Clinical Mass Spectrometry Laboratory

site URL - http://www.med.jhu.edu/CMSL/Barth_Summary.html

Site description: An article about Barth Syndrome with a description, clinical manifestations, etiology, epidemiology, diagnosis, prognosis and management.




Topic: Top/Health/Conditions_and_Diseases/Rare_Disorders/Barth_Syndrome
LINKURI & TITLEDESCRIPTION & TOPIC
Previous 10National PKU Newshttp://pkunews.org/ National PKU NewsTop/Health/Conditions_and_Diseases/Rare_Disorders/Phenylketonuria Organisation providing information and news to families and professionals. Includes general information about the condition, dietary advice, research, personal stories and support.
PreviousRubinstein Taybi Syndrome Support Group (UK)http://www.rtsuk.org/ Rubinstein Taybi Syndrome Support Group (UK)Top/Health/Conditions_and_Diseases/Rare_Disorders/Rubinstein-Taybi_Syndrome Information, forum, links, contacts, and guestbook.
Random 1Royal College of Physicianshttp://www.rcplondon.ac.uk/pubs/brochures/pub_print_SIC.htm Royal College of PhysiciansTop/Health/Conditions_and_Diseases/Neurological_Disorders/Stroke/Pediatric Offers a publication entitled Stroke in Childhood; Clinical guidelines for diagnosis, management and rehabilitation. Order the publication or read it online free.
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NextThe Complete Barth Syndrome Homepagehttp://www.csun.edu/~hcbio033/barth.html The Complete Barth Syndrome HomepageTop/Health/Conditions_and_Diseases/Rare_Disorders/Barth_Syndrome List of clinical symptoms, history of the condition, current news, and links to support groups.
Next 10The Erythromelalgia Associationhttp://www.erythromelalgia.org/ The Erythromelalgia AssociationTop/Health/Conditions_and_Diseases/Rare_Disorders/Erythromelalgia A non-profit organization dedicated to research and education regarding this painful disorder. Offers details about the disorder, the organization, FAQs and membership information.
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Random 4THCME Medical Biochemistry Page: Fatty Acid Oxidationhttp://web.indstate.edu/thcme/mwking/fatty-acid-oxidation.html THCME Medical Biochemistry Page: Fatty Acid OxidationTop/Health/Conditions_and_Diseases/Genetic_Disorders/Fatty_Oxidation An introduction, mobilization of fat stores, oxidation reactions, alternative oxidation pathways, regulation of fatty acid metabolism, clinical aspects of fatty acid metabolism, ketogenesis, regulation of ketogenesis, and clinical significance of ketogenesis.
Next 70Dust Mites in the Homehttp://familydoctor.org/683.xml Dust Mites in the HomeTop/Health/Conditions_and_Diseases/Allergies Some helpful hints in ridding your house of dust mites. Information from the AAFP.
Previous 70Doctor's Doctor: Degos Diseasehttp://www.thedoctorsdoctor.com/diseases/degos_disease.htm Doctor's Doctor: Degos DiseaseTop/Health/Conditions_and_Diseases/Rare_Disorders/Degos Synonyms, appearance and prognosis.
Next 170Symposium on Food Allergenshttp://www.food-allergens.de/ Symposium on Food AllergensTop/Health/Conditions_and_Diseases/Allergies/Food International data collection, reviews, journal searches and book lists for food allergies.
Previous 170The Vancouver Sleep and Breathing Centrehttp://www.sleep-breathing.bc.ca/ The Vancouver Sleep and Breathing CentreTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers The Vancouver Sleep and Breathing Centre is a clinic which specializes in the diagnosis and treatment of Snoring, Sleep Apnea, Asthma, and other common Disorders of Sleep and Breathing.
Next 270
Previous 270Narcolepsyhttp://www.geocities.com/mhungs NarcolepsyTop/Health/Conditions_and_Diseases/Sleep_Disorders/Narcolepsy This site gives clinical, genetic and HLA information about this disorder.
Other resource N0 Narcolepsyhttp://www.sleepdisorderchannel.com/narcolepsy/ NarcolepsyTop/Health/Conditions_and_Diseases/Sleep_Disorders/Narcolepsy A look at this disorder by the Sleep Disorder Channel.
Other resource N1 The Florida Narcolepsy Associationhttp://flnarcolepsy.org/ The Florida Narcolepsy AssociationTop/Health/Conditions_and_Diseases/Sleep_Disorders/Narcolepsy Support group for people with sleep disorders.
Other resource N2 eMedicine Health - Narcolepsyhttp://www.emedicinehealth.com/articles/42505-1.asp eMedicine Health - NarcolepsyTop/Health/Conditions_and_Diseases/Sleep_Disorders/Narcolepsy Consumer health resource center providing information on the causes, symptoms, and treatment.
Other resource N3 Sleep, Dreams and Wakefulnesshttp://ura1195-6.univ-lyon1.fr/index_e.html Sleep, Dreams and WakefulnessTop/Health/Conditions_and_Diseases/Sleep_Disorders/Research One of the longest established sleep research laboratories.
Other resource N4 Fordham University Sleep Research Labhttp://www.geocities.com/fordhamsleep/ Fordham University Sleep Research LabTop/Health/Conditions_and_Diseases/Sleep_Disorders/Research Basic sleep research laboratory investigating mechanisms of homeostatic and circadian regulation of sleep (Dr. Levente Kapas).
Other resource N5 Sleepstudy.orghttp://www.sleepstudy.org Sleepstudy.orgTop/Health/Conditions_and_Diseases/Sleep_Disorders/Research This site is dedicated to educating, aiding researchers in the sleep domain, clinicians and basic scientists. It contains listings of current research projects.
Other resource N6 The Center For Sleep Research Siegel Labhttp://www.npi.ucla.edu/sleepresearch The Center For Sleep Research Siegel LabTop/Health/Conditions_and_Diseases/Sleep_Disorders/Research Basic sleep research laboratory.
Other resource N7 Sydney Sleep Research Grouphttp://www.sleepsydney.org/ Sydney Sleep Research GroupTop/Health/Conditions_and_Diseases/Sleep_Disorders/Research The Sleep Research Group of the Woolcock Institute of Medical Research aims to develop, foster and promote Australia's world class research and clinical capability in the field of sleep medicine.
Other resource N8 National Sleep Foundationhttp://www.sleepfoundation.org/ National Sleep FoundationTop/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations Nonprofit organization supporting public education, sleep-related research, and advocacy related to sleep deprivation, sleep disorders, and excessive sleepiness. Extensive information on these topics.
Other resource N9 Canadian Sleep Societyhttp://www.css.to Canadian Sleep SocietyTop/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations The Canadian Sleep Society (CSS) / Société Canadienne du Sommeil (SCS) is a professional association of clinicians, scientists and technologists formed in June 1986 to further the advancement and understanding of sleep and its disorders through scientific study and public awareness
Other resource N10 Sleep On-Linehttp://www.journalsleep.org Sleep On-LineTop/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations On-line web source for abstracts of articles published in SLEEP, the official journal of the American Sleep Disorders Association (www.asda.org) and the Sleep Research Society (bisleep.medsch.ucla.edu/SRS).
Other resource N11 Australia & New Zealand and Australasian Sleep Associationhttp://www.thoracic.org.au/documents.html Australia & New Zealand and Australasian Sleep AssociationTop/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations Index page leading to "The Accreditation of Sleep Disorders Services" document.
Other resource N12 British Sleep Societyhttp://www.british-sleep-society.org.uk British Sleep SocietyTop/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations The British Sleep Society was founded as a charity in 1989 to promote knowledge and research in sleep, its disorders and treatment.
Other resource N13 BSSAAhttp://www.britishsnoring.demon.co.uk/ BSSAATop/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations The British Snoring and Sleep Apnoea Association aims to promote public awareness that habitual snoring and sleep apnoea are generally treatable complaints and that help is available.
Other resource N14 International Sleep Medicine Associationhttp://www.1sleep.com International Sleep Medicine AssociationTop/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations New worldwide association for physicians, scientists, patients and corporations interested in sleep.
Other resource N15 Sleep Research Society Home Pagehttp://www.sleepresearchsociety.org/site/ Sleep Research Society Home PageTop/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations The U.S. Sleep Research Society (SRS) fosters scientific investigations on all aspects of sleep and its disorders. It promotes training and education in sleep research and provides forums for the exchange of knowledge pertaining to sleep.
Other resource N16 SomnoMed Australian Sleep Associationhttp://www.somnomed.com.au/ SomnoMed Australian Sleep AssociationTop/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations Professional Austrialian sleep organization focusing on obstructive sleep apnoea and snoring. Aims to promote public awareness about the medical and social ramifications of sleep disorders.
Other resource N17 Sleep Paralysis and Related Experienceshttp://watarts.uwaterloo.ca/~acheyne/S_P.html Sleep Paralysis and Related ExperiencesTop/Health/Conditions_and_Diseases/Sleep_Disorders/Sleep_Paralysis A comprehensive site dealing with sleep paralysis, hypnagogic and hypnopompic hallucinations.
Other resource N18 Sleep Paralysis and Lucid Dreaminghttp://www.geocities.com/jorgeconesa/Paralysis/sleepnew.html Sleep Paralysis and Lucid DreamingTop/Health/Conditions_and_Diseases/Sleep_Disorders/Sleep_Paralysis A scientific and personal research and account of Sleep Paralysis and its connection to lucid dreaming, alien abduction phenomena and nightmares. List of symptoms and references.
Other resource N19 Wemove - Restless Legs Syndromehttp://www.wemove.org/rls.html Wemove - Restless Legs SyndromeTop/Health/Conditions_and_Diseases/Sleep_Disorders/Restless_Legs_Syndrome Useful information site for patients and medical professionals hosted by We Move - an awareness for movement disorders site (funded by pharmaceutical companies).
Other resource N20 Restless Legs Syndromehttp://www.ninds.nih.gov/health_and_medical/disorders/restless_doc.htm Restless Legs SyndromeTop/Health/Conditions_and_Diseases/Sleep_Disorders/Restless_Legs_Syndrome Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Other resource N21 Sleep Disorders Center - Restless Legs Syndromehttp://www.med.nyu.edu/sleep/rls.html Sleep Disorders Center - Restless Legs SyndromeTop/Health/Conditions_and_Diseases/Sleep_Disorders/Restless_Legs_Syndrome Described as those "creepy crawly" sensations in legs, sometimes described as feeling like "Pepsi Cola in the veins." Find a list of symptoms.
Other resource N22 Greater San Antonio Restless Legs Syndrome Support Grouphttp://www.legsmove.org/ Greater San Antonio Restless Legs Syndrome Support GroupTop/Health/Conditions_and_Diseases/Sleep_Disorders/Restless_Legs_Syndrome Designed to educate those suffering with RLS/PLMS so that they can be aware of the latest treatments and identify the symptoms so that they can get proper treatment.
Other resource N23 Northside Hospital Sleep Medicine Institutehttp://www.nshsleep.com/services.htm Northside Hospital Sleep Medicine InstituteTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers A description of the sleep disorders treated here, including sleepwalking, night terrors, sleep related violence, sleep eating, gastroesophageal reflux and childhood sleep disorders. Atlanta,GA.
Other resource N24 Silent Partners Sleep Clinichttp://www.silentpartners.org Silent Partners Sleep ClinicTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Located in uptown Toronto, Silent Partners Sleep Laboratory is a seven bed laboratory with state of the art equipment. We diagnose and treat many different kinds of sleep disorders including snoring, sleep apnea, insomnia, periodic leg movement and restless leg syndromes, narcolepsy and parasomnias.
Other resource N25 Sleep Disorders Center at Newark Beth Israelhttp://njsleephelp.com/ Sleep Disorders Center at Newark Beth IsraelTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers The Sleep Disorders Center at Newark Beth Israel was set up in 1978 and has since diagnosed and treated more than 8,500 patients.
Other resource N26 Sleep Laboratory University Of Marburghttp://www.uni-marburg.de/sleep/lab/welcome_.html Sleep Laboratory University Of MarburgTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Sleep Laboratory, University Of Marburg, established in 1981 conducts research and treats sleep disorders.
Other resource N27 Bondi Junction, Centre for Snoring and Sleep Disordershttp://www.snoring.com.au Bondi Junction, Centre for Snoring and Sleep DisordersTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Information site for patients and medical professionals dealing with snoring and sleep related conditions. The Centre for Snoring and Sleep Disorders, Bondi Junction, Sydney, Australia.
Other resource N28 C.N.P.P.http://www.cnpp.org.mx/eng/ C.N.P.P.Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers The Neuro-psycho-pedagogic center, Mexico, is an interdisciplinary clinic established in 1978 includes a sleep disorders center and also specializes in neurology, psychology, and education.
Other resource N29 Midwest Sleep Diagnosticshttp://www.midwestsleep.com/ Midwest Sleep DiagnosticsTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Information about the facility, the services provided, location and insurance. Located in St. Louis, Missouri.
Other resource N30 Christ Hospital's Sleep Disorders Labhttp://www.christhospital.org/sleepdisorders/sleepdisorders.html Christ Hospital's Sleep Disorders LabTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Christ Hospital's Sleep Disorders Lab
Other resource N31 Cheshire Center for Sleep Studies, NHhttp://www.cheshire-med.com/programs/sleep/intro.html Cheshire Center for Sleep Studies, NHTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers A cooperative effort between the Cheshire Medical Center and the Dartmouth Sleep Disorder to provide a facility offering evaluation and treatment of the full range of sleep disorders.
Other resource N32 Sleep apnea, narcolepsy, hypersomnia and other sleep disorders (Columbus)http://www.netexp.net/~flamenco/sleepresources.html Sleep apnea, narcolepsy, hypersomnia and other sleep disorders (Columbus)Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Sleep medicine resources for detection and control of sleep apnea, narcolepsy, hypersomnia, insomnia and sleep disorders.
Other resource N33 The Children's Hospital Medical Center of Cincinnati Sleep Disorders Clinichttp://www.cincinnatichildrens.org/programs_services/391/ The Children's Hospital Medical Center of Cincinnati Sleep Disorders ClinicTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers The Cincinnati Children's Hospital Medical Center Sleep Disorders Clinic staff provides a multidisciplinary assessment and assistance with managing sleep problems.
Other resource N34 SleepQuest: Treating Sleep Disorders - Obstructive Sleep Apneahttp://www.sleepquest.com SleepQuest: Treating Sleep Disorders - Obstructive Sleep ApneaTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers SleepQuest specializes in treating obstructive sleep apnea and other sleep disorders by providing innovative diagnostic and treatment services in the convenience of the patient's home.
Other resource N35 HMS Diagnostics, Inc.http://hmsdiagnostics.com HMS Diagnostics, Inc.Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Specialists in the diagnosis of sleep disorders. Located in the heart of the Texas Medical Center. Houston,TX
Other resource N36 Wesley Medical Center's - Sleep Disorders Centerhttp://www.wesleymc.com/CustomPage.asp?guidCustomContentID={18DC58DD-40A2-11D4-A2E1-00508B62BE1F} Wesley Medical Center's - Sleep Disorders CenterTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Basic information from this Wichita based sleep disorders center.
Other resource N37 VCU Health Systems Sleep Disorders Centerhttp://www.vcu.edu/sleepwell VCU Health Systems Sleep Disorders CenterTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Located in Richmond, Virginia. Information on apnea, narcolepsy, insomnia, RLS, and links to other sites.
Other resource N38 Royal Brompton Hospital, London - Victoria Wardhttp://www.rbh.nthames.nhs.uk/InternetSection/department/warddepartmentchapters.asp Royal Brompton Hospital, London - Victoria WardTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Includes a research laboratory in sleep apnoea, and investigates breathing problems in people with neuromuscular disorders.
Other resource N39 Sleep Disorders Center of SW Floridahttp://www.mydoctor.com/martincohnmd/ Sleep Disorders Center of SW FloridaTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Learn about this center and its diagnosis and treatment of sleep apnea, insomnia, narcolopsy, and other sleep disorders as well as clinical research. Includes health news and resources.
Other resource N40 Sleep Medicine Associates of Texas, P.A.http://www.sleepmed.com Sleep Medicine Associates of Texas, P.A.Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Sleep offices and laboratories in the North Texas area, based in Dallas and Plano.
Other resource N41 Morningstar Sleep Medicine Associates, LLC.http://www.virtualsleepclinic.com/ Morningstar Sleep Medicine Associates, LLC.Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Virtual sleep disorders clinic. Find information about the services, the doctors, news and a FAQs.
Other resource N42 Central Texas Chest Clinichttp://www.startsleeping.com/ Central Texas Chest ClinicTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Explanations of common sleep disorders and their treatment options.
Other resource N43 Bay Sleep Clinichttp://www.baysleep.com Bay Sleep ClinicTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Dedicated to helping to achieve a good night’s sleep. Serves in three locations in the Bay Area: San Francisco, Los Gatos and Menlo Park.
Other resource N44 Trinitas Hospital Sleep Disorders Centerhttp://www.njsleepdisorderscenter.com Trinitas Hospital Sleep Disorders CenterTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Hospital-based program to diagnose and treat snoring, sleep apnea, insomnia, restless leg syndrome, narcolepsy and many other sleep disorders.
Other resource N45 Sierra Sleep Technologieshttp://www.sierrasleep.com Sierra Sleep TechnologiesTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Specializing in the treatment and diagnosis of sleep disorders. Research and clinical studies performed in Las Vegas.
Other resource N46 The Regional Center for Sleep Medicinehttp://www.trcsm.com The Regional Center for Sleep MedicineTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers A member of the Sleep Network, a national consortium of diagnostic and treatment sleep disorders centers, specializing in sleep apnea.
Other resource N47 Dreamland and Somnambulismhttp://blavatsky.net/blavatsky/arts/DreamlandAndSomnambulism.htm Dreamland and SomnambulismTop/Health/Conditions_and_Diseases/Sleep_Disorders/Sleepwalking Includes a brief history and synopsis.
Other resource N48 Diary of a Somnambulisthttp://www.sleepwalkdiary.com Diary of a SomnambulistTop/Health/Conditions_and_Diseases/Sleep_Disorders/Sleepwalking This is a real-life diary of my sleepwalking adventures updated as episodes occur. Sometimes funny, sometimes creepy -- always true!
Other resource N49 American Association of Medical Chronobiology and Chronotherapeuticshttp://www.aamcc.org American Association of Medical Chronobiology and ChronotherapeuticsTop/Health/Conditions_and_Diseases/Sleep_Disorders/Biological_Rhythms Details about the AAMCC who provides an organizational framework for scientists and health care professionals interested in the medical application of chronobiology and chronotherapeutics.
Other resource N50 Center for Biological Timing Home Pagehttp://www.cbt.virginia.edu/index.html Center for Biological Timing Home PageTop/Health/Conditions_and_Diseases/Sleep_Disorders/Biological_Rhythms The National Science Foundation Center for Biological Timing. Tutorials and original papers on biological timing.
Other resource N51 Circadian Sleep Disorders Associationhttp://www.circadiandisorders.org/ Circadian Sleep Disorders AssociationTop/Health/Conditions_and_Diseases/Sleep_Disorders/Biological_Rhythms Support and providing information to those affected by circadian sleep disorders such as Delayed Sleep Phase Syndrome. Includes links, FAQs, message board and a mailing list.
Other resource N52 Delayed Sleep Phase Syndromehttp://www.geocities.com/delayed_sleep Delayed Sleep Phase SyndromeTop/Health/Conditions_and_Diseases/Sleep_Disorders/Biological_Rhythms Comprehensive site with symptoms, causes, treatments, and links to further information on DSPS and circadian rhythms.
Other resource N53 Children Who Sleep With Light on May Damage Their Sighthttp://www.bmj.com/cgi/content/full/318/7195/1369/a Children Who Sleep With Light on May Damage Their SightTop/Health/Conditions_and_Diseases/Sleep_Disorders/Life_Cycle_Sleep_Disorders News item from British Medical Journal (1999).
Other resource N54 BabyCenter - Sleep During Pregnancyhttp://www.babycenter.com/refcap/7512.html BabyCenter - Sleep During PregnancyTop/Health/Conditions_and_Diseases/Sleep_Disorders/Life_Cycle_Sleep_Disorders Describes how pregnancy will affect sleep and what to do about it (also has useful links).
Other resource N55 Kleine-Levin Syndromehttp://www.kleinelevin.com/ Kleine-Levin SyndromeTop/Health/Conditions_and_Diseases/Sleep_Disorders/Disturbed Provides information and support for those people who have KLS or who have a loved one with KLS and to provide them the opportunity to get in touch with other KLS persons.
Other resource N56 Cherubshttp://www.cherubs-cdh.org CherubsTop/Health/Conditions_and_Diseases/Rare_Disorders A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
Other resource N57 Human Growth Foundationhttp://www.hgfound.org/ Human Growth FoundationTop/Health/Conditions_and_Diseases/Rare_Disorders Information about growth-related disorders through education, research, and advocacy. Member driven organization.
Other resource N58 Tetrahydrobiopterinhttp://www.bh4.org TetrahydrobiopterinTop/Health/Conditions_and_Diseases/Rare_Disorders Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency.
Other resource N59 Lymphangiomatosis and Gorham's Vanishing Bone Diseasehttp://www.gorhams.dk Lymphangiomatosis and Gorham's Vanishing Bone DiseaseTop/Health/Conditions_and_Diseases/Rare_Disorders Provides general information and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group.
Other resource N60 Information Centre for Rare Diseases and Orphan Drugshttp://www.raredis.org Information Centre for Rare Diseases and Orphan DrugsTop/Health/Conditions_and_Diseases/Rare_Disorders Offers an Internet portal. Includes news, forums, rare disease and orphan drug info and registration forms
Other resource N61 Hutchinson-Gilford Progeria Syndrome (HGPS) Resource Pagehttp://www.laze.net/progeria/index.html Hutchinson-Gilford Progeria Syndrome (HGPS) Resource PageTop/Health/Conditions_and_Diseases/Rare_Disorders/Progeria Provides an overview of the disease as well as links to resources.
Other resource N62 Online Mendelian Inheritance in Man - Progeriahttp://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?176670 Online Mendelian Inheritance in Man - ProgeriaTop/Health/Conditions_and_Diseases/Rare_Disorders/Progeria Progeria medical database resource for textual information, pictures, and reference information.
Other resource N63 NORD: Progeria, Hutchinson Gilfordhttp://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Progeria%2C%20Hutchinson%20Gilford NORD: Progeria, Hutchinson GilfordTop/Health/Conditions_and_Diseases/Rare_Disorders/Progeria Outlines the symptoms and lists related organizations.
Other resource N64 Doctor's Doctor: Degos Diseasehttp://www.thedoctorsdoctor.com/diseases/degos_disease.htm Doctor's Doctor: Degos DiseaseTop/Health/Conditions_and_Diseases/Rare_Disorders/Degos Synonyms, appearance and prognosis.
Other resource N65 eMedicine - Degos Disease :http://www.emedicine.com/derm/topic931.htm eMedicine - Degos Disease :Top/Health/Conditions_and_Diseases/Rare_Disorders/Degos Article by Noah S Scheinfeld, MD, JD, FAAD. Background, pathophysiology, causes, and treatments.
Other resource N66 VATER Associationhttp://www3.ncbi.nlm.nih.gov:80/htbin-post/Omim/dispmim?192350 VATER AssociationTop/Health/Conditions_and_Diseases/Rare_Disorders/VATER_Syndrome Description and clinical synopsis, plus links to articles and research abstracts.
Other resource N67 Wegener's Granulomatosis Infohttp://www.weareb.org/WG/index.html Wegener's Granulomatosis InfoTop/Health/Conditions_and_Diseases/Rare_Disorders/Wegener's_Granulomatosis Subscription information and archives for a Wegener's mailing list, FAQ, articles and links for further information.
Other resource N68 Wegener's Granulomatosis, NIAID Fact Sheethttp://www.niaid.nih.gov/factsheets/wegeners.htm Wegener's Granulomatosis, NIAID Fact SheetTop/Health/Conditions_and_Diseases/Rare_Disorders/Wegener's_Granulomatosis Fact sheet from the US National Institute of Allergies and Infectious Diseases.
Other resource N69 Wegener's Granulomatosishttp://www.nlm.nih.gov/medlineplus/ency/article/000135.htm Wegener's GranulomatosisTop/Health/Conditions_and_Diseases/Rare_Disorders/Wegener's_Granulomatosis Brief overview including definition, causes and risk factors, from adam.com.
Other resource N70 Wegener's Granulomatosis Associationhttp://www.wgassociation.org Wegener's Granulomatosis AssociationTop/Health/Conditions_and_Diseases/Rare_Disorders/Wegener's_Granulomatosis A non-profit organization dedicated to providing emotional and informational support to patients and their families with Wegener's granulomatosis.
Other resource N71 Cystinosis Centralhttp://medicine.ucsd.edu/cystinosis/INDEX.htm Cystinosis CentralTop/Health/Conditions_and_Diseases/Rare_Disorders/Cystinosis Information about this disorder, conferences, data for physicians, updates and links.
Other resource N72 NINDS: Aicardi Syndromehttp://www.ninds.nih.gov/health_and_medical/disorders/aicardi.htm NINDS: Aicardi SyndromeTop/Health/Conditions_and_Diseases/Rare_Disorders/Aicardi_Syndrome Information sheet compiled by National Institute of Neurological Disorders and Stroke with general information, and a list of organisations.
Other resource N73 National Library of Medicine: Aicardi syndromehttp://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome015.html National Library of Medicine: Aicardi syndromeTop/Health/Conditions_and_Diseases/Rare_Disorders/Aicardi_Syndrome provides a summary, list of synonyms, and the major features.
Other resource N74 Aicardi Syndrome Foundationhttp://www.aicardisyndrome.org/ Aicardi Syndrome FoundationTop/Health/Conditions_and_Diseases/Rare_Disorders/Aicardi_Syndrome Information about the disease, a medical survey, where to get help, publications and a chat room for support.
Other resource N75 Cleidocranial Dysplasiahttp://cleidocranial_dysplasia.homestead.com/page1.html Cleidocranial DysplasiaTop/Health/Conditions_and_Diseases/Rare_Disorders/Cleidocranial_Dysplasia Information about this rare genetic disorder, studies and a chat room.
Other resource N76 National Library of Medicine: cerebrocostomandibular (CCM) syndrome (CCMS)http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome098.html National Library of Medicine: cerebrocostomandibular (CCM) syndrome (CCMS)Top/Health/Conditions_and_Diseases/Rare_Disorders/Cerebrocostomandibular_Syndrome A list of synonyms, summary and major features.
Other resource N77 Electronic Journal of Hand Surgeryhttp://www.leeds.ac.uk/handsurgery/EJHS/overgr.htm Electronic Journal of Hand SurgeryTop/Health/Conditions_and_Diseases/Rare_Disorders/Melorheostosis Short case study with photo and x-ray.
Other resource N78 E-Medicine: Moyamoya Diseasehttp://www.emedicine.com/neuro/topic616.htm E-Medicine: Moyamoya DiseaseTop/Health/Conditions_and_Diseases/Rare_Disorders/Moyamoya Introduction, clinical features, differentials, work up, treatments, medication and follow up.
Other resource N79 NORD: Moyamoya Diseasehttp://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Moyamoya%20Syndrome NORD: Moyamoya DiseaseTop/Health/Conditions_and_Diseases/Rare_Disorders/Moyamoya Sample report, plus links to organisations. [Fee required for full report]
Other resource N80 Contact a Family: Pierre Robin Syndromehttp://www.cafamily.org.uk/Direct/p24.html Contact a Family: Pierre Robin SyndromeTop/Health/Conditions_and_Diseases/Rare_Disorders/Pierre_Robin_Syndrome Main features of the condition and possible causes.

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