spirit of Lo - Inspirational BookTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.
Other resource N50 Home Page-Harminderhttp://student.biology.arizona.edu/honors96/group9/Page2.html Home Page-HarminderTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true.
Other resource N51 CysticFibrosis.comhttp://cysticfibrosis.com/ CysticFibrosis.comTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.
Other resource N52 Official Site for CFF Jack Buck Book Eventhttp://www.jackbuckbook.com/homepage.asp Official Site for CFF Jack Buck Book EventTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Fund-Raisers "Jack Buck, A Collection of Poems and Stories", by Jack Buck. 100% of the proceeds from the sale of this book go directly to Cystic Fibrosis Foundation.
Other resource N53 Corrine's Pride: 5K Run for Cystic Fibrosishttp://web.tampabay.rr.com/corrinespride/ Corrine's Pride: 5K Run for Cystic FibrosisTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Fund-Raisers A non-profit organization inspired by Corrine who was diagnosed with Cystic Fibrosis. The 5K run is an annual event in Staten Island, NY.
Other resource N54 Raise for CFhttp://www.raiseforcf.com Raise for CFTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Fund-Raisers Dedicated to raising funds for the Cystic Fibrosis Trust's gene therapy research through organizing fund raising events. Find useful links, news, donate and get involved.
Other resource N55 Camp Jenneyhttp://www.lungnebraska.org/whatwedo/jenney.asp Camp JenneyTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Camps Summer residential camp for all Nebraska children who have cystic fibrosis. An infirmary is staffed 24 hours a day with specialist physicians, nurses and respiratory therapists. Camp Jenney is a joint project of the lung association and Concerned Nebraskans for Cystic Fibrosis.
Other resource N56 Camp Wak-n-Hakhttp://www.glrs.org/MetroGLRS%20summer%20Directory%2001/cystic_fibrosis/camp_wak_n_hak.htm Camp Wak-n-HakTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Camps Overnight camp lasting one week for medically fragile children with cystic fibrosis. All programming and medical care included throughout the week. Horseback riding, swimming, canoeing, and creative cooking are offered. Campers need to bring their own medications. Camp is located at Camp Twin Lakes, Rutledge, Georgia.
Other resource N57 Genevieve's Cystic Fibrosis Sitehttp://www.angelfire.com/ok4/cfgen Genevieve's Cystic Fibrosis SiteTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages About a personal journey living with this disease, and alternative therapies used, besides antibiotics.
Other resource N58 Billycook.comhttp://www.billycook.com Billycook.comTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Billy Cook battled cystic fibrosis and died. The site generates funding for patients of this deadly disease.
Other resource N59 CF101http://www3.nbnet.nb.ca/normap/CF.htm CF101Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Page by a woman with CF. Features links to various information on cystic fibrosis.
Other resource N60 The Cystic Fibrosis Web page of the Niagara Cystic Fibrosis Chapter Canadahttp://www.iaw.on.ca/~meb/ The Cystic Fibrosis Web page of the Niagara Cystic Fibrosis Chapter CanadaTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Information from the Niagara Cystic Fibrosis chapter in Canada.
Other resource N61 Welcome to Ricky's Pagehttp://www.geocities.com/enchantedforest/mountain/8989/ Welcome to Ricky's PageTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages About a little boy with CF.
Other resource N62 Bauer Pagehttp://www.geocities.com/Area51/Station/9096/cfpage.html Bauer PageTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Links and personal story of a woman with CF who has had two children.
Other resource N63 Personal page for Aleeyahttp://www.geocities.com/WallStreet/Floor/1739/ Personal page for AleeyaTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Page by a woman for her granddaughter who has cystic fibrosis.
Other resource N64 Simon Stothardhttp://www.cfbutterflies.4t.com/ Simon StothardTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Personal site with "bits" from family members.
Other resource N65 Chazes CF pageshttp://www.members.tripod.com/chuckmayer/cf.html Chazes CF pagesTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Site by a man with CF. Includes a list of symptoms and other information.
Other resource N66 vital statisticshttp://members.tripod.com/GRJohns/vital.htm vital statisticsTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Site by an English man with CF.
Other resource N67 Seth Meldehttp://members.aol.com/O65Roses/index.html Seth MeldeTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Site for a boy with Cystic Fibrosis.
Other resource N68 All About Kurthttp://members.tripod.com/deanandkurt/all_about_kurt.htm All About KurtTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Site by a Canadian man with Cystic Fibrosis.
Other resource N69 AussieBillaBonghttp://www.angelfire.com/ms2/CysticFibrosisMarfan/index.html AussieBillaBongTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Single mothers fight with Cystic Fibrosis and Marfans syndrome, affecting one lung.
Other resource N70 A Message From Above Cystic Fibrosis Awarenesshttp://www.amessagefromabove.com/ A Message From Above Cystic Fibrosis AwarenessTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages/Memorials Memorial page for two sisters who lost their battle with cystic fibrosis.
Other resource N71 An Angel Among Ushttp://www.geocities.com/thegarnetgirl/angel/angelindex.html An Angel Among UsTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages/Memorials Memorial/dedication site for a young woman who lost her life to cystic fibrosis.
Other resource N72 NPR : Laura Rothenberg Rememberedhttp://www.npr.org/display_pages/features/feature_1199420.html NPR : Laura Rothenberg RememberedTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages/Memorials Reporter and producer Joe Richman first met Laura Rothenberg when he began recruiting young people to contribute to his "Radio Diaries" series. Rothenberg died March 20, 2003 at age 22 after a lifelong struggle with cystic fibrosis, but left behind a wealth of insights about her own mortality and a life worth living. Listen to "My So-Called Lungs" -- the documentary featuring Rothenberg's diary entries -- first heard on NPR in August 2002.
Other resource N73 Frankie's home pagehttp://hometown.aol.com/Radio15420/home.html Frankie's home pageTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages/Post_Transplant Biographical site by a man with CF who underwent a double lung transplant.
Other resource N74 Providence Cystic Fibrosis Centerhttp://www.cfcenter.net/ Providence Cystic Fibrosis CenterTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Medical_Facilities Ran by Dr. Bohdan Pichurko. Includes staff biographies, contact information, events, and latest developments in treatment.
Other resource N75 Cystic Fibrosishttp://www.med.monash.edu.au/paediatrics/cf.html Cystic FibrosisTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Medical_Facilities Page for Monash University, Department of Paediatrics. Admission policy, treatment, and sweat test.
Other resource N76 Allergy & Pulmonary Medicine CF Centerhttp://peds.wustl.edu/div/pulmonary/spec/cystic_fibrosis/ Allergy & Pulmonary Medicine CF CenterTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Medical_Facilities Cystic Fibrosis Center at Washington University in St. Louis Missouri. Information on pediatric and adult clinics.
Other resource N77 HOPGENEhttp://www.hopkins-genomics.org/cf/cf_research.html HOPGENETop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Medical_Facilities Cystic Fibrosis Genomic Research at Johns Hopkins University.
Other resource N78 University of Wisconsin Cystic Fibrosis Centerhttp://www.pediatrics.wisc.edu/patientcare/cf/ University of Wisconsin Cystic Fibrosis CenterTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Medical_Facilities Provides information on staff, newsletter and CF Cookbook with high calorie recipes.
Other resource N79 Cystic Fibrosis Index of On-Line Resourceshttp://vmsb.csd.mu.edu/%7e5418lukasr/cystic.html Cystic Fibrosis Index of On-Line ResourcesTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Support_Groups The CysticFibrosis Index of On-Line Resources is intended to be an exhaustive guide toAll on-line web pages, news groups, FAQs, chat rooms, and mailing listsassociated with Cystic Fibrosis.
Other resource N80 CF 4 Christianshttp://groups.yahoo.com/group/CF_4_Christians CF 4 ChristiansTop/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Support_Groups A Cystic Fibrosis support group that shares a common bond of Christianity through prayer support, daily devotions and open discussion about CF. Find joining instructions for this Yahoo! group.

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