site URL - http://www.alstrom.org.uk/
Site description: Information centre and discussion forum for anyone with an interest in this disorder.
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| LINK | URI & TITLE | DESCRIPTION & TOPIC | |
| Previous 10 | Institute of Child Health: Jacobsen Syndrome | http://www.ich.ucl.ac.uk/units/mhu/fws/frames/jsoframe.htm Institute of Child Health: Jacobsen Syndrome | Top/Health/Conditions_and_Diseases/Rare_Disorders/Jacobsen_Syndrome Clinical synopsis, plus research summaries. |
| Previous | NORD: Erythromelalgia | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Erythromelalgia NORD: Erythromelalgia | Top/Health/Conditions_and_Diseases/Rare_Disorders/Erythromelalgia Sample report, plus links to organisations. [Fee required for full report.] |
| Random 1 | Yoshi2me.com: Think Outside the Condom and Promote STD Awareness | http://www.yoshi2me.com/ Yoshi2me.com: Think Outside the Condom and Promote STD Awareness | Top/Health/Conditions_and_Diseases/Infectious_Diseases/Viral/Herpes/Herpes_Simplex Provides information about the condition, support groups, social groups, dating sites, and stories. |
| Random 2 | Menkes Disease | http://www.emedicine.com/neuro/topic569.htm Menkes Disease | Top/Health/Conditions_and_Diseases/Nutrition_and_Metabolism_Disorders/Vitamins_and_Minerals/Menkes'_Syndrome Medical information including pathophysiology, causes, clinical features, laboratory and histological findings. Also includes images. |
| Random 3 | Ce Day Surgery s.r.l. | http://cedaysurgery.interfree.it/ Ce Day Surgery s.r.l. | Top/World/Italiano/Salute/Medicina/Chirurgia Centro medico polispecialistico dove vengono effettuati interventi chirurgici su pazienti che vengono dimessi nella stessa giornata del ricovero. |
| Random 4 | Ergosew, Inc. | http://www.ergosew.com/ Ergosew, Inc. | Top/Shopping/Health/Emergency_and_Safety/Occupational_Health_and_Safety/Ergonomics Exercise and posture products, and aids designed to reduce upper body pain caused by sewing. |
| Random 5 | Coosa Valley Technical College | http://www.cvtcollege.org/ Coosa Valley Technical College | Top/Regional/North_America/United_States/Georgia/Metros_and_Regions/Atlanta_Metro/Education Offering business, industry and medical programs, on three campuses: Gordon, Floyd and Polk Counties. A unit of DTAE. |
| Next | Alström Syndrome of Canada | http://alstromsyndrome.ca Alström Syndrome of Canada | Top/Health/Conditions_and_Diseases/Rare_Disorders/Alström_Syndrome Includes information about the condition, and the organisation. |
| Next 10 | Rhinology/Allergy Pages | http://www.geocities.com/shouser144/ Rhinology/Allergy Pages | Top/Health/Conditions_and_Diseases/Allergies An educational site for patients about diseases related to the nose, sinuses, head and neck. Numerous topics discussed such as, allergy philosophy, allergen avoidance and medication. Message board on site. |
| Random 1 | Scoil Rince Slieveloughane | http://www.srsirishdance.com Scoil Rince Slieveloughane | Top/Arts/Performing_Arts/Dance/Folk_Dancing/Celtic/Irish/Companies Washington State's largest Irish Dance company and school. |
| Random 4 | Dermatique | http://www.dermatique.com Dermatique | Top/Shopping/Health/Conditions_and_Diseases/Skin_Disorders Products help to nourish the cell renewal process for pre and post operative skin care, scars, hyperpigmentation, and skin disorders. |
| Random 4 | Online medicine changes relationships of doctors, patients | http://www.cnn.com/2000/HEALTH/08/03/online.medicine.ap/index.html Online medicine changes relationships of doctors, patients | Top/News/Online_Archives/CNN.com/2000/August/Health [CNN] |
| Next 70 | My Allergy Net | http://allergy.bravehost.com/ My Allergy Net | Top/Health/Conditions_and_Diseases/Allergies Facts and findings about allergies and information about how to live with them. |
| Previous 70 | Wegener's Granulomatosis | http://www.nlm.nih.gov/medlineplus/ency/article/000135.htm Wegener's Granulomatosis | Top/Health/Conditions_and_Diseases/Rare_Disorders/Wegener's_Granulomatosis Brief overview including definition, causes and risk factors, from adam.com. |
| Next 170 | Food Allergies and Anaphylaxis in Schools | http://www.allergycapital.com.au/Pages/schoolallergy.html Food Allergies and Anaphylaxis in Schools | Top/Health/Conditions_and_Diseases/Allergies/Food Issues and management of food allergies for school age children |
| Previous 170 | Kathryn Severyns Dement Sleep Disorders Center at St. Mary Medical Center | http://www.smmc.com/sleep/ Kathryn Severyns Dement Sleep Disorders Center at St. Mary Medical Center | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Prior to full accreditation by the American Academy of Sleep Medicine, the center began as the "Walla Walla Project" which aimed to train primary care physicians to diagnose and treat sleep disorders. |
| Next 270 | |||
| Previous 270 | Helpguide: Narcolepsy | http://www.helpguide.org/aging/narcolepsy.htm Helpguide: Narcolepsy | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Narcolepsy Describes symptoms and treatment options. Includes a guide to treatment centers and support groups. |
| Other resource N0 | Sleepstudy.org | http://www.sleepstudy.org Sleepstudy.org | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Research This site is dedicated to educating, aiding researchers in the sleep domain, clinicians and basic scientists. It contains listings of current research projects. |
| Other resource N1 | The Center For Sleep Research Siegel Lab | http://www.npi.ucla.edu/sleepresearch The Center For Sleep Research Siegel Lab | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Research Basic sleep research laboratory. |
| Other resource N2 | Sydney Sleep Research Group | http://www.sleepsydney.org/ Sydney Sleep Research Group | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Research The Sleep Research Group of the Woolcock Institute of Medical Research aims to develop, foster and promote Australia's world class research and clinical capability in the field of sleep medicine. |
| Other resource N3 | National Sleep Foundation | http://www.sleepfoundation.org/ National Sleep Foundation | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations Nonprofit organization supporting public education, sleep-related research, and advocacy related to sleep deprivation, sleep disorders, and excessive sleepiness. Extensive information on these topics. |
| Other resource N4 | Canadian Sleep Society | http://www.css.to Canadian Sleep Society | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations The Canadian Sleep Society (CSS) / Société Canadienne du Sommeil (SCS) is a professional association of clinicians, scientists and technologists formed in June 1986 to further the advancement and understanding of sleep and its disorders through scientific study and public awareness |
| Other resource N5 | Sleep On-Line | http://www.journalsleep.org Sleep On-Line | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations On-line web source for abstracts of articles published in SLEEP, the official journal of the American Sleep Disorders Association (www.asda.org) and the Sleep Research Society (bisleep.medsch.ucla.edu/SRS). |
| Other resource N6 | Australia & New Zealand and Australasian Sleep Association | http://www.thoracic.org.au/documents.html Australia & New Zealand and Australasian Sleep Association | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations Index page leading to "The Accreditation of Sleep Disorders Services" document. |
| Other resource N7 | British Sleep Society | http://www.british-sleep-society.org.uk British Sleep Society | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations The British Sleep Society was founded as a charity in 1989 to promote knowledge and research in sleep, its disorders and treatment. |
| Other resource N8 | BSSAA | http://www.britishsnoring.demon.co.uk/ BSSAA | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations The British Snoring and Sleep Apnoea Association aims to promote public awareness that habitual snoring and sleep apnoea are generally treatable complaints and that help is available. |
| Other resource N9 | International Sleep Medicine Association | http://www.1sleep.com International Sleep Medicine Association | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations New worldwide association for physicians, scientists, patients and corporations interested in sleep. |
| Other resource N10 | Sleep Research Society Home Page | http://www.sleepresearchsociety.org/site/ Sleep Research Society Home Page | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations The U.S. Sleep Research Society (SRS) fosters scientific investigations on all aspects of sleep and its disorders. It promotes training and education in sleep research and provides forums for the exchange of knowledge pertaining to sleep. |
| Other resource N11 | SomnoMed Australian Sleep Association | http://www.somnomed.com.au/ SomnoMed Australian Sleep Association | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations Professional Austrialian sleep organization focusing on obstructive sleep apnoea and snoring. Aims to promote public awareness about the medical and social ramifications of sleep disorders. |
| Other resource N12 | Sleep Paralysis and Related Experiences | http://watarts.uwaterloo.ca/~acheyne/S_P.html Sleep Paralysis and Related Experiences | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Sleep_Paralysis A comprehensive site dealing with sleep paralysis, hypnagogic and hypnopompic hallucinations. |
| Other resource N13 | Sleep Paralysis and Lucid Dreaming | http://www.geocities.com/jorgeconesa/Paralysis/sleepnew.html Sleep Paralysis and Lucid Dreaming | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Sleep_Paralysis A scientific and personal research and account of Sleep Paralysis and its connection to lucid dreaming, alien abduction phenomena and nightmares. List of symptoms and references. |
| Other resource N14 | Wemove - Restless Legs Syndrome | http://www.wemove.org/rls.html Wemove - Restless Legs Syndrome | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Restless_Legs_Syndrome Useful information site for patients and medical professionals hosted by We Move - an awareness for movement disorders site (funded by pharmaceutical companies). |
| Other resource N15 | Restless Legs Syndrome | http://www.ninds.nih.gov/health_and_medical/disorders/restless_doc.htm Restless Legs Syndrome | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Restless_Legs_Syndrome Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
| Other resource N16 | Sleep Disorders Center - Restless Legs Syndrome | http://www.med.nyu.edu/sleep/rls.html Sleep Disorders Center - Restless Legs Syndrome | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Restless_Legs_Syndrome Described as those "creepy crawly" sensations in legs, sometimes described as feeling like "Pepsi Cola in the veins." Find a list of symptoms. |
| Other resource N17 | Greater San Antonio Restless Legs Syndrome Support Group | http://www.legsmove.org/ Greater San Antonio Restless Legs Syndrome Support Group | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Restless_Legs_Syndrome Designed to educate those suffering with RLS/PLMS so that they can be aware of the latest treatments and identify the symptoms so that they can get proper treatment. |
| Other resource N18 | Northside Hospital Sleep Medicine Institute | http://www.nshsleep.com/services.htm Northside Hospital Sleep Medicine Institute | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers A description of the sleep disorders treated here, including sleepwalking, night terrors, sleep related violence, sleep eating, gastroesophageal reflux and childhood sleep disorders. Atlanta,GA. |
| Other resource N19 | Silent Partners Sleep Clinic | http://www.silentpartners.org Silent Partners Sleep Clinic | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Located in uptown Toronto, Silent Partners Sleep Laboratory is a seven bed laboratory with state of the art equipment. We diagnose and treat many different kinds of sleep disorders including snoring, sleep apnea, insomnia, periodic leg movement and restless leg syndromes, narcolepsy and parasomnias. |
| Other resource N20 | Sleep Disorders Center at Newark Beth Israel | http://njsleephelp.com/ Sleep Disorders Center at Newark Beth Israel | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers The Sleep Disorders Center at Newark Beth Israel was set up in 1978 and has since diagnosed and treated more than 8,500 patients. |
| Other resource N21 | Sleep Laboratory University Of Marburg | http://www.uni-marburg.de/sleep/lab/welcome_.html Sleep Laboratory University Of Marburg | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Sleep Laboratory, University Of Marburg, established in 1981 conducts research and treats sleep disorders. |
| Other resource N22 | Bondi Junction, Centre for Snoring and Sleep Disorders | http://www.snoring.com.au Bondi Junction, Centre for Snoring and Sleep Disorders | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Information site for patients and medical professionals dealing with snoring and sleep related conditions. The Centre for Snoring and Sleep Disorders, Bondi Junction, Sydney, Australia. |
| Other resource N23 | C.N.P.P. | http://www.cnpp.org.mx/eng/ C.N.P.P. | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers The Neuro-psycho-pedagogic center, Mexico, is an interdisciplinary clinic established in 1978 includes a sleep disorders center and also specializes in neurology, psychology, and education. |
| Other resource N24 | Midwest Sleep Diagnostics | http://www.midwestsleep.com/ Midwest Sleep Diagnostics | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Information about the facility, the services provided, location and insurance. Located in St. Louis, Missouri. |
| Other resource N25 | Christ Hospital's Sleep Disorders Lab | http://www.christhospital.org/sleepdisorders/sleepdisorders.html Christ Hospital's Sleep Disorders Lab | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Christ Hospital's Sleep Disorders Lab |
| Other resource N26 | Cheshire Center for Sleep Studies, NH | http://www.cheshire-med.com/programs/sleep/intro.html Cheshire Center for Sleep Studies, NH | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers A cooperative effort between the Cheshire Medical Center and the Dartmouth Sleep Disorder to provide a facility offering evaluation and treatment of the full range of sleep disorders. |
| Other resource N27 | Sleep apnea, narcolepsy, hypersomnia and other sleep disorders (Columbus) | http://www.netexp.net/~flamenco/sleepresources.html Sleep apnea, narcolepsy, hypersomnia and other sleep disorders (Columbus) | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Sleep medicine resources for detection and control of sleep apnea, narcolepsy, hypersomnia, insomnia and sleep disorders. |
| Other resource N28 | The Children's Hospital Medical Center of Cincinnati Sleep Disorders Clinic | http://www.cincinnatichildrens.org/programs_services/391/ The Children's Hospital Medical Center of Cincinnati Sleep Disorders Clinic | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers The Cincinnati Children's Hospital Medical Center Sleep Disorders Clinic staff provides a multidisciplinary assessment and assistance with managing sleep problems. |
| Other resource N29 | SleepQuest: Treating Sleep Disorders - Obstructive Sleep Apnea | http://www.sleepquest.com SleepQuest: Treating Sleep Disorders - Obstructive Sleep Apnea | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers SleepQuest specializes in treating obstructive sleep apnea and other sleep disorders by providing innovative diagnostic and treatment services in the convenience of the patient's home. |
| Other resource N30 | HMS Diagnostics, Inc. | http://hmsdiagnostics.com HMS Diagnostics, Inc. | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Specialists in the diagnosis of sleep disorders. Located in the heart of the Texas Medical Center. Houston,TX |
| Other resource N31 | Wesley Medical Center's - Sleep Disorders Center | http://www.wesleymc.com/CustomPage.asp?guidCustomContentID={18DC58DD-40A2-11D4-A2E1-00508B62BE1F} Wesley Medical Center's - Sleep Disorders Center | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Basic information from this Wichita based sleep disorders center. |
| Other resource N32 | VCU Health Systems Sleep Disorders Center | http://www.vcu.edu/sleepwell VCU Health Systems Sleep Disorders Center | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Located in Richmond, Virginia. Information on apnea, narcolepsy, insomnia, RLS, and links to other sites. |
| Other resource N33 | Royal Brompton Hospital, London - Victoria Ward | http://www.rbh.nthames.nhs.uk/InternetSection/department/warddepartmentchapters.asp Royal Brompton Hospital, London - Victoria Ward | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Includes a research laboratory in sleep apnoea, and investigates breathing problems in people with neuromuscular disorders. |
| Other resource N34 | Sleep Disorders Center of SW Florida | http://www.mydoctor.com/martincohnmd/ Sleep Disorders Center of SW Florida | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Learn about this center and its diagnosis and treatment of sleep apnea, insomnia, narcolopsy, and other sleep disorders as well as clinical research. Includes health news and resources. |
| Other resource N35 | Sleep Medicine Associates of Texas, P.A. | http://www.sleepmed.com Sleep Medicine Associates of Texas, P.A. | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Sleep offices and laboratories in the North Texas area, based in Dallas and Plano. |
| Other resource N36 | Morningstar Sleep Medicine Associates, LLC. | http://www.virtualsleepclinic.com/ Morningstar Sleep Medicine Associates, LLC. | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Virtual sleep disorders clinic. Find information about the services, the doctors, news and a FAQs. |
| Other resource N37 | Central Texas Chest Clinic | http://www.startsleeping.com/ Central Texas Chest Clinic | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Explanations of common sleep disorders and their treatment options. |
| Other resource N38 | Bay Sleep Clinic | http://www.baysleep.com Bay Sleep Clinic | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Dedicated to helping to achieve a good night’s sleep. Serves in three locations in the Bay Area: San Francisco, Los Gatos and Menlo Park. |
| Other resource N39 | Trinitas Hospital Sleep Disorders Center | http://www.njsleepdisorderscenter.com Trinitas Hospital Sleep Disorders Center | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Hospital-based program to diagnose and treat snoring, sleep apnea, insomnia, restless leg syndrome, narcolepsy and many other sleep disorders. |
| Other resource N40 | Sierra Sleep Technologies | http://www.sierrasleep.com Sierra Sleep Technologies | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Specializing in the treatment and diagnosis of sleep disorders. Research and clinical studies performed in Las Vegas. |
| Other resource N41 | The Regional Center for Sleep Medicine | http://www.trcsm.com The Regional Center for Sleep Medicine | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers A member of the Sleep Network, a national consortium of diagnostic and treatment sleep disorders centers, specializing in sleep apnea. |
| Other resource N42 | Dreamland and Somnambulism | http://blavatsky.net/blavatsky/arts/DreamlandAndSomnambulism.htm Dreamland and Somnambulism | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Sleepwalking Includes a brief history and synopsis. |
| Other resource N43 | Diary of a Somnambulist | http://www.sleepwalkdiary.com Diary of a Somnambulist | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Sleepwalking This is a real-life diary of my sleepwalking adventures updated as episodes occur. Sometimes funny, sometimes creepy -- always true! |
| Other resource N44 | American Association of Medical Chronobiology and Chronotherapeutics | http://www.aamcc.org American Association of Medical Chronobiology and Chronotherapeutics | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Biological_Rhythms Details about the AAMCC who provides an organizational framework for scientists and health care professionals interested in the medical application of chronobiology and chronotherapeutics. |
| Other resource N45 | Center for Biological Timing Home Page | http://www.cbt.virginia.edu/index.html Center for Biological Timing Home Page | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Biological_Rhythms The National Science Foundation Center for Biological Timing. Tutorials and original papers on biological timing. |
| Other resource N46 | Circadian Sleep Disorders Association | http://www.circadiandisorders.org/ Circadian Sleep Disorders Association | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Biological_Rhythms Support and providing information to those affected by circadian sleep disorders such as Delayed Sleep Phase Syndrome. Includes links, FAQs, message board and a mailing list. |
| Other resource N47 | Delayed Sleep Phase Syndrome | http://www.geocities.com/delayed_sleep Delayed Sleep Phase Syndrome | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Biological_Rhythms Comprehensive site with symptoms, causes, treatments, and links to further information on DSPS and circadian rhythms. |
| Other resource N48 | Children Who Sleep With Light on May Damage Their Sight | http://www.bmj.com/cgi/content/full/318/7195/1369/a Children Who Sleep With Light on May Damage Their Sight | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Life_Cycle_Sleep_Disorders News item from British Medical Journal (1999). |
| Other resource N49 | BabyCenter - Sleep During Pregnancy | http://www.babycenter.com/refcap/7512.html BabyCenter - Sleep During Pregnancy | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Life_Cycle_Sleep_Disorders Describes how pregnancy will affect sleep and what to do about it (also has useful links). |
| Other resource N50 | Kleine-Levin Syndrome | http://www.kleinelevin.com/ Kleine-Levin Syndrome | Top/Health/Conditions_and_Diseases/Sleep_Disorders/Disturbed Provides information and support for those people who have KLS or who have a loved one with KLS and to provide them the opportunity to get in touch with other KLS persons. |
| Other resource N51 | Cherubs | http://www.cherubs-cdh.org Cherubs | Top/Health/Conditions_and_Diseases/Rare_Disorders A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia. |
| Other resource N52 | Human Growth Foundation | http://www.hgfound.org/ Human Growth Foundation | Top/Health/Conditions_and_Diseases/Rare_Disorders Information about growth-related disorders through education, research, and advocacy. Member driven organization. |
| Other resource N53 | Tetrahydrobiopterin | http://www.bh4.org Tetrahydrobiopterin | Top/Health/Conditions_and_Diseases/Rare_Disorders Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency. |
| Other resource N54 | Lymphangiomatosis and Gorham's Vanishing Bone Disease | http://www.gorhams.dk Lymphangiomatosis and Gorham's Vanishing Bone Disease | Top/Health/Conditions_and_Diseases/Rare_Disorders Provides general information and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group. |
| Other resource N55 | Information Centre for Rare Diseases and Orphan Drugs | http://www.raredis.org Information Centre for Rare Diseases and Orphan Drugs | Top/Health/Conditions_and_Diseases/Rare_Disorders Offers an Internet portal. Includes news, forums, rare disease and orphan drug info and registration forms |
| Other resource N56 | Hutchinson-Gilford Progeria Syndrome (HGPS) Resource Page | http://www.laze.net/progeria/index.html Hutchinson-Gilford Progeria Syndrome (HGPS) Resource Page | Top/Health/Conditions_and_Diseases/Rare_Disorders/Progeria Provides an overview of the disease as well as links to resources. |
| Other resource N57 | Online Mendelian Inheritance in Man - Progeria | http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?176670 Online Mendelian Inheritance in Man - Progeria | Top/Health/Conditions_and_Diseases/Rare_Disorders/Progeria Progeria medical database resource for textual information, pictures, and reference information. |
| Other resource N58 | NORD: Progeria, Hutchinson Gilford | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Progeria%2C%20Hutchinson%20Gilford NORD: Progeria, Hutchinson Gilford | Top/Health/Conditions_and_Diseases/Rare_Disorders/Progeria Outlines the symptoms and lists related organizations. |
| Other resource N59 | Doctor's Doctor: Degos Disease | http://www.thedoctorsdoctor.com/diseases/degos_disease.htm Doctor's Doctor: Degos Disease | Top/Health/Conditions_and_Diseases/Rare_Disorders/Degos Synonyms, appearance and prognosis. |
| Other resource N60 | eMedicine - Degos Disease : | http://www.emedicine.com/derm/topic931.htm eMedicine - Degos Disease : | Top/Health/Conditions_and_Diseases/Rare_Disorders/Degos Article by Noah S Scheinfeld, MD, JD, FAAD. Background, pathophysiology, causes, and treatments. |
| Other resource N61 | VATER Association | http://www3.ncbi.nlm.nih.gov:80/htbin-post/Omim/dispmim?192350 VATER Association | Top/Health/Conditions_and_Diseases/Rare_Disorders/VATER_Syndrome Description and clinical synopsis, plus links to articles and research abstracts. |
| Other resource N62 | Wegener's Granulomatosis Info | http://www.weareb.org/WG/index.html Wegener's Granulomatosis Info | Top/Health/Conditions_and_Diseases/Rare_Disorders/Wegener's_Granulomatosis Subscription information and archives for a Wegener's mailing list, FAQ, articles and links for further information. |
| Other resource N63 | Wegener's Granulomatosis, NIAID Fact Sheet | http://www.niaid.nih.gov/factsheets/wegeners.htm Wegener's Granulomatosis, NIAID Fact Sheet | Top/Health/Conditions_and_Diseases/Rare_Disorders/Wegener's_Granulomatosis Fact sheet from the US National Institute of Allergies and Infectious Diseases. |
| Other resource N64 | Wegener's Granulomatosis | http://www.nlm.nih.gov/medlineplus/ency/article/000135.htm Wegener's Granulomatosis | Top/Health/Conditions_and_Diseases/Rare_Disorders/Wegener's_Granulomatosis Brief overview including definition, causes and risk factors, from adam.com. |
| Other resource N65 | Wegener's Granulomatosis Association | http://www.wgassociation.org Wegener's Granulomatosis Association | Top/Health/Conditions_and_Diseases/Rare_Disorders/Wegener's_Granulomatosis A non-profit organization dedicated to providing emotional and informational support to patients and their families with Wegener's granulomatosis. |
| Other resource N66 | Cystinosis Central | http://medicine.ucsd.edu/cystinosis/INDEX.htm Cystinosis Central | Top/Health/Conditions_and_Diseases/Rare_Disorders/Cystinosis Information about this disorder, conferences, data for physicians, updates and links. |
| Other resource N67 | NINDS: Aicardi Syndrome | http://www.ninds.nih.gov/health_and_medical/disorders/aicardi.htm NINDS: Aicardi Syndrome | Top/Health/Conditions_and_Diseases/Rare_Disorders/Aicardi_Syndrome Information sheet compiled by National Institute of Neurological Disorders and Stroke with general information, and a list of organisations. |
| Other resource N68 | National Library of Medicine: Aicardi syndrome | http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome015.html National Library of Medicine: Aicardi syndrome | Top/Health/Conditions_and_Diseases/Rare_Disorders/Aicardi_Syndrome provides a summary, list of synonyms, and the major features. |
| Other resource N69 | Aicardi Syndrome Foundation | http://www.aicardisyndrome.org/ Aicardi Syndrome Foundation | Top/Health/Conditions_and_Diseases/Rare_Disorders/Aicardi_Syndrome Information about the disease, a medical survey, where to get help, publications and a chat room for support. |
| Other resource N70 | Cleidocranial Dysplasia | http://cleidocranial_dysplasia.homestead.com/page1.html Cleidocranial Dysplasia | Top/Health/Conditions_and_Diseases/Rare_Disorders/Cleidocranial_Dysplasia Information about this rare genetic disorder, studies and a chat room. |
| Other resource N71 | National Library of Medicine: cerebrocostomandibular (CCM) syndrome (CCMS) | http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome098.html National Library of Medicine: cerebrocostomandibular (CCM) syndrome (CCMS) | Top/Health/Conditions_and_Diseases/Rare_Disorders/Cerebrocostomandibular_Syndrome A list of synonyms, summary and major features. |
| Other resource N72 | Electronic Journal of Hand Surgery | http://www.leeds.ac.uk/handsurgery/EJHS/overgr.htm Electronic Journal of Hand Surgery | Top/Health/Conditions_and_Diseases/Rare_Disorders/Melorheostosis Short case study with photo and x-ray. |
| Other resource N73 | E-Medicine: Moyamoya Disease | http://www.emedicine.com/neuro/topic616.htm E-Medicine: Moyamoya Disease | Top/Health/Conditions_and_Diseases/Rare_Disorders/Moyamoya Introduction, clinical features, differentials, work up, treatments, medication and follow up. |
| Other resource N74 | NORD: Moyamoya Disease | http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Moyamoya%20Syndrome NORD: Moyamoya Disease | Top/Health/Conditions_and_Diseases/Rare_Disorders/Moyamoya Sample report, plus links to organisations. [Fee required for full report] |
| Other resource N75 | Contact a Family: Pierre Robin Syndrome | http://www.cafamily.org.uk/Direct/p24.html Contact a Family: Pierre Robin Syndrome | Top/Health/Conditions_and_Diseases/Rare_Disorders/Pierre_Robin_Syndrome Main features of the condition and possible causes. |
| Other resource N76 | International Pemphigus Foundation | http://www.pemphigus.org/ International Pemphigus Foundation | Top/Health/Conditions_and_Diseases/Rare_Disorders/Pemphigus Includes information about the condition, the organisation, plus support groups. |
| Other resource N77 | Pemphigus | http://www.uoregon.edu/~sshapiro/Pemphigus/TableOfContents.html Pemphigus | Top/Health/Conditions_and_Diseases/Rare_Disorders/Pemphigus Background information, traditional treatments and natural medicine, plus the author's personal account. |
| Other resource N78 | Pemphigus Research | http://www.hopkinsmedicine.org/Pemphigus/ Pemphigus Research | Top/Health/Conditions_and_Diseases/Rare_Disorders/Pemphigus Johns Hopkins Laboratory discusses research and the types of pemphigus. |
| Other resource N79 | Genes and Diseases: Phenylketonuria | http://www.ncbi.nlm.nih.gov/disease/Phenylketo.html Genes and Diseases: Phenylketonuria | Top/Health/Conditions_and_Diseases/Rare_Disorders/Phenylketonuria Brief genetic information. |
| Other resource N80 | PKU-Info.org | http://www.pku-info.org PKU-Info.org | Top/Health/Conditions_and_Diseases/Rare_Disorders/Phenylketonuria Provides general information, plus links to organisations, suppliers and mailing lists. Also includes a forum. [English and German] |