site URL - http://www.njsocf.org
Site description: NJSOCF provides direct, hands on financial assistance to CF patients throughout the state, counseling, referrals and educational materials to patients and their families. Includes a Q&A's, news, services offered and coming events.
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| LINK | URI & TITLE | DESCRIPTION & TOPIC | |
| Previous 10 | Dream Holidays Charity | http://www.cfdreamholidays.com/ Dream Holidays Charity | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Organizations The Dream Holidays Charity helps families who have a child with Cystic Fibrosis, a genetic life threatening disease. We arrange holidays and wishes for these children with no cost to the family. |
| Previous | Concerned Friends of Cystic Fibrosis in Israel | http://www.cfcfisrael.org Concerned Friends of Cystic Fibrosis in Israel | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Organizations Charitable organization that helps families in Israel who have a member suffering from CF. Includes news, medical equipment needed, and donation information. |
| Random 1 | Worldwide Air Medical Transport | http://www.ABLEJET.com/ Worldwide Air Medical Transport | Top/Health/Public_Health_and_Safety/Emergency_Services/Medical/Air_Ambulance List and description of worldwide air transport services provided by Able American Jets, operating out of Pinellas County, Florida. |
| Random 2 | Amantadine - FamilyDoctor.org | http://www.familydoctor.org/cgi-bin/multum.pl?op=GetLeaflet&id=12021&name=amantadine Amantadine - FamilyDoctor.org | Top/Health/Pharmacy/Drugs_and_Medications/A/Amantadine Information for patients in English or Spanish. |
| Random 3 | Wilsonville Fire Department | http://departments.firehouse.com/dept/WilsonvilleAL Wilsonville Fire Department | Top/Health/Public_Health_and_Safety/Emergency_Services/Fire_Fighting/North_America/United_States/Alabama Includes information on personnel, stations, apparatus and news. |
| Random 4 | Cardinal Health Partners | http://www.cardinalpartners.com/ Cardinal Health Partners | Top/Business/Financial_Services/Venture_Capital/Industry_Focus Investment focus: early-stage e-health and information technology, health care services and life sciences. |
| Random 5 | Georgia Firefighters Burn Foundation - Atlanta | http://www.gfbf.org/ Georgia Firefighters Burn Foundation - Atlanta | Top/Health/Conditions_and_Diseases/Wounds_and_Injuries/Burns The Foundation's mission is to educate the public in burn awareness and prevention, to support medical facilities in the care of burns in Georgia, and to assist burn survivors in their recovery. |
| Next | BioSpace News: Cystic fibrosis | http://www.biospace.com/news_rxtarget.cfm?RxTargetID=63 BioSpace News: Cystic fibrosis | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/News_and_Media News on new developments with Cystic Fibrosis. Kept in an easy to use format with up-to-date links. |
| Next 10 | Hemochromatosis Education and Research | http://www.uwgi.org/hemochromatosis Hemochromatosis Education and Research | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Hemochromatosis Provides education, information and resources for health care providers, patients, and relatives of people with hereditary hemochromatosis. |
| Random 1 | Galaxy Anime.org | http://sathotmis9.tripod.com/index.html Galaxy Anime.org | Top/Arts/Animation/Anime/Fandom/G Images, postcards, fan art, adoptions, links, and multimedia from a variety of anime. |
| Random 4 | Edgworth Outlaws | http://www.edgworthoutlaws.com/ Edgworth Outlaws | Top/Arts/Performing_Arts/Dance/Folk_Dancing/Country_and_Western/Line_Dancing/United_Kingdom Linedancing, Choreography, Country, Music,Dance Scripts. |
| Random 4 | ION Vegas: Mystère by Cirque du Soleil | http://www.ionvegas.com/shmystere.htm ION Vegas: Mystère by Cirque du Soleil | Top/Arts/Performing_Arts/Circus/Circuses/Cirque_Du_Soleil/Shows/Mystère Information on show times and tickets. |
| Next 70 | Adam.com: An Overview | http://www.nlm.nih.gov/medlineplus/ency/article/001186.htm Adam.com: An Overview | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Beckwith-Wiedemann_Syndrome A definition of beckwith-wiedemann syndrome, along with a look at the alternate names, causes, incidence and risk factors. |
| Previous 70 | Cute Petite Chic - A Cystic Fibrosis Web | http://www.cuteptchic.com Cute Petite Chic - A Cystic Fibrosis Web | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages/Memorials Basic information with good description of sweat test, memorial page for a girl lost to CF at age 9, details of her last days and link to give in her memory through Great Strides. |
| Next 170 | MCW Healthlink | http://healthlink.mcw.edu/article/921961934.html MCW Healthlink | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Soto's_Syndrome An article about soto's syndrome with an explanation of what it is, the features, symptoms and the prognosis. |
| Previous 170 | National Organization of Rare Disorders - Xeroderma Pigmentosum | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Xeroderma%20Pigmentosum National Organization of Rare Disorders - Xeroderma Pigmentosum | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Xeroderma_Pigmentosum Offers alternative names, a general discussion and resources. |
| Next 270 | |||
| Previous 270 | National Down Syndrome Cytogenetic Register (UK) | http://www.mds.qmw.ac.uk/wolfson/ndscr/ National Down Syndrome Cytogenetic Register (UK) | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Information about an anonymous register allowing researchers to analyse possible causal factors. Includes interpretation of the results. |
| Other resource N0 | eMedicine Health: Down Syndrome | http://www.emedicinehealth.com/articles/50095-1.asp eMedicine Health: Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome Provides an introduction to the disease and its characteristics, symptoms and treatment. |
| Other resource N1 | Treatment of Children and Adults | http://www.lleichtman.org/tni.shtml Treatment of Children and Adults | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Nutrition Principles behind TNI's use, treatment protocols, and an expanded bibliography. By Dr. Lawrence G. Leichtman, MD, PhD |
| Other resource N2 | Initiative for People with Down's Syndrome | http://members.aol.com/InitiativeDown/index.htm Initiative for People with Down's Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Includes photos of children from around the world, and an online exhibition entitled "Variety Enriches Our World." |
| Other resource N3 | Bringing Up Down Syndrome | http://www.buds-sj.org/ Bringing Up Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations In southern New Jersey. Includes a message board, chatroom, and a variety of links. |
| Other resource N4 | Down Syndrome Association of Toronto | http://dsat.ca/ Down Syndrome Association of Toronto | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Information on education and health as it relates to Down Syndrome. |
| Other resource N5 | Friends of Frederick Maryland | http://www.cornetser.com/friends/index.html Friends of Frederick Maryland | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Family Resource Information Education Network for Down Syndrome. Includes a list of events in that area. |
| Other resource N6 | Colorado Springs Down Syndrome Association | http://www.csdsa.org Colorado Springs Down Syndrome Association | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Information about the organization as well as the disease. Includes membership, events, a photo album, articles and links. |
| Other resource N7 | Triangle Down Syndrome Network | http://www.triangledownsyndrome.org Triangle Down Syndrome Network | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations For families in central North Carolina. Online newsletter and stories about their kids. |
| Other resource N8 | Association of Greater Cincinnati for Down Syndrome | http://www.dsagc.com/ Association of Greater Cincinnati for Down Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Information on the programs they offer, and upcoming events. |
| Other resource N9 | Sharing Down Syndrome Arizona | http://sharingds.org/ Sharing Down Syndrome Arizona | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Has a listing of Down Syndrome events in their area, also many poems and stories. |
| Other resource N10 | Mile High Down Syndrome Association | http://www.mhdsa.org Mile High Down Syndrome Association | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Has a section on research, as well as examples of the Kids 'R Kids calendar. |
| Other resource N11 | Central Illinois Down Syndrome Organization (CIDSO) | http://www.cidso.org/ Central Illinois Down Syndrome Organization (CIDSO) | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Contains a list of the organization's goals, and information about their library and events. |
| Other resource N12 | Northern New England Down Syndrome Congress | http://nnedsc.org Northern New England Down Syndrome Congress | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Non-profit organization of families, professionals, and others who are interested in sharing knowledge and the experience of Down Syndrome. |
| Other resource N13 | Down Syndrome Association of NSW Australia | http://www.dsansw.org.au/ Down Syndrome Association of NSW Australia | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Articles, newsletters, stories & photos for people with Down syndrome, their families, friends, educators and health care professionals. |
| Other resource N14 | DSAOC- Down Syndrome Association of Orange County | http://www.dsaoc.org DSAOC- Down Syndrome Association of Orange County | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations Down Syndrome Association of Orange County, based in Santa Ana, California. |
| Other resource N15 | Mosaic Down Syndrome UK | http://www.mosaicdownsyndrome.org/default.htm Mosaic Down Syndrome UK | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations A support group for parents of children born with Mosaic Down Syndrome. Based in the UK, the group warmly welcomes parents from outside the UK. |
| Other resource N16 | International Mosaic Down Syndrome Association | http://www.imdsa.com International Mosaic Down Syndrome Association | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Organizations A non profit organization to help and support parents around the world in research and meeting new people. Includes research, education and contact details. |
| Other resource N17 | Treating Down Syndrome: Mary Alice's Page | http://www.bestweb.net/~castella Treating Down Syndrome: Mary Alice's Page | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Includes resources, pictures, and the accomplishments of Mary Alice. |
| Other resource N18 | Rose | http://www.therosepage.com Rose | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages This family's story of how they almost lost their daughter after heart surgery, and her life since then. |
| Other resource N19 | George and Charley | http://homepages.tesco.net/~d.w.dossett/index.htm George and Charley | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Pictures and links. |
| Other resource N20 | Down's Really Up | http://www.81x.com/DownsReallyUp/MeetMe Down's Really Up | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Jonathan's story. |
| Other resource N21 | Keeping UP With Matthew | http://members.tripod.com/~MattLK/home.html Keeping UP With Matthew | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Story of Matthew Kelley, a boy with Down Syndrome. Includes family pictures. |
| Other resource N22 | Elle | http://mysite.freeserve.com/elles_page Elle | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Story of her mother's pregnancy, and thoughts about Down Syndrome. |
| Other resource N23 | The Story of Kathlyn "Pooh" | http://home.insightbb.com/~momapoohbear/kathlyn.html The Story of Kathlyn "Pooh" | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages The Miracle of Kathlyn Justice Marie.What she went though in her short life and the memories she left behind. Written by her mother. |
| Other resource N24 | Down Syndrome : A Parent's Resource | http://www3.sympatico.ca/terry.edwards/Shelby.html Down Syndrome : A Parent's Resource | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Down_Syndrome/Personal_Pages Information about Down Syndrome, and a collection of parents' stories. |
| Other resource N25 | The National University Hospital Turner Support Group | http://www.med.nus.edu.sg/paed/tsgweb/tsg.html The National University Hospital Turner Support Group | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome For patients with Turner Syndrome and their families, combined with the pharmaceutical company Serono Singapore Pte. Ltd. to co-organise biannual meetings and parties for the group. |
| Other resource N26 | Turner Syndrome: Toward Early Recognition and Improved Outcomes | http://www.medscape.com/viewprogram/2155 Turner Syndrome: Toward Early Recognition and Improved Outcomes | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome Detailed overview of this condition, including clinical features, genetics, diagnosis, defects and medical problems associated with the syndrome, and recommendations for treatment. Includes many photos. [Requires free registration.] |
| Other resource N27 | NORD - Turner Syndrome | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Turner%20Syndrome NORD - Turner Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Turner_Syndrome Offers alternative names, a general discussion and further resources. |
| Other resource N28 | Alkaptonuria | http://www.kfshrc.edu.sa/annals/185/98-055.html Alkaptonuria | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Alkaptonuria A brief discussion about this disease and its statistics world wide. Followed by a case study of a 4 year old boy, whose parents noted the darkening of the urine to an almost black color when it was left standing. |
| Other resource N29 | The Alkaptonuria Society | http://www.alkaptonuria.info/ The Alkaptonuria Society | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Alkaptonuria An information and support network for those people diagnosed with Alkaptonuria. Includes discussions, articles and related resources. |
| Other resource N30 | XP Support Group | http://www.xpsupportgroup.org.uk XP Support Group | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Xeroderma_Pigmentosum UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions. |
| Other resource N31 | Online Mendelian Inheritance in Man - Xeroderma Pigmentosum | http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=278700 Online Mendelian Inheritance in Man - Xeroderma Pigmentosum | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Xeroderma_Pigmentosum Includes summaries of genetic research results and citations. |
| Other resource N32 | Williams Syndrome Association | http://www.williams-syndrome.org/ Williams Syndrome Association | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Williams_Syndrome A rare genetic condition (estimated to occur in 1/20,000 births) which causes medical and developmental problems. |
| Other resource N33 | Williams Syndrome | http://geocities.com/williamssyndrome/index.html Williams Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Williams_Syndrome About the author's daughter, Sereena Celeste Beech, who has this syndrome. |
| Other resource N34 | NORD : Williams Syndrome | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Williams%20Syndrome NORD : Williams Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Williams_Syndrome Offers alternative names, a general discussion and resources. |
| Other resource N35 | Alagille Syndrome Alliance | http://www.alagille.org/ Alagille Syndrome Alliance | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Alagille_Syndrome Worldwide support network for people who care about people with alagille syndrome. |
| Other resource N36 | NORD: Alagille Syndrome | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Alagille%20Syndrome NORD: Alagille Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Alagille_Syndrome The synonyms, a general discussion and further resources. |
| Other resource N37 | CF Advantage | http://wsrv.clas.virginia.edu/~rjh9u/cysfib.html CF Advantage | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis The mutation that causes deadly cystic fibrosis has survived for 52,000 years - perhaps because it offers protection against diarrhea. By Josie Clausiusz |
| Other resource N38 | MyCysticFibrosis.com | http://www.mycysticfibrosis.com MyCysticFibrosis.com | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team. |
| Other resource N39 | Cystic Fibrosis Health FactSheet | http://hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/Cystic_fibrosis.html Cystic Fibrosis Health FactSheet | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format |
| Other resource N40 | The Breathing Room | http://www.thebreathingroom.org The Breathing Room | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Guidance about the art of living with cystic fibrosis. |
| Other resource N41 | Jewish Genetic Diseases - Cystic Fibrosis | http://www.mazornet.com/genetics/cystic_fibrosis.asp Jewish Genetic Diseases - Cystic Fibrosis | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening. |
| Other resource N42 | Cindy's Friends | http://www.cindys-friends.com Cindy's Friends | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Information about the disease, progress being made towards a cure, and fundraising efforts in Tennessee. |
| Other resource N43 | Cystic Fibrosis Resource Centre | http://www.cysticfibrosis.co.uk Cystic Fibrosis Resource Centre | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis A source of information for cystic fibrosis patients, parents, doctors and other carers. |
| Other resource N44 | A-Z Directory of Cystic Fibrosis Resources | http://www.cellscience.com/CFmain.html A-Z Directory of Cystic Fibrosis Resources | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis Biomedical directory with listings of hospitals, charities, research, and information by topic and location. |
| Other resource N45 | University Place Professional Firefighters Union Local 2105 Fund-Raiser | http://www.piercefire.org/up/new_page_4.htm University Place Professional Firefighters Union Local 2105 Fund-Raiser | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Fund-Raisers Proud sponsor and an active fund-raiser for the Cystic Fibrosis foundation for 5 years - there are two annual events - Pizza Take Over Night at the Round Table Pizza Parlor on Bridgeport Way and Tee-Shirt sale. |
| Other resource N46 | Richard Shannon Lung Transplant Fund | http://www.shannonlungs.org/index.html Richard Shannon Lung Transplant Fund | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Fund-Raisers Richard Shannon has Cystic Fibrosis. He is on the list for a lung transplant. A fund raiser is ongoing to pay for expenses beyond what insurance covers. Prayers and contributions are helpful. |
| Other resource N47 | Academy Gala | http://www.academygala.com Academy Gala | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Fund-Raisers Information about this annual Hollywood event. Proceeds benefit the Cystic Fibrosis Foundation. |
| Other resource N48 | Music for Harry | http://www.musicforharry.org.uk Music for Harry | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Fund-Raisers Describes charity music projects which raise money for children with cystic fibrosis. Made a donation online. |
| Other resource N49 | The Cystic Fibrosis Center Ltd, Dead Sea, Israel | http://www.cfcenter.co.il/ The Cystic Fibrosis Center Ltd, Dead Sea, Israel | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Camps Seasonal health camp on the Dead Sea. Information on staff, programs, photo gallery and newsletter. |
| Other resource N50 | CF Rules OK | http://ourworld.compuserve.com/homepages/Pat_and_John_Cuckney/ CF Rules OK | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Mother of a girl with CF has published a book which describes the story of her daughter's life with Cystic Fibrosis. |
| Other resource N51 | If You Ask James... | http://azcowboy88.tripod.com/askjames/ If You Ask James... | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages The personal website of a 31 year old man with CF. It provides current information about Cystic Fibrosis and links to other helpful sites. |
| Other resource N52 | Lungs for Shawn | http://www.geocities.com/atmshawn/ Lungs for Shawn | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Site about Shawn Hunter a 27 year-old man with CF who is waiting for a double lung transplant. Includes a journal of what is happening with Shawn. |
| Other resource N53 | cystic fibrosis | http://members.aol.com/JAW060664/html/cf.html cystic fibrosis | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Site for those wanting to learn about end stage. Not for someone whose child has been recently diagnosed. By a woman waiting for a lung transplant. |
| Other resource N54 | Cindy Lynn's Home Page | http://crayzray.tripod.com/clpage/cl.htm Cindy Lynn's Home Page | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Site by girl with CF. Includes her hobbies, favorite music, favorite books and diagnosis story. |
| Other resource N55 | Sprinkle Triplets Home Page | http://www.mounet.com/~eaowyn/ Sprinkle Triplets Home Page | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Site for a set of triplets one has CF. |
| Other resource N56 | Janet Lynn Rippee personal page | http://49987868.home.icq.com/Janet.html Janet Lynn Rippee personal page | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Page for a little girl with cystic fibrosis. |
| Other resource N57 | Cystic Fibrosis | http://members.tripod.com/~blackwolf54/index.html Cystic Fibrosis | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Personal page by an aunt for her neice with CF. |
| Other resource N58 | Mel Kotlyar | http://www.my2by2.net/shop4cf/now.html Mel Kotlyar | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Personal page by a man with CF. Includes links to shop at various stores with a percent of the proceeds of sales going to the CFF. |
| Other resource N59 | Crista Lint-Kloppenburg | http://www.lintje.com/cfeng.htm Crista Lint-Kloppenburg | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Site by a Dutch woman with Cystic Fibrosis. |
| Other resource N60 | David's Pages | http://www.the-thornes.com/davids.htm David's Pages | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Site by an English man with Cystic Fibrosis. |
| Other resource N61 | CYSTIC FIBROSIS FOR KIDS | http://members.tripod.com/~jtatton/index.html CYSTIC FIBROSIS FOR KIDS | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages This site is for children with cystic fibrosis designed by a man from the Netherlands with CF. |
| Other resource N62 | Sarah Yourman | http://www.sarahyourman.com/ Sarah Yourman | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages Site by a girl with CF and Diabetes. |
| Other resource N63 | Page for Someone Special to Us All | http://www.angelfire.com/pa3/jenjen24/ Page for Someone Special to Us All | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages/Memorials Memorial page for woman with CF. |
| Other resource N64 | Cute Petite Chic - A Cystic Fibrosis Web | http://www.cuteptchic.com Cute Petite Chic - A Cystic Fibrosis Web | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages/Memorials Basic information with good description of sweat test, memorial page for a girl lost to CF at age 9, details of her last days and link to give in her memory through Great Strides. |
| Other resource N65 | Eulogy for Jef Baird | http://www.geocities.com/CapeCanaveral/9740/JEFEULGY.HTM Eulogy for Jef Baird | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages/Memorials Eulogy for a young man who lost his life to CF. |
| Other resource N66 | In Loving Memory of Angie Ekwall | http://www.geocities.com/angelassixtyfiveroses/ In Loving Memory of Angie Ekwall | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages/Memorials A memorial site for Angela Ekwall, who lost her life at age 20 to cystic fibrosis. |
| Other resource N67 | Susy Dirr's Web Page | http://members.aol.com/pretzel20/ Susy Dirr's Web Page | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Personal_Pages/Post_Transplant Site about a woman with CF who underwent a lung transplant. |
| Other resource N68 | Israel's CF Center | http://www.y2lungs.com/TelHashomer.htm Israel's CF Center | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Medical_Facilities National Center for Cystic Fibrosis at the Chaim Sheba Medical Center, Tel Hashomer, is the largest center in Israel. Contact information and hours included. |
| Other resource N69 | CF Pulmonary Treatment & Research Center | http://www.med.unc.edu/wrkunits/3ctrpgm/cystfib/CFcent.htm CF Pulmonary Treatment & Research Center | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Medical_Facilities The UNC Cystic Fibrosis Pulmonary Research and Treatment Center is a large, multidisciplinary group focused on the pathogenesis and therapy of cystic fibrosis and other lung diseases. One of the largest clinical programs in the country with over 500 patients in our pediatric & adult programs. |
| Other resource N70 | Cystic Fibrosis Clinical and Research Center - Seattle | http://depts.washington.edu/cfcenter Cystic Fibrosis Clinical and Research Center - Seattle | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Medical_Facilities University of Washington CF Center. Information on Cf Research Development Program, Core Center for Gene Therapy, Clinic, Research Trials, current events and staff. |
| Other resource N71 | UCLA CF Clinic | http://www.healthcare.ucla.edu/handbook/program.asp?version=5619&programid=79 UCLA CF Clinic | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Medical_Facilities Contact information of Cystic Fibrosis clinic at UCLA. |
| Other resource N72 | Michigan Pulmonary Disease Community, Inc. | http://www.mpdci.org Michigan Pulmonary Disease Community, Inc. | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Support_Groups Organization dedicated to enhancing lives of children and adults with Cystic Fibrosis. |
| Other resource N73 | Cystic Fibrosis Community | http://community.healingwell.com/community/?f=18 Cystic Fibrosis Community | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Support_Groups Active message board and chat for caregivers and individuals with Cystic Fibrosis. Share support, give advice, offer coping skills. Moderated by volunteers. |
| Other resource N74 | Cystic Fibrosis Mutation Data Base | http://www.genet.sickkids.on.ca/cftr/ Cystic Fibrosis Mutation Data Base | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/CFTR_and_Genetic_Mutations Database of Cystic Fibrosis mutations plus other relevant information on these mutations. |
| Other resource N75 | About TOBI and the Management of Cystic Fibrosis | http://www.abouttobi.com About TOBI and the Management of Cystic Fibrosis | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Pharmaceuticals_and_Supplies Information on Tobramycin Solution for Inhalation (TOBI) for pseudomonas infection, by pharmaceutical agency. |
| Other resource N76 | Pulmozyme.com | http://www.pulmozyme.com Pulmozyme.com | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Pharmaceuticals_and_Supplies Cystic fibrosis information, symptoms, and treatments. Pulmozyme (dornase alfa) inhalation solution, from Genentech, Inc. |
| Other resource N77 | Pre-implantation, Pre-natal and Newborn Screening for CF | http://personal.nbnet.nb.ca/normap/screening.htm Pre-implantation, Pre-natal and Newborn Screening for CF | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Testing Details the tests available for fetuses and newborns for early Cystic Fibrosis diagnosis. |
| Other resource N78 | American Medical Association: Cystic Fibrosis Testing | http://www.ama-assn.org/ama/pub/category/9181.html American Medical Association: Cystic Fibrosis Testing | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Testing/Genetic Information on genetic testing to identify people who carry the mutation associated with this condition. |
| Other resource N79 | Neonatal Cystic Fibrosis Screening | http://health.allrefer.com/health/neonatal-cystic-fibrosis-screening-info.html Neonatal Cystic Fibrosis Screening | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Testing/Diagnostic Information sheets on testing for immunoreactive trypsinogen to diagnose CF in infants. Test description, preparation, risks, expectations, special considerations, normal and abnormal values, and evaluation of results. |
| Other resource N80 | Cystic Fibrosis Nurses: the International Specialist Group | http://www.cfnurses.net Cystic Fibrosis Nurses: the International Specialist Group | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis/Organizations Organization whose goals include setting and promoting high standards of nursing practice in the treatment of persons with Cystic Fibrosis. |