site URL - http://maelstrom.stjohns.edu/archives/vicug-l.html
Site description: A visually impaired computer users' group list. Search the archives and join from this site.
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| LINK | URI & TITLE | DESCRIPTION & TOPIC | |
| Previous 10 | Virtual Children's Hospital | http://www.vh.org/pediatric/patient/pediatrics/cqqa/pinkeye.html Virtual Children's Hospital | Top/Health/Conditions_and_Diseases/Eye_Disorders/Conjunctivitis Information on pink eye in the first two months of life in an FAQ format. |
| Previous | Blindskills, Inc. | http://www.blindskills.com Blindskills, Inc. | Top/Health/Conditions_and_Diseases/Eye_Disorders/Blindness Offers solutions and answers to questions regarding blindness, visual impairment and vision loss. |
| Random 1 | Oasis | http://www.oasisllc.com/english/oasis.htm Oasis | Top/Shopping/Health/Disabilities/Assistive_Technology/Recreation Offers table handcycles, adapted cycles, vehicle hand controls, beach wheelchairs. |
| Random 2 | Report: Health problems linger for 9/11 firefighters | http://cnn.com/2002/HEALTH/09/09/firefighter.health.ap/index.html Report: Health problems linger for 9/11 firefighters | Top/News/Online_Archives/CNN.com/2002/September/Health [CNN] |
| Random 3 | Folk Medicine | http://www.wvculture.org/history/wvhs1041.html Folk Medicine | Top/Health/Alternative/Folk_Medicine Referenced article by a home healthcare nurse from West Virginia about the history of folk medicine and practices still in use. |
| Random 4 | MEDLINEplus Medical Encyclopedia: Gingivitis | http://www.nlm.nih.gov/medlineplus/ency/article/001056.htm MEDLINEplus Medical Encyclopedia: Gingivitis | Top/Health/Dentistry/Conditions_and_Diseases/Periodontal Illustrations, causes, prevention, and treatment, from the National Library of Medicine. |
| Random 5 | Anesthesia Reference Materials | http://www.wramc.amedd.army.mil/departments/surgery/Anesthesiology/educatio.htm Anesthesia Reference Materials | Top/Health/Nursing/Specialties/Anesthesia Walter Reed Army Medical Center's site, including field anesthesia basics. |
| Next | The Eye | http://www.99main.com/~charlief/Blindness.htm The Eye | Top/Health/Conditions_and_Diseases/Eye_Disorders/Blindness Includes what to do when meeting a person with vision impairment, the signs of vision loss, legal blindness, braille and other health related links. |
| Next 10 | The Voice | http://www.visualprosthesis.com/voice.htm The Voice | Top/Health/Conditions_and_Diseases/Eye_Disorders/Blindness Translates images from a camera into sounds that one hears via stereo headphones and targetting vision substitution for the totally blind. |
| Random 1 | Meenakshi Ganesan | http://www.kalaanjali.com Meenakshi Ganesan | Top/Arts/Performing_Arts/Dance/Classical_Indian/Dancers Web site of the dancer, with her profile, photo gallery and events calendar, and information on her Kalaanjali School of Dance and Music in Wisconsin, where Bharatanatyam and semi-classical dances are taught. |
| Random 4 | Baradat & Edwards | http://www.fresnopersonalinjurylawyers.com/ Baradat & Edwards | Top/Regional/North_America/United_States/California/Localities/F/Fresno/Business_and_Economy/Legal_Services Concentrating on personal injury, product liability, medical malpractice, professional negligence and insurance law. |
| Random 4 | University of Maryland Radiology | http://www.umm.edu/radiology University of Maryland Radiology | Top/Health/Medicine/Medical_Specialties/Radiology/Departments The Radiology Division at the University of Maryland Medical System offers diagnostic, therapeutic, and interventional radiology to create images of body organs and structures for diagnosis and treatment. (Baltimore, Maryland) |
| Next 70 | National Eye Institute | http://www.nei.nih.gov/ National Eye Institute | Top/Health/Conditions_and_Diseases/Eye_Disorders/Blindness/Organizations Information, press releases, clinical studies, grants and funding opportunities for researchers, an image and video catalog. |
| Previous 70 | Eyequestions.com | http://www.eyequestions.com Eyequestions.com | Top/Health/Conditions_and_Diseases/Eye_Disorders Deals with common eye diseases/conditions/problems. Visitors can also ask questions. |
| Next 170 | ROP FAQs | http://www.charles-retina.com/rop-faq.htm ROP FAQs | Top/Health/Conditions_and_Diseases/Eye_Disorders/Retina/Retinopathy_of_Prematurity Frequently Asked Questions about the disease process and its management. |
| Previous 170 | Costello Kids | http://www.costellokids.co.uk/ Costello Kids | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Costello_Syndrome Official site of the International Costello Syndrome Support Group. Includes medical information, photographs and videos, therapy ideas, news, and links. |
| Next 270 | |||
| Previous 270 | Batten Disease Information Page | http://www.ninds.nih.gov/health_and_medical/disorders/batten.htm Batten Disease Information Page | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Batten Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
| Other resource N0 | MedicineNet.com - Medical Dictionary | http://www.medicinenet.com/Script/Main/Art.asp?li=MNI&ArticleKey=3721 MedicineNet.com - Medical Dictionary | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Hereditary_Angioedema A brief article about hereditary angioedema. |
| Other resource N1 | C-1 Esterase Deficiency | http://www.emedicine.com/med/topic420.htm C-1 Esterase Deficiency | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Hereditary_Angioedema Article from eMedicine.com by Michael Elnicki MD on C-1 Esterase Deficiency also known as Hereditary angioedema (HAE). |
| Other resource N2 | Treacher Collins Syndrome - A Personal View | http://www.treachercollins.co.uk Treacher Collins Syndrome - A Personal View | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Personal_Pages UK based website, containing information about the disorder, with helpful links and discussion forum. |
| Other resource N3 | Robert Kenneth Picklesimer | http://www.picklesimers.com/robert_kenneth.html Robert Kenneth Picklesimer | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Personal_Pages Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project. |
| Other resource N4 | Story of Robert Purkis | http://swpurkis.pwp.blueyonder.co.uk/index.html Story of Robert Purkis | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Personal_Pages A small boy's health problems, possibly Leigh's Syndrome, and how his parents have helped him improve his quality of life. |
| Other resource N5 | Unlucky Mutant | http://unluckymutant.no.sapo.pt Unlucky Mutant | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Personal_Pages The author request help from geneticists, neuroscientists, pharmaceuticals or biotech companies. |
| Other resource N6 | Moebius Syndrome Foundation | http://www.ciaccess.com/moebius/ Moebius Syndrome Foundation | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Mobius_Syndrome Bringing together information from and links to medical and lay support for those affected by Moebius syndrome. |
| Other resource N7 | About.com with Laura L. Jelliffe, Ph.D. | http://genetics.about.com/science/genetics/library/blmob.htm About.com with Laura L. Jelliffe, Ph.D. | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Mobius_Syndrome Symptoms, diagnosis, and treatment of mobius syndrome. Information on research, community outreach and support. |
| Other resource N8 | National Library of Medicine: LS | http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome401.html National Library of Medicine: LS | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Lowe_Syndrome Lowe syndrome, the synonyms, a summary and list of major features. |
| Other resource N9 | THCME Medical Biochemistry Page: Fatty Acid Oxidation | http://web.indstate.edu/thcme/mwking/fatty-acid-oxidation.html THCME Medical Biochemistry Page: Fatty Acid Oxidation | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Fatty_Oxidation An introduction, mobilization of fat stores, oxidation reactions, alternative oxidation pathways, regulation of fatty acid metabolism, clinical aspects of fatty acid metabolism, ketogenesis, regulation of ketogenesis, and clinical significance of ketogenesis. |
| Other resource N10 | Adam's LCHAD Page | http://www.adamslchad.com Adam's LCHAD Page | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Fatty_Oxidation Online journal detailing the life of a boy with LCHAD which is a Fatty Acid Oxidation Disorder. Includes general information details about research studies. |
| Other resource N11 | Hemihypertrophy | http://www.geocities.com/HotSprings/Spa/6112 Hemihypertrophy | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Hemihypertrophy For patient and family, support and information regarding this disease. Related links and mailing list. |
| Other resource N12 | NORD: Meckel Syndrome | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Meckel%20Syndrome NORD: Meckel Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Meckel-Gruber_Syndrome A general discussion and alternate names along with further resources. |
| Other resource N13 | Dr. Greene's HouseCalls | http://www.drgreene.com/body.cfm?id=21&action=detail&ref=599 Dr. Greene's HouseCalls | Top/Health/Conditions_and_Diseases/Genetic_Disorders/DiGeorge_Syndrome The doctor answers a question from a mother about strengthening her daughter immune system. Her daughter has DiGeorges syndrome. |
| Other resource N14 | National Library of Medicine | http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome067.html National Library of Medicine | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Incontinentia_Pigmenti Bloch-sulzberger syndrome, the synonyms, a summary and major features. |
| Other resource N15 | Vanderbilt Medical Center | http://www.mc.vanderbilt.edu/peds/pidl/nutrit/incont.htm Vanderbilt Medical Center | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Incontinentia_Pigmenti An article about incotinentia pigmenti. |
| Other resource N16 | Incontinentia Pigmenti: All About Anna | http://mom_2_three_ip.tripod.com/ Incontinentia Pigmenti: All About Anna | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Incontinentia_Pigmenti The authors' daughter was diagnosed with IP 6 weeks after birth. This is her story. |
| Other resource N17 | National Library of Medicine: Laurence-Moon Syndrome | http://www.nlm.nih.gov/cgi/jablonski/syndrome_cgi?term=Laurence-Moon+syndrome&field=name National Library of Medicine: Laurence-Moon Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Laurence-Moon_Syndrome A look at its former names, a summary and a list of clinical features. |
| Other resource N18 | National Urea Cycle Disorders Foundation | http://www.nucdf.org/ National Urea Cycle Disorders Foundation | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Urea_Cycle Information about the organization as well as the disease. Family support, membership, newborn screening project and medical information. |
| Other resource N19 | The FSP Support Group | http://www.fspgroup.org The FSP Support Group | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Hereditary_Spastic_Paraplegia For people suffering from Familial Spastic Paraplegia. Includes a newsletter, discussion forum, links, and contact details. |
| Other resource N20 | Spastic Paraplegia Foundation | http://sp-foundation.org/ Spastic Paraplegia Foundation | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Hereditary_Spastic_Paraplegia Supports on the upper motor neuron disorders hereditary spastic paraplegia and primary lateral sclerosis. Information about these conditions, disability resources, newsletters, news, announcements, research and support. |
| Other resource N21 | MCW Healthlink | http://healthlink.mcw.edu/article/921961934.html MCW Healthlink | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Soto's_Syndrome An article about soto's syndrome with an explanation of what it is, the features, symptoms and the prognosis. |
| Other resource N22 | International Society for Mannosidosis & Related Diseases | http://www.mannosidosis.org International Society for Mannosidosis & Related Diseases | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Mannosidosis Information about the organization, its mission and services. Provides support, education and research on Alpha Mannosidosis and other similar disorders. |
| Other resource N23 | Justin Comeau | http://personal.nbnet.nb.ca/justin03/ Justin Comeau | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Zellweger_Syndrome A personal page about a little boy who has Zellweger syndrome. Offers family pictures, information about the disease and the personal story of Justin. |
| Other resource N24 | National Library of Medicine | http://www.nlm.nih.gov/cgi/jablonski/syndrome_cgi?term=Weaver+syndrome&field=name National Library of Medicine | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Weaver_Syndrome Synonyms of Weaver syndrome, a summary and a list of major features. |
| Other resource N25 | National Library of Medicine | http://www.nlm.nih.gov/cgi/jablonski/syndrome_cgi?term=Waardenburg+anophthalmia+syndrome&field=name National Library of Medicine | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Waardenburg_Syndrome Offers synonyms, a summary and a list of major features. |
| Other resource N26 | The Andy Fund | http://www.andy.org.mx The Andy Fund | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Ectodermal_Dysplasia Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene. |
| Other resource N27 | Ectodermal Dysplasia Society | http://www.ectodermaldysplasia.org/ Ectodermal Dysplasia Society | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Ectodermal_Dysplasia Information about the organization as well as the ED condition. Includes links, news articles and contact details. |
| Other resource N28 | NORD: Pseudoxanthoma Elasticum | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pseudoxanthoma%20Elasticum%20%28PXE%29 NORD: Pseudoxanthoma Elasticum | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Pseudoxanthoma_Elasticum Offers a general discussion and resources for PXE. |
| Other resource N29 | MJD Fact Sheet | http://glawen.freeyellow.com/joseph3.htm MJD Fact Sheet | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Machado-Joseph In depth look at machado-joseph disease with some resources for further reading. |
| Other resource N30 | NINDS: Lesch-Nyhan Syndrome | http://www.ninds.nih.gov/health_and_medical/disorders/lesch_doc.htm NINDS: Lesch-Nyhan Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Lesch-Nyhan_Syndrome Information sheet compiled by the National Institute of Neurological Disorders and Stroke. |
| Other resource N31 | National Library of Medicine | http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome272.html National Library of Medicine | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Dubowitz_Syndrome Dubowitz syndrome, a look at the synonyms, a summary and list of major features. |
| Other resource N32 | Velo-Cardio-Facial Syndrome Educational Foundation | http://vcfsef.org/ Velo-Cardio-Facial Syndrome Educational Foundation | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Velo-Cardio-Facial_Syndrome Details about this organization as well as an extensive fact sheet about the disease. Includes details about support groups, a mission statement and contact information. |
| Other resource N33 | NORD - Velocardiofacial Syndrome | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Velocardiofacial%20Syndrome NORD - Velocardiofacial Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Velo-Cardio-Facial_Syndrome A list of the synonyms, a general discussion and further resources. |
| Other resource N34 | A-Z Deafblindness | http://www.deafblind.com/usher.html A-Z Deafblindness | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Usher_Syndrome An in depth article by Mary Guest, Head of Usher Services at Sense, about Usher syndrome. Includes detailed description of what it is, the symptoms, genetics, transmission, the problems associated with it and what can be done. |
| Other resource N35 | Zach's Opitz Syndrome Site | http://www.opitzsyndrome.com Zach's Opitz Syndrome Site | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Opitz_Syndrome Offers information, a family's experience with this syndrome and links to the Opitz Family Network. |
| Other resource N36 | NORD: Opitz Syndrome | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Mannosidosis NORD: Opitz Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Opitz_Syndrome A look at the alternate names, a general discussion and resources. |
| Other resource N37 | NORD: Thrombocytopenia Absent Radius Syndrome | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Thrombocytopenia%20Absent%20Radius%20Syndrome NORD: Thrombocytopenia Absent Radius Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Thrombocytopenia_Absent_Radius_Syndrome Offers the synonyms, a general discussion and further resources. |
| Other resource N38 | Sturge-Weber Syndrome Community | http://home.insightbb.com/~gnethi Sturge-Weber Syndrome Community | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Sturge-Weber_Syndrome Support group for individuals and families affected by SWS. |
| Other resource N39 | NORD: Prune Belly Syndrome | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Prune%20Belly%20Syndrome NORD: Prune Belly Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Prune_Belly_Syndrome Offers a list of synonyms, a general discussion and further resources. |
| Other resource N40 | Yahoo! Groups | http://groups.yahoo.com/group/robinow_syndrome/ Yahoo! Groups | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Robinow_Syndrome A new email group for sharing and learning about Robinow syndrome. Join, post and read from this site. |
| Other resource N41 | NORD: Russell Silver Syndrome | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Russell%20Silver%20Syndrome%20%28RSS%29 NORD: Russell Silver Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Russell_Silver_Syndrome Offers a general discussion, the synonyms and further resources. |
| Other resource N42 | Schizencephaly.com | http://www.schizencephaly.com Schizencephaly.com | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Schizencephaly Dedicated to the family, friends, and caregivers of individuals with Schizencephaly. FAQs, forum, and resources. |
| Other resource N43 | NORD: Smith Lemli Opitz Syndrome | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Smith%20Lemli%20Opitz%20Syndrome NORD: Smith Lemli Opitz Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Smith_Lemli_Opitz_Syndrome Offers a brief description, the synonyms and further resources. |
| Other resource N44 | PRISMS (Parents and Researchers Interested in Smith-Magenis Syndrome) | http://www.prisms.org PRISMS (Parents and Researchers Interested in Smith-Magenis Syndrome) | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Smith-Magenis_Syndrome Details about the international support group organization and its mission as well as the condition. Includes an introduction, diagnosis, parent's corner, meet other people with SMS and educational considerations. |
| Other resource N45 | Shwachman-Diamond Syndrome International | http://www.shwachman-diamond.org/ Shwachman-Diamond Syndrome International | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Shwachman_Syndrome Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available. |
| Other resource N46 | NORD: Shwachman Syndrome | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Shwachman%20Syndrome NORD: Shwachman Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Shwachman_Syndrome Offers a general discussion, the synonyms and further resources. |
| Other resource N47 | The CaF Directory | http://www.cafamily.org.uk/Direct/p50.html The CaF Directory | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Proteus_Syndrome A definition of Proteus syndrome, its inheritance pattern, pre-natal diagnosis and a support group. |
| Other resource N48 | National Library of Medicine: Multiple Pterygium Syndrome | http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome471.html National Library of Medicine: Multiple Pterygium Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Popliteal_Pterygium_Syndrome Includes the synonyms, a summary and the major features. |
| Other resource N49 | NORD: Pallister Killian Mosaic Syndrome | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pallister%20Killian%20Mosaic%20Syndrome NORD: Pallister Killian Mosaic Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Pallister_Killian_Mosaic_Syndrome Offers the synonyms, a general discussion and further resources. |
| Other resource N50 | Pallister-Hall Syndrome: A Layman's Guide | http://www.pallisterhall.com/ Pallister-Hall Syndrome: A Layman's Guide | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Pallister-Hall_Syndrome For PHS patients, their care givers, and medical practitioners. |
| Other resource N51 | National Library of Medicine | http://www.nlm.nih.gov/cgi/jablonski/syndrome_cgi?term=Noonan+syndrome&field=name National Library of Medicine | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Noonan_Syndrome Includes the alternate names, a summary and a list of major features for Noonan syndrome. |
| Other resource N52 | Noonan Syndrome | http://www.heather.flyer.co.uk/noonan.htm Noonan Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Noonan_Syndrome Story of 6-year-old Becky, with factsheet and resources. |
| Other resource N53 | Birth Defects Foundation: Noonan Syndrome | http://www.bdfcharity.co.uk/docs/family_patients_area/fp_noonan_1.htm Birth Defects Foundation: Noonan Syndrome | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Noonan_Syndrome History of the Foundation's involvement with Noonan's. Printable booklet and newsletter. |
| Other resource N54 | Cowdens Syndrome Support Group | http://groups.msn.com/cowdenssyndrome Cowdens Syndrome Support Group | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Cowden_Syndrome Offers information and message boards for families and patients affected by the disease. |
| Other resource N55 | Hereditary Disease Foundation | http://www.hdfoundation.org Hereditary Disease Foundation | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Organizations Information about this non profit organization, news, newsletters, recommended reading and contact details. |
| Other resource N56 | Hereditary Hemorrhagic Telangiectasia Foundation International, Inc. | http://www.hht.org/ Hereditary Hemorrhagic Telangiectasia Foundation International, Inc. | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Organizations Provides patients, families, and doctors with educational information and fosters an exchange of information about the diagnosis and treatment of HHT between patients, physicians, researchers, genetic counselors, agencies, educators, and the general public. |
| Other resource N57 | The Ryan Foundation | http://www.ryanfoundation.org The Ryan Foundation | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Organizations A non-profit, all-volunteer organization dedicated to supporting research for, and the families of, those suffering from Mucopolysaccharidosis, or MPS. Find disease info, articles and links. |
| Other resource N58 | Children's Medical Research Foundation | http://www.curekirby.org Children's Medical Research Foundation | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Sanfilippo_Syndrome A non-profit foundation formed to raise and grant funds for research to find a cure for Sanfilippo Syndrome. |
| Other resource N59 | eMedicine | http://www.emedicine.com/NEURO/topic577.htm eMedicine | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Propionic_Acidemia An in depth look at Propionic acidemia. |
| Other resource N60 | Propionic Acidemia Foundation | http://pafoundation.com Propionic Acidemia Foundation | Top/Health/Conditions_and_Diseases/Genetic_Disorders/Propionic_Acidemia The PAF is an organization that funds academic and medical research leading to better treatments and a cure of propionic acidemia, an inborn error of metabolism. |
| Other resource N61 | Sighting the First Sense | http://library.thinkquest.org/C001464/cgi-bin/view.cgi?show_item=eye Sighting the First Sense | Top/Health/Conditions_and_Diseases/Eye_Disorders Provides information about the various eye disorders, a discussion board for people to share their experiences and a question and answer section for people to share. |
| Other resource N62 | InteliHealth - Eyes | http://www.intelihealth.com/IH/ihtIH/WSIHW000/28067/28067.html InteliHealth - Eyes | Top/Health/Conditions_and_Diseases/Eye_Disorders Medical information, articles, news, treatment, prevention and ask the expert. Information from Harvard Medical School. |
| Other resource N63 | All About Vision - Guide to Eye Conditions | http://www.allaboutvision.com/conditions/ All About Vision - Guide to Eye Conditions | Top/Health/Conditions_and_Diseases/Eye_Disorders Information and articles on many different disorders. |
| Other resource N64 | Eyequestions.com | http://www.eyequestions.com Eyequestions.com | Top/Health/Conditions_and_Diseases/Eye_Disorders Deals with common eye diseases/conditions/problems. Visitors can also ask questions. |
| Other resource N65 | NetHealthBook.com - Eye Diseases and Eye-related Topics | http://www.nethealthbook.com/eye_diseases_and_eye_related_topics.html NetHealthBook.com - Eye Diseases and Eye-related Topics | Top/Health/Conditions_and_Diseases/Eye_Disorders Briefly covers symptoms, diagnostic tests, and treatment of several eye conditions. |
| Other resource N66 | Yahoo! Health - Eye & Vision Care | http://health.yahoo.com/health/centers/eye_vision/ Yahoo! Health - Eye & Vision Care | Top/Health/Conditions_and_Diseases/Eye_Disorders Find information on eye and vision conditions and topics including glaucoma, macular degeneration, allergic conjunctivitis, low vision, cataracts, and more. |
| Other resource N67 | Coloboma Support Group | http://groups.yahoo.com/group/coloboma/ Coloboma Support Group | Top/Health/Conditions_and_Diseases/Eye_Disorders Support group for people who have the eye condition called coloboma. Their parents, family and friends are invited to join too. |
| Other resource N68 | eMedicine Health - Ocular Hypertension | http://www.emedicinehealth.com/articles/37513-1.asp eMedicine Health - Ocular Hypertension | Top/Health/Conditions_and_Diseases/Eye_Disorders Consumer health resource center providing information on the causes, symptoms, and treatment of ocular hypertension. |
| Other resource N69 | Pediatric Oncall | http://www.pediatriconcall.com/fordoctor/diseasesandcondition/watering_in_infants.asp Pediatric Oncall | Top/Health/Conditions_and_Diseases/Eye_Disorders Offers an article about watering of the eyes in infants. |
| Other resource N70 | eMedicine Health - Eyelid Inflammation | http://www.emedicinehealth.com/articles/14296-1.asp eMedicine Health - Eyelid Inflammation | Top/Health/Conditions_and_Diseases/Eye_Disorders/Eyelids Consumer health resource center providing information on the causes, symptoms, and treatment for blepharitis. |
| Other resource N71 | Leber's Links | http://leberslinks.freeyellow.com/index.html Leber's Links | Top/Health/Conditions_and_Diseases/Eye_Disorders/Optic_Nerve/Lebers_Optic_Neuropathy Resources and information relating to this rare genetic eye disorder Leber's Congenital Amaurosis. |
| Other resource N72 | Insight into Eyesight | http://www.nationalmssociety.org/brochures-on%20vision.asp Insight into Eyesight | Top/Health/Conditions_and_Diseases/Eye_Disorders/Optic_Nerve/Optic_Neuritis Article in the Fall 1994 issue of Inside MS on optic neuritis. |
| Other resource N73 | CVS Doctors | http://www.cvsdoctors.com/ CVS Doctors | Top/Health/Conditions_and_Diseases/Eye_Disorders/Computer_Vision_Syndrome Site for eye doctors concerned about solving the problems of CVS. Log in required. |
| Other resource N74 | Eye Floaters Discussion Group | http://groups.yahoo.com/group/vitreousfloaters/ Eye Floaters Discussion Group | Top/Health/Conditions_and_Diseases/Eye_Disorders/Floaters Club discussion on related issues and posterior vitreous detachment. |
| Other resource N75 | Low Vision | http://www.allaboutvision.com/lowvision Low Vision | Top/Health/Conditions_and_Diseases/Eye_Disorders/Low_Vision Index of articles on partial sight including devices for use. |
| Other resource N76 | The Screen Magnifiers Homepage | http://www.magnifiers.org The Screen Magnifiers Homepage | Top/Health/Conditions_and_Diseases/Eye_Disorders/Low_Vision Internet resource on screen magnification and text-to-speech. Includes product reviews, download area, news, discussion and a resource index. |
| Other resource N77 | Large Print Reviews | http://www.largeprintreviews.com Large Print Reviews | Top/Health/Conditions_and_Diseases/Eye_Disorders/Low_Vision Reviews of large print and audio books and other items of interest to individuals with low vision. Plus, articles on eye health and low vision travel. |
| Other resource N78 | BiOptic Driving Network | http://www.BiOpticDriving.org BiOptic Driving Network | Top/Health/Conditions_and_Diseases/Eye_Disorders/Low_Vision Information about driving with bioptics. List of vendors, success stories and training details. |
| Other resource N79 | V. I. Guide | http://www.viguide.com/ V. I. Guide | Top/Health/Conditions_and_Diseases/Eye_Disorders/Low_Vision Includes resources for parents and teachers of blind and visually impaired children. |
| Other resource N80 | Eye Institute of Canada | http://www.eyecanada.ca Eye Institute of Canada | Top/Health/Conditions_and_Diseases/Eye_Disorders/Low_Vision Offers low vision care by optometrists who specialize in low vision rehabilitation and low vision devices. |