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Topic: Top/Health/Conditions_and_Diseases/Allergies
LINKURI & TITLEDESCRIPTION & TOPIC
Previous 10NIAID Fact Sheethttp://www.niaid.nih.gov/factsheets/dustfree.htm NIAID Fact SheetTop/Health/Conditions_and_Diseases/Allergies Numerous tips and hints to keeping dust out of the bedroom.
PreviousAllernethttp://www.allernet.com/index.html AllernetTop/Health/Conditions_and_Diseases/Allergies A large variety of resources for allergy sufferers with pollen count maps, photos of mold spores and tree pollens, frequently asked questions, and directories of specialists.
Random 1DrugDigest: Sibutramine ( Meridia )http://www.drugdigest.org/DD/DVH/Uses/0,3915,6234|Meridia,00.html DrugDigest: Sibutramine ( Meridia )Top/Health/Pharmacy/Drugs_and_Medications/S/Sibutramine Information on dosage, usage, side effects, interactions, and drug comparisons, including generics when available.
Random 2Rockford Volunteer Fire Departmenthttp://www.cityofrockford.org/fire.htm Rockford Volunteer Fire DepartmentTop/Health/Public_Health_and_Safety/Emergency_Services/Fire_Fighting/North_America/United_States/Minnesota Officers, regular meetings, contact information, annual events.
Random 3The Men's Health Networkhttp://www.menshealthnetwork.org/ The Men's Health NetworkTop/Health/Men's_Health/Resources An informational and educational organization recognizing men's health as a specific social concern and committed to promoting issues affecting men's health.
Random 4Architectural Services Inc.http://www.asiarchitects.com/ Architectural Services Inc.Top/Business/Construction_and_Maintenance/Design/Architects/Multi-Discipline/North_America/United_States/Ohio Amlin firm specializing in church and religious facilities but also offering services for commercial, industrial, restaurant, medical office and residential projects.
Random 5Musicals.Net - Carouselhttp://www.musicals.net/cgi-bin/musicals?sn=90&show=Carousel Musicals.Net - CarouselTop/Arts/Performing_Arts/Theatre/Musicals/C/Carousel Includes a 'Carousel' forum, links, songlist & synopsis.
NextSavonHealthhttp://www.savonallergies.com SavonHealthTop/Health/Conditions_and_Diseases/Allergies A comprehensive allergy information site. Browse anonymously or sign up for a personalized report with information specific to your needs.
Next 10Pioneer Thinking: The Environment and Your Healthhttp://www.pioneerthinking.com/health-environment.html Pioneer Thinking: The Environment and Your HealthTop/Health/Conditions_and_Diseases/Allergies Read about the environment and how it affects you and your families health. Offered is a resource for do it yourself information, solutions and ideas.
Random 1Ultra Gypsyhttp://www.ultragypsy.com Ultra GypsyTop/Arts/Performing_Arts/Dance/Middle_Eastern/Teachers_and_Performers/Tribal Tribal bellydance company featuring fire performance and live musical accompaniment. Bellydance and drum class information listed.
Random 4Sutter Healthhttp://www.sutterhealth.org/ Sutter HealthTop/Regional/North_America/United_States/California/Regions/Northern_California/Health Network of hospitals and doctors serving more than 100 communities in Northern California. Includes health information and locator for hospitals, physicians and services.
Random 4Illinois Department of Public Healthhttp://www.idph.state.il.us/ Illinois Department of Public HealthTop/Regional/North_America/United_States/Illinois/Health/Public_Health_and_Safety Protects the state's residents and visitors through the prevention and control of disease and injury; regulates medical practitioners and promotes sanitation. Health fact sheets, vital records, publications, calendar, and links.
Next 70The Allergy Research Institutehttp://business.vsnl.com/medicine/allergypage.html The Allergy Research InstituteTop/Health/Conditions_and_Diseases/Allergies/Research Pune, India
Previous 70Electronic Journal of Hand Surgeryhttp://www.leeds.ac.uk/handsurgery/EJHS/overgr.htm Electronic Journal of Hand SurgeryTop/Health/Conditions_and_Diseases/Rare_Disorders/Melorheostosis Short case study with photo and x-ray.
Next 170Cow's Milk is for Baby Cowshttp://forums.delphiforums.com/nondairy Cow's Milk is for Baby CowsTop/Health/Conditions_and_Diseases/Allergies/Food/Milk A forum for individuals living dairy-free. Also a dairy-free webring.
Previous 170Mid-West Center For Sleep Disordershttp://www.mwcsd.com Mid-West Center For Sleep DisordersTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Utilizes the latest technology for diagnosing and treating sleep/wake disorders. Located in Brighton, Michigan.
Next 270
Previous 270Better Sleep Councilhttp://www.bettersleep.org/ Better Sleep CouncilTop/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations Useful site. The Council was established in 1978, the Better Sleep Council (BSC) is a nonprofit organization supported by the mattress industry that is devoted to educating the public about the importance of sleep and the value of the sleep system and sleep environment.
Other resource N0 BSSAAhttp://www.britishsnoring.demon.co.uk/ BSSAATop/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations The British Snoring and Sleep Apnoea Association aims to promote public awareness that habitual snoring and sleep apnoea are generally treatable complaints and that help is available.
Other resource N1 International Sleep Medicine Associationhttp://www.1sleep.com International Sleep Medicine AssociationTop/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations New worldwide association for physicians, scientists, patients and corporations interested in sleep.
Other resource N2 Sleep Research Society Home Pagehttp://www.sleepresearchsociety.org/site/ Sleep Research Society Home PageTop/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations The U.S. Sleep Research Society (SRS) fosters scientific investigations on all aspects of sleep and its disorders. It promotes training and education in sleep research and provides forums for the exchange of knowledge pertaining to sleep.
Other resource N3 SomnoMed Australian Sleep Associationhttp://www.somnomed.com.au/ SomnoMed Australian Sleep AssociationTop/Health/Conditions_and_Diseases/Sleep_Disorders/Organizations Professional Austrialian sleep organization focusing on obstructive sleep apnoea and snoring. Aims to promote public awareness about the medical and social ramifications of sleep disorders.
Other resource N4 Sleep Paralysis and Related Experienceshttp://watarts.uwaterloo.ca/~acheyne/S_P.html Sleep Paralysis and Related ExperiencesTop/Health/Conditions_and_Diseases/Sleep_Disorders/Sleep_Paralysis A comprehensive site dealing with sleep paralysis, hypnagogic and hypnopompic hallucinations.
Other resource N5 Sleep Paralysis and Lucid Dreaminghttp://www.geocities.com/jorgeconesa/Paralysis/sleepnew.html Sleep Paralysis and Lucid DreamingTop/Health/Conditions_and_Diseases/Sleep_Disorders/Sleep_Paralysis A scientific and personal research and account of Sleep Paralysis and its connection to lucid dreaming, alien abduction phenomena and nightmares. List of symptoms and references.
Other resource N6 Wemove - Restless Legs Syndromehttp://www.wemove.org/rls.html Wemove - Restless Legs SyndromeTop/Health/Conditions_and_Diseases/Sleep_Disorders/Restless_Legs_Syndrome Useful information site for patients and medical professionals hosted by We Move - an awareness for movement disorders site (funded by pharmaceutical companies).
Other resource N7 Restless Legs Syndromehttp://www.ninds.nih.gov/health_and_medical/disorders/restless_doc.htm Restless Legs SyndromeTop/Health/Conditions_and_Diseases/Sleep_Disorders/Restless_Legs_Syndrome Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Other resource N8 Sleep Disorders Center - Restless Legs Syndromehttp://www.med.nyu.edu/sleep/rls.html Sleep Disorders Center - Restless Legs SyndromeTop/Health/Conditions_and_Diseases/Sleep_Disorders/Restless_Legs_Syndrome Described as those "creepy crawly" sensations in legs, sometimes described as feeling like "Pepsi Cola in the veins." Find a list of symptoms.
Other resource N9 Greater San Antonio Restless Legs Syndrome Support Grouphttp://www.legsmove.org/ Greater San Antonio Restless Legs Syndrome Support GroupTop/Health/Conditions_and_Diseases/Sleep_Disorders/Restless_Legs_Syndrome Designed to educate those suffering with RLS/PLMS so that they can be aware of the latest treatments and identify the symptoms so that they can get proper treatment.
Other resource N10 Northside Hospital Sleep Medicine Institutehttp://www.nshsleep.com/services.htm Northside Hospital Sleep Medicine InstituteTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers A description of the sleep disorders treated here, including sleepwalking, night terrors, sleep related violence, sleep eating, gastroesophageal reflux and childhood sleep disorders. Atlanta,GA.
Other resource N11 Silent Partners Sleep Clinichttp://www.silentpartners.org Silent Partners Sleep ClinicTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Located in uptown Toronto, Silent Partners Sleep Laboratory is a seven bed laboratory with state of the art equipment. We diagnose and treat many different kinds of sleep disorders including snoring, sleep apnea, insomnia, periodic leg movement and restless leg syndromes, narcolepsy and parasomnias.
Other resource N12 Sleep Disorders Center at Newark Beth Israelhttp://njsleephelp.com/ Sleep Disorders Center at Newark Beth IsraelTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers The Sleep Disorders Center at Newark Beth Israel was set up in 1978 and has since diagnosed and treated more than 8,500 patients.
Other resource N13 Sleep Laboratory University Of Marburghttp://www.uni-marburg.de/sleep/lab/welcome_.html Sleep Laboratory University Of MarburgTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Sleep Laboratory, University Of Marburg, established in 1981 conducts research and treats sleep disorders.
Other resource N14 Bondi Junction, Centre for Snoring and Sleep Disordershttp://www.snoring.com.au Bondi Junction, Centre for Snoring and Sleep DisordersTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Information site for patients and medical professionals dealing with snoring and sleep related conditions. The Centre for Snoring and Sleep Disorders, Bondi Junction, Sydney, Australia.
Other resource N15 C.N.P.P.http://www.cnpp.org.mx/eng/ C.N.P.P.Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers The Neuro-psycho-pedagogic center, Mexico, is an interdisciplinary clinic established in 1978 includes a sleep disorders center and also specializes in neurology, psychology, and education.
Other resource N16 Midwest Sleep Diagnosticshttp://www.midwestsleep.com/ Midwest Sleep DiagnosticsTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Information about the facility, the services provided, location and insurance. Located in St. Louis, Missouri.
Other resource N17 Christ Hospital's Sleep Disorders Labhttp://www.christhospital.org/sleepdisorders/sleepdisorders.html Christ Hospital's Sleep Disorders LabTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Christ Hospital's Sleep Disorders Lab
Other resource N18 Cheshire Center for Sleep Studies, NHhttp://www.cheshire-med.com/programs/sleep/intro.html Cheshire Center for Sleep Studies, NHTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers A cooperative effort between the Cheshire Medical Center and the Dartmouth Sleep Disorder to provide a facility offering evaluation and treatment of the full range of sleep disorders.
Other resource N19 Sleep apnea, narcolepsy, hypersomnia and other sleep disorders (Columbus)http://www.netexp.net/~flamenco/sleepresources.html Sleep apnea, narcolepsy, hypersomnia and other sleep disorders (Columbus)Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Sleep medicine resources for detection and control of sleep apnea, narcolepsy, hypersomnia, insomnia and sleep disorders.
Other resource N20 The Children's Hospital Medical Center of Cincinnati Sleep Disorders Clinichttp://www.cincinnatichildrens.org/programs_services/391/ The Children's Hospital Medical Center of Cincinnati Sleep Disorders ClinicTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers The Cincinnati Children's Hospital Medical Center Sleep Disorders Clinic staff provides a multidisciplinary assessment and assistance with managing sleep problems.
Other resource N21 SleepQuest: Treating Sleep Disorders - Obstructive Sleep Apneahttp://www.sleepquest.com SleepQuest: Treating Sleep Disorders - Obstructive Sleep ApneaTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers SleepQuest specializes in treating obstructive sleep apnea and other sleep disorders by providing innovative diagnostic and treatment services in the convenience of the patient's home.
Other resource N22 HMS Diagnostics, Inc.http://hmsdiagnostics.com HMS Diagnostics, Inc.Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Specialists in the diagnosis of sleep disorders. Located in the heart of the Texas Medical Center. Houston,TX
Other resource N23 Wesley Medical Center's - Sleep Disorders Centerhttp://www.wesleymc.com/CustomPage.asp?guidCustomContentID={18DC58DD-40A2-11D4-A2E1-00508B62BE1F} Wesley Medical Center's - Sleep Disorders CenterTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Basic information from this Wichita based sleep disorders center.
Other resource N24 VCU Health Systems Sleep Disorders Centerhttp://www.vcu.edu/sleepwell VCU Health Systems Sleep Disorders CenterTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Located in Richmond, Virginia. Information on apnea, narcolepsy, insomnia, RLS, and links to other sites.
Other resource N25 Royal Brompton Hospital, London - Victoria Wardhttp://www.rbh.nthames.nhs.uk/InternetSection/department/warddepartmentchapters.asp Royal Brompton Hospital, London - Victoria WardTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Includes a research laboratory in sleep apnoea, and investigates breathing problems in people with neuromuscular disorders.
Other resource N26 Sleep Disorders Center of SW Floridahttp://www.mydoctor.com/martincohnmd/ Sleep Disorders Center of SW FloridaTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Learn about this center and its diagnosis and treatment of sleep apnea, insomnia, narcolopsy, and other sleep disorders as well as clinical research. Includes health news and resources.
Other resource N27 Sleep Medicine Associates of Texas, P.A.http://www.sleepmed.com Sleep Medicine Associates of Texas, P.A.Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Sleep offices and laboratories in the North Texas area, based in Dallas and Plano.
Other resource N28 Morningstar Sleep Medicine Associates, LLC.http://www.virtualsleepclinic.com/ Morningstar Sleep Medicine Associates, LLC.Top/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Virtual sleep disorders clinic. Find information about the services, the doctors, news and a FAQs.
Other resource N29 Central Texas Chest Clinichttp://www.startsleeping.com/ Central Texas Chest ClinicTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Explanations of common sleep disorders and their treatment options.
Other resource N30 Bay Sleep Clinichttp://www.baysleep.com Bay Sleep ClinicTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Dedicated to helping to achieve a good night’s sleep. Serves in three locations in the Bay Area: San Francisco, Los Gatos and Menlo Park.
Other resource N31 Trinitas Hospital Sleep Disorders Centerhttp://www.njsleepdisorderscenter.com Trinitas Hospital Sleep Disorders CenterTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Hospital-based program to diagnose and treat snoring, sleep apnea, insomnia, restless leg syndrome, narcolepsy and many other sleep disorders.
Other resource N32 Sierra Sleep Technologieshttp://www.sierrasleep.com Sierra Sleep TechnologiesTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers Specializing in the treatment and diagnosis of sleep disorders. Research and clinical studies performed in Las Vegas.
Other resource N33 The Regional Center for Sleep Medicinehttp://www.trcsm.com The Regional Center for Sleep MedicineTop/Health/Conditions_and_Diseases/Sleep_Disorders/Centers A member of the Sleep Network, a national consortium of diagnostic and treatment sleep disorders centers, specializing in sleep apnea.
Other resource N34 Dreamland and Somnambulismhttp://blavatsky.net/blavatsky/arts/DreamlandAndSomnambulism.htm Dreamland and SomnambulismTop/Health/Conditions_and_Diseases/Sleep_Disorders/Sleepwalking Includes a brief history and synopsis.
Other resource N35 Diary of a Somnambulisthttp://www.sleepwalkdiary.com Diary of a SomnambulistTop/Health/Conditions_and_Diseases/Sleep_Disorders/Sleepwalking This is a real-life diary of my sleepwalking adventures updated as episodes occur. Sometimes funny, sometimes creepy -- always true!
Other resource N36 American Association of Medical Chronobiology and Chronotherapeuticshttp://www.aamcc.org American Association of Medical Chronobiology and ChronotherapeuticsTop/Health/Conditions_and_Diseases/Sleep_Disorders/Biological_Rhythms Details about the AAMCC who provides an organizational framework for scientists and health care professionals interested in the medical application of chronobiology and chronotherapeutics.
Other resource N37 Center for Biological Timing Home Pagehttp://www.cbt.virginia.edu/index.html Center for Biological Timing Home PageTop/Health/Conditions_and_Diseases/Sleep_Disorders/Biological_Rhythms The National Science Foundation Center for Biological Timing. Tutorials and original papers on biological timing.
Other resource N38 Circadian Sleep Disorders Associationhttp://www.circadiandisorders.org/ Circadian Sleep Disorders AssociationTop/Health/Conditions_and_Diseases/Sleep_Disorders/Biological_Rhythms Support and providing information to those affected by circadian sleep disorders such as Delayed Sleep Phase Syndrome. Includes links, FAQs, message board and a mailing list.
Other resource N39 Delayed Sleep Phase Syndromehttp://www.geocities.com/delayed_sleep Delayed Sleep Phase SyndromeTop/Health/Conditions_and_Diseases/Sleep_Disorders/Biological_Rhythms Comprehensive site with symptoms, causes, treatments, and links to further information on DSPS and circadian rhythms.
Other resource N40 Children Who Sleep With Light on May Damage Their Sighthttp://www.bmj.com/cgi/content/full/318/7195/1369/a Children Who Sleep With Light on May Damage Their SightTop/Health/Conditions_and_Diseases/Sleep_Disorders/Life_Cycle_Sleep_Disorders News item from British Medical Journal (1999).
Other resource N41 BabyCenter - Sleep During Pregnancyhttp://www.babycenter.com/refcap/7512.html BabyCenter - Sleep During PregnancyTop/Health/Conditions_and_Diseases/Sleep_Disorders/Life_Cycle_Sleep_Disorders Describes how pregnancy will affect sleep and what to do about it (also has useful links).
Other resource N42 Kleine-Levin Syndromehttp://www.kleinelevin.com/ Kleine-Levin SyndromeTop/Health/Conditions_and_Diseases/Sleep_Disorders/Disturbed Provides information and support for those people who have KLS or who have a loved one with KLS and to provide them the opportunity to get in touch with other KLS persons.
Other resource N43 Cherubshttp://www.cherubs-cdh.org CherubsTop/Health/Conditions_and_Diseases/Rare_Disorders A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
Other resource N44 Human Growth Foundationhttp://www.hgfound.org/ Human Growth FoundationTop/Health/Conditions_and_Diseases/Rare_Disorders Information about growth-related disorders through education, research, and advocacy. Member driven organization.
Other resource N45 Tetrahydrobiopterinhttp://www.bh4.org TetrahydrobiopterinTop/Health/Conditions_and_Diseases/Rare_Disorders Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency.
Other resource N46 Lymphangiomatosis and Gorham's Vanishing Bone Diseasehttp://www.gorhams.dk Lymphangiomatosis and Gorham's Vanishing Bone DiseaseTop/Health/Conditions_and_Diseases/Rare_Disorders Provides general information and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group.
Other resource N47 Information Centre for Rare Diseases and Orphan Drugshttp://www.raredis.org Information Centre for Rare Diseases and Orphan DrugsTop/Health/Conditions_and_Diseases/Rare_Disorders Offers an Internet portal. Includes news, forums, rare disease and orphan drug info and registration forms
Other resource N48 Hutchinson-Gilford Progeria Syndrome (HGPS) Resource Pagehttp://www.laze.net/progeria/index.html Hutchinson-Gilford Progeria Syndrome (HGPS) Resource PageTop/Health/Conditions_and_Diseases/Rare_Disorders/Progeria Provides an overview of the disease as well as links to resources.
Other resource N49 Online Mendelian Inheritance in Man - Progeriahttp://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?176670 Online Mendelian Inheritance in Man - ProgeriaTop/Health/Conditions_and_Diseases/Rare_Disorders/Progeria Progeria medical database resource for textual information, pictures, and reference information.
Other resource N50 NORD: Progeria, Hutchinson Gilfordhttp://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Progeria%2C%20Hutchinson%20Gilford NORD: Progeria, Hutchinson GilfordTop/Health/Conditions_and_Diseases/Rare_Disorders/Progeria Outlines the symptoms and lists related organizations.
Other resource N51 Doctor's Doctor: Degos Diseasehttp://www.thedoctorsdoctor.com/diseases/degos_disease.htm Doctor's Doctor: Degos DiseaseTop/Health/Conditions_and_Diseases/Rare_Disorders/Degos Synonyms, appearance and prognosis.
Other resource N52 eMedicine - Degos Disease :http://www.emedicine.com/derm/topic931.htm eMedicine - Degos Disease :Top/Health/Conditions_and_Diseases/Rare_Disorders/Degos Article by Noah S Scheinfeld, MD, JD, FAAD. Background, pathophysiology, causes, and treatments.
Other resource N53 VATER Associationhttp://www3.ncbi.nlm.nih.gov:80/htbin-post/Omim/dispmim?192350 VATER AssociationTop/Health/Conditions_and_Diseases/Rare_Disorders/VATER_Syndrome Description and clinical synopsis, plus links to articles and research abstracts.
Other resource N54 Wegener's Granulomatosis Infohttp://www.weareb.org/WG/index.html Wegener's Granulomatosis InfoTop/Health/Conditions_and_Diseases/Rare_Disorders/Wegener's_Granulomatosis Subscription information and archives for a Wegener's mailing list, FAQ, articles and links for further information.
Other resource N55 Wegener's Granulomatosis, NIAID Fact Sheethttp://www.niaid.nih.gov/factsheets/wegeners.htm Wegener's Granulomatosis, NIAID Fact SheetTop/Health/Conditions_and_Diseases/Rare_Disorders/Wegener's_Granulomatosis Fact sheet from the US National Institute of Allergies and Infectious Diseases.
Other resource N56 Wegener's Granulomatosishttp://www.nlm.nih.gov/medlineplus/ency/article/000135.htm Wegener's GranulomatosisTop/Health/Conditions_and_Diseases/Rare_Disorders/Wegener's_Granulomatosis Brief overview including definition, causes and risk factors, from adam.com.
Other resource N57 Wegener's Granulomatosis Associationhttp://www.wgassociation.org Wegener's Granulomatosis AssociationTop/Health/Conditions_and_Diseases/Rare_Disorders/Wegener's_Granulomatosis A non-profit organization dedicated to providing emotional and informational support to patients and their families with Wegener's granulomatosis.
Other resource N58 Cystinosis Centralhttp://medicine.ucsd.edu/cystinosis/INDEX.htm Cystinosis CentralTop/Health/Conditions_and_Diseases/Rare_Disorders/Cystinosis Information about this disorder, conferences, data for physicians, updates and links.
Other resource N59 NINDS: Aicardi Syndromehttp://www.ninds.nih.gov/health_and_medical/disorders/aicardi.htm NINDS: Aicardi SyndromeTop/Health/Conditions_and_Diseases/Rare_Disorders/Aicardi_Syndrome Information sheet compiled by National Institute of Neurological Disorders and Stroke with general information, and a list of organisations.
Other resource N60 National Library of Medicine: Aicardi syndromehttp://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome015.html National Library of Medicine: Aicardi syndromeTop/Health/Conditions_and_Diseases/Rare_Disorders/Aicardi_Syndrome provides a summary, list of synonyms, and the major features.
Other resource N61 Aicardi Syndrome Foundationhttp://www.aicardisyndrome.org/ Aicardi Syndrome FoundationTop/Health/Conditions_and_Diseases/Rare_Disorders/Aicardi_Syndrome Information about the disease, a medical survey, where to get help, publications and a chat room for support.
Other resource N62 Cleidocranial Dysplasiahttp://cleidocranial_dysplasia.homestead.com/page1.html Cleidocranial DysplasiaTop/Health/Conditions_and_Diseases/Rare_Disorders/Cleidocranial_Dysplasia Information about this rare genetic disorder, studies and a chat room.
Other resource N63 National Library of Medicine: cerebrocostomandibular (CCM) syndrome (CCMS)http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome098.html National Library of Medicine: cerebrocostomandibular (CCM) syndrome (CCMS)Top/Health/Conditions_and_Diseases/Rare_Disorders/Cerebrocostomandibular_Syndrome A list of synonyms, summary and major features.
Other resource N64 Electronic Journal of Hand Surgeryhttp://www.leeds.ac.uk/handsurgery/EJHS/overgr.htm Electronic Journal of Hand SurgeryTop/Health/Conditions_and_Diseases/Rare_Disorders/Melorheostosis Short case study with photo and x-ray.
Other resource N65 E-Medicine: Moyamoya Diseasehttp://www.emedicine.com/neuro/topic616.htm E-Medicine: Moyamoya DiseaseTop/Health/Conditions_and_Diseases/Rare_Disorders/Moyamoya Introduction, clinical features, differentials, work up, treatments, medication and follow up.
Other resource N66 NORD: Moyamoya Diseasehttp://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Moyamoya%20Syndrome NORD: Moyamoya DiseaseTop/Health/Conditions_and_Diseases/Rare_Disorders/Moyamoya Sample report, plus links to organisations. [Fee required for full report]
Other resource N67 Contact a Family: Pierre Robin Syndromehttp://www.cafamily.org.uk/Direct/p24.html Contact a Family: Pierre Robin SyndromeTop/Health/Conditions_and_Diseases/Rare_Disorders/Pierre_Robin_Syndrome Main features of the condition and possible causes.
Other resource N68 International Pemphigus Foundationhttp://www.pemphigus.org/ International Pemphigus FoundationTop/Health/Conditions_and_Diseases/Rare_Disorders/Pemphigus Includes information about the condition, the organisation, plus support groups.
Other resource N69 Pemphigushttp://www.uoregon.edu/~sshapiro/Pemphigus/TableOfContents.html PemphigusTop/Health/Conditions_and_Diseases/Rare_Disorders/Pemphigus Background information, traditional treatments and natural medicine, plus the author's personal account.
Other resource N70 Pemphigus Researchhttp://www.hopkinsmedicine.org/Pemphigus/ Pemphigus ResearchTop/Health/Conditions_and_Diseases/Rare_Disorders/Pemphigus Johns Hopkins Laboratory discusses research and the types of pemphigus.
Other resource N71 Genes and Diseases: Phenylketonuriahttp://www.ncbi.nlm.nih.gov/disease/Phenylketo.html Genes and Diseases: PhenylketonuriaTop/Health/Conditions_and_Diseases/Rare_Disorders/Phenylketonuria Brief genetic information.
Other resource N72 PKU-Info.orghttp://www.pku-info.org PKU-Info.orgTop/Health/Conditions_and_Diseases/Rare_Disorders/Phenylketonuria Provides general information, plus links to organisations, suppliers and mailing lists. Also includes a forum. [English and German]
Other resource N73 Rubinstein-Taybi Syndromehttp://www.rubinstein-taybi.org Rubinstein-Taybi SyndromeTop/Health/Conditions_and_Diseases/Rare_Disorders/Rubinstein-Taybi_Syndrome A site devoted to the families and people diagnosed with this syndrome.
Other resource N74 Barth Syndrome Foundationhttp://www.barthsyndrome.org Barth Syndrome FoundationTop/Health/Conditions_and_Diseases/Rare_Disorders/Barth_Syndrome Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder.
Other resource N75 The Complete Barth Syndrome Homepagehttp://www.csun.edu/~hcbio033/barth.html The Complete Barth Syndrome HomepageTop/Health/Conditions_and_Diseases/Rare_Disorders/Barth_Syndrome List of clinical symptoms, history of the condition, current news, and links to support groups.
Other resource N76 Virtual Children's Hospital: Enchondromatosishttp://www.vh.org/Providers/TeachingFiles/PAP/MSDiseases/Enchondromatosis.html Virtual Children's Hospital: EnchondromatosisTop/Health/Conditions_and_Diseases/Rare_Disorders/Ollier_Disease Clinical presentation, etiology and imaging findings.
Other resource N77 Tyrosinemiahttp://groups.msn.com/tyrosinemia/ TyrosinemiaTop/Health/Conditions_and_Diseases/Rare_Disorders/Tyrosinemia For all people interested in connecting with others with this disease.
Other resource N78 The Erythromelalgia Associationhttp://www.erythromelalgia.org/ The Erythromelalgia AssociationTop/Health/Conditions_and_Diseases/Rare_Disorders/Erythromelalgia A non-profit organization dedicated to research and education regarding this painful disorder. Offers details about the disorder, the organization, FAQs and membership information.
Other resource N79 Alström Syndromehttp://www.jax.org/alstrom Alström SyndromeTop/Health/Conditions_and_Diseases/Rare_Disorders/Alström_Syndrome Clinical features, literature and research. Includes guidelines for health care professionals.
Other resource N80 Alström Syndrome of Canadahttp://alstromsyndrome.ca Alström Syndrome of CanadaTop/Health/Conditions_and_Diseases/Rare_Disorders/Alström_Syndrome Includes information about the condition, and the organisation.

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